After my diagnosis with AF in August, the pathway of care was as bad as many of you have recorded on this blog!! I have been involved in our local hospital campaign for some time so have been in contact with the chair of our CCG. When I spoke to her about the splintered pathway she promised to set one up! I have received an e mail today asking me to be the patient input into this. I feel able to tell them about the anti-coagulation issues ( I asked my GP to put me on warfarin!!) and self testing, costs of strips where prescriptions are limited, the issues with test results being scattered and not acted on, and waiting times for referral, GPs not knowing choose and book. However, I have contacted the AF association office asking for info. , and would ask you all to contribute, to ideas re the longer term pathway which you know much more about than I do. I hope to make the talks on Sunday in London, will try and get carnation!! so if anyone wants to give me ideas there- or just suggestions here please. It will help a lot of people in our area who are not getting the correct treatment at present. Many thanks Rosemary
Last edited by rosyG
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