Mistletoe Therapy?

[Benkaymel]

Now that I am officially castration-resistant (after only a year on HT), I'm reconsidering other treatment options again. I looked at functional medicine a year ago and decided against it but now I am going to give it a try. They have sent me details of mistletoe therapy by a company called Iscador so I wondered if anyone had tried it and has any story to tell about response to it? It has been subject to several RCT trials that have shown benefit in using it.

[NotDFL]

The NCI site isn't overly enthusiastic:

cancer.gov/about-cancer/tre....

[YC22]

How about ivermectin? Or THC + CBD? Also. Check dr William li antiangiogenic diet, Chris Wark, Ty Bollinger.

[Jeremiad53 in reply to YC22]

I purchased Ty Bollingers videos about cancer, before I had cancer. It was a lot of money, and a waste.

[katartizo61]

Give ValAsta a look, FDA approved

[Big_Mcc]

Have you considered AOH1996 or I read there was a promising vaccine therapy using modified polio virus

[MateoBeach]

Show links to the RCTs you refer to please.

[Benkaymel in reply to MateoBeach]

I have a document called 'ISCADOR - Scientific Information' with details of several RCTs but I cannot see any way of attaching a document to this reply. If you want to provide me your email via a private chat, I'd be happy to send it to you.

[Jeremiad53 in reply to Benkaymel]

I would be interested in ISCADOR also, I don't know how to do private chat so here it is earz2here@gmail. Please and thank you

[MateoBeach]

Thanks Benkaymel. By searching " iscador and cancer" turned up studies of interest to me.

Here is meta-analysis as one example:

ncbi.nlm.nih.gov/pmc/articl...

[j-o-h-n]

From a post of 1 year ago: (and only 2 replies). Note: the2 responder's UserIDs were removed by me. (There are a few more "Mistletoe posts from days/years).

hilaryjane•

1 year ago•2 Replies

Hi there I listened to a talk yesterday on the Penny Brohn Cancer Support website on Mistletoe therapy and was wondering if any of you have any experience of it? Be really useful to hear if you have.

Thanks and best wishes to everyone.

Written by

hilaryjane profile image

hilaryjane

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This used to be a very popular topic going back ten years or so, particularly on the North American OCNA Inspire forum. It strikes me that it has fallen out of circulation a bit these days, not quite sure why. I think the brand that got mentioned a lot back then was Iscador. Funnily enough, it cropped up the other day when I was reading about a woman called Fi Munro who had stage 4 OC and sadly passed away in 2020. As well as standard treatment for OC (surgery & chemo), she had intravenous mistletoe treatment in a private clinic which cost £2500, plus £200 a month afterwards. I think she had it with the approval of her oncologist. There has been some small scale clinical research which you can easily find through google.

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Hi Hillaryjane. I’m stage four OC with liver mets. I was debulked in June 2020 and have had two lines of chemotherapy. I had to stop my second-line chemo midway because the gut pain was unbearable. Even prescription pain meds could not stop the pain. I had researched mistletoe injection therapy extensively and decided to try it. I have been on it since March. After I had been on it a couple of weeks, I restarted my chemo and had no further stomach pains. I was able to finish the chemo. Mistletoe is not FDA approved, but is being trialed at Johns Hopkins. I discussed it with my oncologist before I started on it. He neither condoned nor condemned my adding this therapy to chemo. I don’t think Mistletoe will cure me, but I believe that it enabled me to continue chemotherapy. Feel free to PM me if you more more specifics.

Best wishes,

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Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/15/2023 7:43 PM DST

[Benkaymel in reply to j-o-h-n]

Thanks John

[dhccpa]

Even I haven't done that one! Good luck with it, though.

[Kaliber]

a couple - few years ago, mistletoe was a hot topic on the group when a member went to Germany for some treatment and got mistletoe in addition to the regular treatment. Evidently mistletoe has been a medicine used in Europe and particularly Germany , for a Couple hundred years. It’s a very old historical medicine little known in the USA. There was some initial excitement about it but it kinda fizzled out when it seemed to do nothing and that member passed.

To my knowledge, on the group, there have been people that got the mistletoe treatment but never saw noticeable results from it. This is just my anecdotal experience , yours may vary. As always , you’d want to discuss this with your medical care team as it may be contraindicated with some of your current meds.

[Benkaymel in reply to Kaliber]

Thanks Kal. I probably won't go for it.

[Kaliber in reply to Benkaymel]

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