I can’t do anything. Arghh!!! - Atrial Fibrillati...

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I can’t do anything. Arghh!!!

IanMK profile image
4 Replies

Hi people.

Although I would not be considered to be athletic - in fact, I don’t do any structured exercise or walking - I’ve always been very active around the house and have been itching to get out on my bike again once I can find the time. I’m 63 with a normal BMI. I am on the usual heart (rate & rhythm) medications that are working as intended with no significant side effects while waiting for a pace & ablate. My story began around this time last year when I was despatched to A&E with fluid on the lungs. One year on, I’m finding it very difficult to maintain a resonable level of activity: even cutting the grass knocks the stuffing out of me. So much so, that I tend to push myself too hard or for too long that I overdo it and I’m knocked for six the next day.

Anyone else feel the same?

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IanMK profile image
IanMK
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4 Replies
BobD profile image
BobDVolunteer

Yes but I can give you ten years. and they count! Oh and apart from BP meds and warfarin I am not on any drugs.

IanMK profile image
IanMK

Hi Jo

25% EF on my stress test 5-6 months ago, although the cardiologist was surprised at the cardiac output I achieved (something to do with my ‘long axis reserve” apparently). I realise my bisoprolol is doing its job, but I think that my capacity is reducing while I am waiting. I update my EP weekly with AliveCor traces and expect another consultation before the end of the month. While the hope is that a pace and ablate with corrected ventricular activity will improve my EF, I presently have a problem accepting my limitations. There aren’t any meds for that 😳.

IanMK profile image
IanMK

Hi Jo - As I say, the cardiologist was surprised at my cardiac output considering the low EF. Perhaps the chickens coming home to roost 😉.

I originally had a heart failure nurse to titrate my meds, but when she ‘signed me off’ I decided to go Private. NHS progress was too slow for me. My speed of progress is now limited by my body’s recovery from procedures and I am in weekly contact with my EP.

I am also a member of the BHF forum but it has far fewer members and is less active than this one.

Buffafly profile image
Buffafly

Yes, though my cardiologist said my ventricular function was good after my echo so I don't have an excuse for feeling Tired All The Time (TATT). I'll see what he says when I see him later this month. It would be quite nice to have an explanation even if not good news 😔

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