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Atrial Fibrillation Support

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Newbie here

Karzme profile image
14 Replies

Hi all I just joined. My name is Karina. I am 43 years old. On Nov. 17,2017 I started passing out. I went to Neurologist office and ER a few times ( I have MS 11 year's end of April hence Neurologist).

I have passed out repeatedly everyday since. My legs also jerk( which I call seizures). I was tested and don't have epilepsy. Am glad. But still no answer from doctors until I get a new primary doctor.

I saw him on Dec. 26th and on Dec. 28th. I went in on 28th to get results from lab work. He listened to my heart and asked if I knew I had an irregular heartbeat. I said yes. I have been told this in the past. No one tried to figure out why. So I didn't think it was a problem.

He told me I had AFib after doing an EKG. All the ER doctors said was I was having Psychogenic Non-Epileptic Seizures. Basically they said it was Psychlogical not medical.

I see Cardiologist on Jan. 11th 2018. I am scared alot. Since all this happened I use a walker. I usually get a headache before I pass out or after I pass out. I live with an older sister who has helped alot. Also my Dad has come from Montana ( I live in Washington) to help out so my sister can work. I looked up Cardiologist I am going to see. He has good ratings. Hope to get answers and no longer pass out. Then my Dad can go home and I can do more for myself hopefully.

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Karzme profile image
Karzme
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14 Replies
Naomi63 profile image
Naomi63

Hi Karina,

I don’t know much about your condition but I wish you well with your cardiologist visit. I hope you get some answers and feel better soon. X

Karzme profile image
Karzme in reply toNaomi63

Thanks

Sebhel profile image
Sebhel

Hi Karzme

Welcome here!

When I was diagnosed with AF I knew nothing, and had never heard of it! I was in state of panic... Could not sleep etc! I was scared of the medication options! But the more I learnt what AF was from doctors and this forum the more I calmed down and accepted it! You must ask for all the information about it...even ask what questions you should be asking... Even where there are no clear answers, Knowledge helps

Best wishes for New Year

Karzme profile image
Karzme in reply toSebhel

Sebhel Thanks. You said you had trouble sleeping. Was that due to diagnoses or did you have it before? I had trouble sleeping before being diagnosed. I now have some pills to help me sleep.

Sebhel profile image
Sebhel in reply toKarzme

Yes, I had trouble sleeping before I knew about AF and was not drinking enough, so was dehydrated! I went through stress and anxiety whilst waiting long time for appointments to see cardiologyt and EP specialists have tests, get prescriptions.

My EP was very helpful explaining everything - pros and cons etc

I am liquid enough now and mostly sleep ok! (Maybe there's a link)

Fingers crossed

Best wishes

EP = electrophysiology

Karzme profile image
Karzme in reply toSebhel

What is difference between EP and Cardiologist

Sebhel profile image
Sebhel in reply toKarzme

EP is the specialist to see for AF and rythm issues and after low odds possible effects causing risk of clots / strokes! He has to decide pros and cons what's best for each individual! We are all different - not easy!!!

Sebhel profile image
Sebhel in reply toSebhel

Also explain so we can choose - not easy either - you have to ask as many questions as possible

Karzme profile image
Karzme in reply toSebhel

Thank you. I googled questions to ask. Wrote some down.

Karzme profile image
Karzme in reply toKarzme

So if I do have AFib will I no longer need to see a Cardiologist?

Before you see the cardio, bone up on sick sinus syndrome and also anticoagulants in AF so you are prepared if she/he says your fainting episodes might be due to heart block and separately that you need stroke protection.

I haven't heard of psychogenic non epileptic seizures, sounds like a diagnosis that should only be made after careful investigation for the many physical causes of syncope, including Stokes Adams.

Karzme profile image
Karzme in reply to

I looked it up thanks

fib4 profile image
fib4

sorry to hear all this it must be scary. i hate when you to to docs and the er and they say nothing is wrong. so frustrating or they miss diagnose i've had irregular heart beats for over 40 years. had tests and tests and nothing wrong shows up. sometimes they look at you like it's all in your head and you've brought it on yourself. so unfair. passing out all the time with headaches should tell them something is up. hope you get answers from the cardiologist. let me know how you make out i live in pennsylvania

Karzme profile image
Karzme in reply tofib4

So the first Holter Monitor I was on didn't read. So I had to go back today and get new one. Nurse was great. Made sure it was reading my heart beat. Was pretty cool I got to see my heart beat on it. She answered all my questions. This one is 48 hr monitor, one before was 24.

So my Cardiologist said since my EKG in his office was normal as well as documented ones in ER, he said he doesn't think I have AFib. What??? I told him my and gave them a copy of primary doctor EKG that he ordered. I asked him how that can be positive? He said they could of put leads on wrong. What?? And he is a specialist how?? Boy am I confused.

So he read my EKG's done in ER. He looked at my chart. Nothing going on in his office. Ok Holter for sure. Almost had to ask. I have an echo cardiogram done on Jan 30th. I just hope one of those shows something.

My Dad was in office with me when he is telling me this. After I come back from having Holter put on, he tells me he texted my sister I live with, that he said I don't have AFib. Needless to say. I was mad. I had to talk to him about it.

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