Hi
How long after starting Ztandi does psa start to come down
Ztandi: Hi How long after starting... - Advanced Prostate...
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it took a little less than 90 days for my 1400-1600 psa to drop to my nadir of less than 0.1 .
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Chemo dropped my psa from 59.9 to 7.0 after 8 cycles. Started Xtandi. It took about 2 years I think to get to 0.1. I am now 0.2 for about 2 years. Those are rough estimates. My last bone scan, about 2 weeks ago shows that "extensive and innumerable sclerotic metastasis" are unchanged with no progression. In about 4 months, I will have been doing this 6 years. It is just impossible almost to compare response to Xtandi. Try not to worry to much. It doesn't do any good.
You have a point. Seems doctors agree 0.2 is good result because the prostate is still in place. Even with RP, some prostate tissues may be left behind. Hence PSA never got to 0. Seems also a lot of anxiety is generated with advanced hyper sensitive PSA assay. Doctors should reassure their patients a bit more. There may be danger of over treatment without RP as well.
Hello,
It took Xtandi (enzalutamide) from September 18, 2017 to November 14, 2017 to go from 3.4 to 0.044 and it went down from there hitting less than <0.008 (undetectable at my lab) on May 17, 2018. I have been on it ever since. Over five years!
How can someone afford XTANDI for 5 years, Around here it’s 7 k to 10,000 a year With Medicare and our supplemental that’s why my husband’s oncologist may look at Zytiga as an option what do you guys think?
Is one any better than the other? his PSA has doubled from 0.5 to .1 to .17 over the last three months. Currently on Ellegaard and Casodex. TIA
Zytiga is used by many. Side effects and effectiveness of the two drugs vary by individual.
I am sure this may piss you off. And it should. I am on a Kaiser Advantage plan. Northern California. Because I am low income, SSA only and some interest, they don't count assets, I pay nothing. Except for premium. Which has dropped to $0 monthly for next year. After 62 months the Xtandi has been billed out at about $620,000. I haven't paid a dime of it. Is this fair? Of course it isn't. Everyone should pay the same price. Oops. That would be socialized medicine. On the other hand, I can't go to the real expert doctors who specialize in prostate cancer. (I was prescribed Xtandi before it was approved for metastatic hormone sensitive prostate cancer, for those who are counting the years.) I hope you find a solution. I don't know if Xtandi still has a financial help program. Having cancer and dealing with money issues suck. Cancer Moon Project? Seems to be just words so far. Cancer treatment should be free for everyone. Medicare or not. We would be a huge voting block. Just need some activists to get it done.
I’m not upset, lol , happy it has worked for you. I’m working hard to learn as much as I can from this forum and wish everyone good health and we are here to find support and answers . It a sucky disease and let’s keep this chain going
they don't call it super-casodex for nothing! sickening, that drs won't rx it until your PCa goes castrate resistant and/or metastatic. i used casodex for 4+ yrs as monotherapy, PSA undetectable.
Hello,
Nothing wrong with Zytiga. I sometimes refer to Zytiga (abiraterone) and Xtandi as the Pepsi and Coke of second line treatments. Depends on your preference. As for me paying for Xtandi (enzalutamide) for five years and counting I live in Canada. It is not a perfect system up here but I have received exceptional care from the local Cancer Agency and many drugs like Xtandi are free. They have to be approved by the federal government and funded by the provincial government for that to be the case. Hope that helps!
ya, but why must we wait til metastasis and/or castrate resistance? I stayed on casodex til my uro-onc refused to renew Rx, ignoring all the research I showed him, indicating casodex could not have spiked my liver enzymes after not doing so for 4+ years. My MO finally agreed with me, only after seeing the MRI and ultrasound scans, proving I'd been right from the start!
when uro onc took me off casodex, I asked for Xtandi, was told it was not covered by Medicare, too expensive for out of pocket AND only for metastatic or CR. I live in Nevada. Was the guy lying to me? ... not that it matters yet. I'm off everything til either liver fails or the cirrhosis/cancer combo resolves or stabilizes.
i do have about a month left of casodex, so if PSA becomes detectable, will go back on that til MO or other uro onc Rxs something else. Having to argue with Drs is sometimes the worst part of this battle
PS. what is SPT?
All cancer is potentially metastatic and/or hormone resistant or am I losing my mind? Therefore, any damn thing that have that either puts it to sleep or kills it oughta be available to us all. That's my point.
thanks for posting this brother. I have heard others mention this possibility as well. In my case ( castration sensitive ) I think I can say it’s absolutely true … for me. My medical team is “ still “ kinda jaw dropped that I’m still here …. My original pcp when diagnosed once said “ oftentimes the stage 4 patients with the highest psa when DXed , are the ones that last the longest on the adt treatments. “ ….. evidently time to nadir figures in there as well. Dunno, seems like you can read a lot into this subject, …. I’m glad it’s worked for me. Thanks again …
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ya, got that, thnx. it was my uro-onc. my MO gives it to me straight, without the supercilious tone the uro onc has. i've gotten reports by other men in my live cancer group that dr. K stretches the truth a bit, so i may be looking for another guy soon.
The truth is so much easier to remember but not always the more comfortable path.
You should be California Dreaming. Of course, we are all Texas Tomorrow.
I'll just play my Tom Tom, as I watch Houston slide away.
Hocked my silver spoons long ago.
Not much else I'll be banging.
The extensive innumerable cats are always begging, "Please sir, I want some more."
I play my bugle every night.
I may have dropped a few. A few of the cats have eyes as big as golf balls. Bigger than mine.
Bad Company. I was born 6 cats in my hand. Behind my prostate, I'll make my final stand.
Sorry for this post. Hubby is now in hospital on a morphine drip for pain. Not feeling well at all. Every time my phone bleeps from this site I think it is someone who is going to answer my original question. Invariably it is not, and it is people chatting about other things. Normally I would read and be interested in what was written in a reply, whether it was in answer to my question or not. Sorry to say this morning ( live in France) after a long sleepless night I am not. I hate saying this but if you are not answering my original question, can you please stop replying on here to each other so that my phone does not alert me. I do not want to turn phone off or down in case someone does answer my question. Sorry for ramble, but tired, scared, emotional and very tearful. I hope this does not upset anybody, so once again I apologise.
Thanks Pickleballplayer. Appreciate the answer.
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