Can PoTS cause constant breathlessness or is it cause more likely to be my Atrial fibrillation.and is there medication for PoTS?

[2000RedRose]

Is there medication for PoTS

[Physalis]

I am very interested in POTS or postural orthostatic tachycardia syndrome. One of my grandsons has been diagnosed with it. Sanjay Gupta has got a lot of videos on POTS on youtube and you would probably find them interesting and helpful.

There are quite a few medications and he talks about them too.

Tessa

[2000RedRose in reply to Physalis]

Thank you so much Physalis .Just spent a while looking at Dr,S.G.Youtubes and they were very helpful, although seemed to stop before the medications appeared.I appreciate your concern ,and wish you all the best with your own condition.2000:Red Rose

[Physalis in reply to 2000RedRose]

Here are some you might not have noticed

youtube.com/watch?v=z4Qtrz6...(Not working as expected?)

A 'Pill in the Pocket' for POTS patients (brain fog)

youtube.com/watch?v=wT32NRv...(Not working as expected?)

Mestinon: A glimmer of hope in POTS

youtube.com/watch?v=Fr6aVOs...(Not working as expected?)

Melatonin for POTS

and there was one about Midodrine

youtube.com/watch?v=EPpOmcJ...(Not working as expected?)

I will post in the STARS forum soon, when I've got time. My grandson tried Midodrine but discontinued it. Since my ablation and my drop in blood pressure when I stood up to go home that day I'm wondering if there is a connection between his condition and mine. But it's early days.

[2000RedRose in reply to Physalis]

Thank you Physalis for finding time to send all this Very interesting information to me.It is much appreciated.—I am at a bit of a loss knowing what to do as my GP and Cardiologist( whom I never see )don’t seem to be aware of this condition so I feel a bit in limbo.—Good luck and good wishes to your grandson .It must be hard considering his condition as well as your own.— You have My admiration. Look after yourselves, and all the best .2000Red Rose

[CDreamer in reply to 2000RedRose]

Go to the link I posted below, send/print out the info & go from from there.

[jeanjeannie50]

Love your beautiful rose. This video may answer your question:

youtube.com/watch?v=xVfi2hb...(Not working as expected?)

[2000RedRose in reply to jeanjeannie50]

Thank you Jeanjeannie50.—I have just been looking at Dr.S.G.Youtubes as they were also suggested by Physalis and found them interesting .Seemed to stop before the medications one ,however.—I appreciate your concern and suggestion.Best wishes and keep well .Glad you liked my rose bush that I’ve neglected a bit this year due to my breathlessness and fatigue worsening.

[CDreamer]

In a word - Yes - go to the STARS site on AA for info on living with POTS & managing the condition.

Any other associated conditions? Often there are.

heartrhythmalliance.org/sta...

Watch the video on line by

Dr Blair Grubb, Professor of Medicine and Paediatrics, University of Toledo, Ohio, who discusses the diagnosis and treatment of postural tachycardia syndrome (PoTS) - he was speaker at Patient Day 2019.

He is leading specialist globally & lovely man.