I considered taking a break from Heal... - Advanced Prostate...

Advanced Prostate Cancer
9,372 members10,844 posts

I considered taking a break from Health Unlocked

Cisco99
Cisco99
159 Replies

Too much negativity here! 😃

159 Replies
oldestnewest
MateoBeach

Don’t you dare Abuelo Cisco. You are not done here until your voice has nothing more to say.

12 likes
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Cisco99
Cisco99
in reply to MateoBeach

Thank you Mateo. I get put to flight too easy

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Cisco99

Take Your Dog To Work Day

It started badly, with snarling in the ramp.

By breaktime chewed-up paper was everywhere,

and spots spreading on the wall-to-wall carpeting .

My supervisor wants to know where the data

from the Jenkins account is.

My dog knows that tone.

She can see the cubicle is just a crate,

and I am brought to heel the same as her.

We drive home in silence, her gazing out the window

At the looping phone lines.

11 likes
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Currumpaw
Currumpaw
in reply to Cisco99

Hey Cisco99!

"She can see the cubicle is just a crate"

Smart dog!

Pointing out we have time to add meaning to our lives and relationships.

I watched a priest tonight speaking about that being a concern for those who know that time is no longer infinite as many thought it would be.

The cubicle is a crate. For many the disease has become a prison. A subtle hint to live as best we can?

That aside, I posted some interesting studies today with short comments that should be on the site tomorrow as I don't see them here now.

Currumpaw

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Drphil1938

Maybe , instead of taking a break make your post relevant to the purpose of the site. Don't use it to publish your writings. Some of them are very good but probably belong on a blog that you can develope.

I don't want to be responsible for your leaving. Why not keep it relevant to cancer treatment, problems, medication and your progress. An occasional departure for some humor or other side notes are good but not continually.

This is only my opinion, for what it is worth. 🍸🍸🤠

28 likes
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gregg57
gregg57
in reply to Drphil1938

I agree.

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FCoffey
FCoffey
in reply to Drphil1938

I respectfully disagree. The "About" page describes this group in part:

A friendly, safe, informal atmosphere where we can pick each other's brains. Your 24 hour online support group. (underline emphasis added)

Nothing there limits the topics to cancer treatment, or complaints about the many terrible effects of treatment.

We are all traveling a long, lonely road. I appreciate news, technical articles, humor, thoughtful essays, lively discussion of ALL the many options available to us.

Like Cisco99, I feel there is too much negativity here. I don't appreciate bullies and naysayers. Disagreement is fine if done respectfully, but that is too often not the case.

I learned an awful lot when I attended a few sessions of a support group for women with breast cancer. Most people here might find that experience very useful, even eye-opening.

You don't have to agree with everything one of your brothers does or writes to support him.

5 likes
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Thinus
Thinus
in reply to FCoffey

Thank you FCoffey. I was thinking for a few days now what to answer Cisco. You answered well. My body consists of much more than just this ice pick called tubular prostate cancer that keeps on chipping away pieces of health of my body.

I've got a mind, a brain that keeps on thinking, planning fighting and most of all - dreaming. Here we share our lifes, naked and bare.

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Fran2020

Goodbye.

4 likes
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Whimpy-p
Whimpy-p
in reply to Fran2020

Hahaha😂no mercy

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Cisco99

I don't have that much to say about cancer. I think cancer is an ass.

And everyone here seems to know more about it than me.

I sort of thought of this as a place of fellowship for guys with this disease. A Facebook for prostate cancer guys. Whatever gets them through the night.

You say it's "just my opinion," DrPhil -- but you kind of like censoring and chasing people away. "In my opinion."

I would never do that to another guy.

4 likes
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gregg57
gregg57
in reply to Cisco99

We do talk about cancer here as the forum name suggests. That is the purpose of the forum. From what you are saying, it doesn't sound like this forum is the right place for you. It's nothing against you and no one here is censoring you or chasing you away. You need to find the place that's right for you to express yourself.

13 likes
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Cisco99
Cisco99
in reply to gregg57

I'm going, I'm going.

Does anyone know of a prostate chat site that allows people to speak their minds?

We're dying but we can't do that?

Lame.

3 likes
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Darryl
DarrylAdministrator
in reply to Cisco99

You can try healingwell.com or inspire.com But, you shouldn't say our community doesn't let you speak your mind. That is wholly inaccurate. I think you'll find that those two sites, and most all of the Facebook sites, will censor you in ways that we don't.

Perhaps it is the stress of the holidays, or just a misunderstanding that our community is some sort of general gathering spot. May I suggest that a break may indeed be helpful and that you return to our/your community in a few days or so. For myself, I find time-off to be refreshing, and I regret that I don't give myself more time-off.

17 likes
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Currumpaw
Currumpaw
in reply to Cisco99

Tuesday's With Morrie? Did Morrie focus only on his disease? If someone doesn't want to read about Morrie, don't open the book. No one is forced to read any post here.

There might be more than just the technical, medical and holistic involved with this disease. Maybe the spiritual side needs a bit of awakening at times. Especially when one is losing or all is lost.

There is a spiritual aspect to life or -- most think there is when confronted with their mortality.

Ahh! To be young and invincible again!

Now we acknowledge our mortality and try to assist each other in extending it--each in our own way--and perhaps?

I too, as some others, just pass by that which doesn't interest me rather than criticize or censor someone.

Many here are very vulnerable. Does our skin thin with age? Does the disease accelerate the thinning?

Play nice please! I try to!

Currumpaw

8 likes
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Kaliber
Kaliber
in reply to Currumpaw

Awwwww that’s nice ... good for you brother .

✌️✌️✌️✌️✌️

1 like
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Lettuce231

I was going to say that, but you did it better than me 👏🏻 Thanks.

Phil

2 likes
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Flydoggy
Flydoggy
in reply to Currumpaw

What you said.

1 like
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HiddenThis reply has been deleted
Currumpaw
Currumpaw
in reply to Hidden

Hey Lulu700!

You "penned" some powerful sentences!

"If we don’t value each other then the group as a whole holds no value . It is a fact that there is spiritual strength in compassion for each other."

Thanks for the insight that we all need to keep in our thoughts.

Currumpaw

1 like
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Whimpy-p
Whimpy-p
in reply to Currumpaw

Thank you Sir.

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Currumpaw
Currumpaw
in reply to Whimpy-p

Hey Lulu700!

I only made a simple observation. All credit is due you!

Currumpaw

1 like
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Cisco99
Cisco99
in reply to Currumpaw

This is like those old Abercrombie & Fitch commercials.

1 like
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Whimpy-p
Whimpy-p
in reply to Currumpaw

😎✌️

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Drphil1938

Sorry, good luck in your fight.

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Cisco99
Cisco99
in reply to Drphil1938

My Gleason score is 8. Who cares? What matters is that we are all in a tight spot.

I dislike you, Drphil938, based on three meanish My-opinion-outweighs-yours posts. Do you do this to lots of folks? And everyone else says that's cool?

1 like
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tsim
tsim
in reply to Cisco99

You sound like a woman, snowflake. This is what the Lupron does to you. Jusr got done with an 18 month cycle myself...I'll never go back on. If you can't tolerate a minor bit of criticism how are you going to fight prostate cancer? This forum and others are paramount in revealing, examining, and sometimes debunking the dearth of information about prostate cancer. It's been very helpful to me and others.

PS I read some of your stuff, it's decent.

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Cisco99
Cisco99
in reply to tsim

"Snowflake"?! We know where that comes from.

I think you make a leap in equating unpleasant online remarks with advanced prostate cancer. One annoys, the other snuffs you out.

To be honest, I don't trust what most of us say about our own cases. We aren't doctors, we only know when something's not curing us. Every one of us has a pretty unique situation, compounded by our different personalities.

So what is left to us? I think it is to discuss our hopes and woes. With the occasional joke.

"Snowflake" -- yikes!

"You sound like a woman." Yikes twice! Tryinna guess what state you come from ... Don't let me hurt your feelings!

I think, when we all die -- as you and I will -- we do become snowflakes -- trillions and millions of us, in a fantastic winter storm. Snowflakes that bring traffic to a halt, and make travel impossible.

United, we cause avalanches. Read up on it.

I'll throw some of these in, too -- 🤡💩✊🦷🐵🌵🌪

1 like
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Flydoggy
Flydoggy
in reply to Cisco99

I love your posts Cisco99...as much as I appreciate all the info on here, sometimes it is hard to understand and feels like it overwhelms the humanity we all need. Don't quit...keep flying your feel flag...we need you too!

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Danielgreer
Danielgreer
in reply to tsim

Are you saying you’ll never go back on Lupron because you’ll become a “snowflake”?

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Cisco99
Cisco99
in reply to Danielgreer

That's EXACTLY what I'm saying. I mean No, I usually do whatever my onco suggests. I don't think my side effects are significant, and the Zytiga seems to work well with it. So far.

Yrs, "Butch" Snowflake

1 like
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Danielgreer
Danielgreer
in reply to Cisco99

Hi Cisco, my question was directed at csim. Read his post above where he calls you a snowflake. He then says he’ll never go back on Lupron. I was wondering if he was actually saying he wouldn’t go back on Lupron because he would be a snowflake? Also, it seems he basically calling everyone on this site, and not just you, a snowflake since most of us are most likely on ADT.

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Danielgreer

I meant tsim

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Whimpy-p

We be snowflakes. 😂If you ain’t a snowflake you ain’t a real man ..

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Whimpy-p

❄️❄️❄️❄️Tis’ the season🔥

1 like
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tsim
tsim
in reply to Danielgreer

No, and about your assumption, I'm not calling everyone on the site a snowflake.

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GoBucks

If you could find a site dedicated solely to poetry for cancer patients, there would be people there to criticize you. That's the world going round

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CRK2
CRK2
in reply to GoBucks

Go Tigers!!

1 like
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Bruce66
Bruce66
in reply to CRK2

Yeah baby! CLEMSON all the way!!

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westof
westof
in reply to Bruce66

Hmm... Did you see how Burrows and company destroyed OK( remember the "Bama" game)?

I'm just a casual observer ( couldn't care who wins), however, Clemson better have a great game plan and the talent to win.

Best

1 like
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CRK2
CRK2
in reply to westof

That’s all in the history books!!! On to LSU!!!

1 like
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westof
westof
in reply to CRK2

Hmm... Gotta love your optimism! Good luck!

Best

1 like
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CRK2
CRK2
in reply to westof

Clemson’s momentum keeps me optimistic. No doubt it’ll be a tough game...for LSU 🙄

1 like
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Cisco99
Cisco99
in reply to GoBucks

I do post my writings online, but once I make my scary face, no one effs with me. Should people be mean, I steal away. When I was young I got into a big feud with a truly frightening guy. I dropped it and apologized after 6 months, but he kept it up, stalking and defaming me till his dying day.

I don't do that no more.

1 like
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Whimpy-p
Whimpy-p
in reply to Cisco99

😂

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Danielgreer

I personally don’t think we should be discouraging anybody from posting their thoughts on this site. If I don’t like a particular post I skip over it and move to the next one. There are many other posts that are significantly more sad than Cisco’s posts and everyone seems to respond with caring thoughts and without judgement. I don’t see the need to judge and attack others. Just move to the next post.

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Kaliber
Kaliber
in reply to Danielgreer

Here here ...brother . I just ignore a lot of this stuff ... lots of it just flies over my head or bores me into narcolepsy...doesn't mean its not good or it not relevant. It’s different strokes for different folks.

This disease and it’s treatments can and will make all of us grouchy. If people don’t like Cisco’s poems , just skip to the next post .. no harm done.

Peace brother ✌️✌️

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Cisco99
Cisco99
in reply to Kaliber

been meaning to talk about my strokes, folks

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Kaliber
Kaliber
in reply to Cisco99

Yayahahahaya hey brother you sure can stir up the soup . I’m kinda lying low under my rock while the storm rages yayahahahaya. You are shouldering the load right now .... I’m able to take a break.

I talk a lot of raw talk about death and loneliness... death I’m pretty comfortable up close and personal with .. BUT MANY ( most ? ) here not so much. Lots of people I feel like don’t want or need that kind of talk. They hate that death is so near. I get it and I don’t blame them. When I sense I’m agitating people in that way, I like to be sensitive to the others and back off and STFU.

It’s important for me to try to find a balance ..... and try to fit my jagged edged piece into the complex puzzle here. Lots of us aren’t ever going to be buddies, but all of us are brothers ... soldiers in this war ... comrades in the fight. All of us are equally important and our experiences and views equal as well. We’re all suffering from this heavy load ... it’s better when are doing it together.

My preferred style would be to lurk and inject a bit of humor ..... now and then ..... and chill. Sometimes I burst out and vent ... so far most brothers have let me without hammering me much ... it’s exceedingly nice of them , I’m grateful.

Seems like you have a lot of pent up “ stuff “ you feel a need to release too and have done so a considerable amount to this point. You have vented a lot, now, as well ... and for the most part , for quite a while , the brothers ( like with me ) , let you vent ...even encouraged it . Feels like, to me, maybe it’s time to inhale deeply ... relax ... and chill like I’m doing. Let someone else take a turn . Take a look and study where your own jagged edged piece of the ( life and death ) puzzle fits in too. There’s definitely a place for you here brother . Your jagged edge piece fits right in here someplace. Our common cause trumps our personality or social differences ... by a bunch. You got this ... together we’ve all got this big guy. Hang in there .

Peace brother 💪💪💪💪✌️✌️✌️

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Cisco99
Cisco99
in reply to Kaliber

Thanks buddy. It's good advice, "Dial it down." My wife, who is wise and medically sound, tells me I am emotionally de- what is the de-word ... stabilized, ranged, aha -- DISREGULATED. That I have little buffer between my limbic center and my actions. A little crazy, and it bothers her a lot cus she is cold as ice. But not Friday XIII crazy.

I have contemplated my situation fairly deeply, and I focus on emotional response and not on the medical bricabrac so much. I don't really have a bucket list except to talk, and (unfortunately for some nice people) I have parachuted into these proceedings.

I am not mad at anybody, but I got a little fired up about being called a snowflake -- maybe a ninja snowflake shot from hell!

Dialing, dialing ...

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Cisco99
Cisco99
in reply to Cisco99

Another way to see it:

With regular people in the regular world I am always dialed way back.

Nobody wants to hear how my feet hurt, and I get that.

But here SEEMED like a place to let loose -- a conclave of the doomed.

But maybe we're just regular people, too, only we all have a terminal illness.

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Whimpy-p
Whimpy-p
in reply to Cisco99

A conclave of the doomed. Thanks , very funny 😆

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Whimpy-p
Whimpy-p
in reply to Cisco99

Not all are lose. There many conservative folks that deserve respect also .

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addicted2cycling

SNOWFLAKE --- "water off a duck's back" along with anythings else 'cause I have yet to have a word break a bone

Castration by scalpel in 2015 has really allowed me to get in touch with my XX side. ;0)

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Cisco99

Thank you, addicted. If I may ask -- since I was considered for that a while back -- what has it been like?

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addicted2cycling

WHAM - BAM the night following then things tapered off months later. No big effects other than muscle/strength loss but exercise kept things in check then Dr. got me on TRT. Unusual for GL10 but trying something different. Maybe a YES or Maybe a NO, only time and THE SHADOW knows.

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Whimpy-p

👍

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Whimpy-p

My year was 16 but who’s counting ?

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Cisco99

"There is terrible power in words." -- Mein Kampf

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Kaliber
Kaliber
in reply to Cisco99

Seriously buddy ... On here it’s mets and bones , way past stick and stones will break your bones ... yayahahahaya you don’t have to worry about all that small stuff. Just inhale deeply a few times and chillax ...

Peace brother ✌️

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Cisco99
Cisco99
in reply to Kaliber

I did that last night watching a Safdi Bros movie (GoodTime) with two pals and it scared me. I couldn't make sentences in my brain. Chillax was not the result. More like paranoid.

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Kaliber
Kaliber
in reply to Cisco99

Talk to your care provider team ... your palliative care rep , or your GP. I have a hefty prescription for daily Xanax that helps make things much better when I’m feeling a little raggedy around the edges. The treatments we receive ... the changes in our life circumstances... both can cause us serious issues . Nothing wrong with keeping your care team informed ... they will want you to feel comfortable. There are lots of fixes for not being able to chillax brother ... they will know exactly what to do to help. Don’t put it off ... do it now if you can online , call tomorrow morning if that’s how you contact them. There is zero reason to spend another day where you have to feel like that. Don’t screw around ... get it done now brother. You’ll be happy you did. Everybody around you that cares about you will be glad too.

💪💪💪💪💪✌️✌️✌️✌️

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Cisco99
Cisco99
in reply to Kaliber

Just to be clear ... by chillax I meant a state of peace ... possibly achieved through dope. My experience last night was that the dope just made me feel dumb, and a little anxious about it.

Everything thing you said, however makes sense. I have a kind hearted MD, a tender-hearted oncology nurse, an oncology MD who used to be a standup comedian, and various other people -- a bookish radiation doctor, and a high-fiving urological surgeon.

I saw a psychologist for a year, and it brought out some curious stuff. Someone here says I talk like a woman. I think he may have meant I "go deep" with people, speak openly and with feeling. My psychologist unearthed the fact that it was my mother who taught me, from my earliest years, how to be a man -- and the residue of that is that I am sensitive about feelings and other "unmanly" stuff.

Thanks, Kaliber -- I knew from your first post to me I knew a similar spirit.

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Cisco99
Cisco99
in reply to Kaliber

I looked up Xanax's side effects. I already have most of 'em! Not sweating that much, I guess.

Drowsiness

Tiredness

Dizziness

Sleep problems (insomnia)

Memory problems

Poor balance or coordination

Slurred speech

Trouble concentrating

Irritability

Diarrhea

Constipation

Increased sweating

Headache

Nausea

Vomiting

Upset stomach

Blurred vision

Appetite or weight changes

Swelling in your hands or feet

Muscle weakness

Dry mouth

Stuffy nose

Loss of interest in sex

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Kaliber
Kaliber
in reply to Cisco99

I use xanax and don’t notice any side effects other than a bit of euphoria. It does help with a good nights sleep but doesn’t make me sleepy. There are dozens of drugs that can help calm the mind and Knock off anxiety. Your doctor would probably be quite happy to work you into the right one for your needs brother.

Peace brother ✌️✌️

1 like
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Kaliber
Kaliber
in reply to Kaliber

P.s. ... I only take Xanax when I really need it ... I try to stay off it as much as possible. Xanax induces euphoria and can be addictive. I already have one receptor site dependency with the opiates I use every day , I don’t want a second monkey on my back with a benzodiazepine dependency. Prudent use is recommended yayahahahaya

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Cisco99
Cisco99
in reply to Kaliber

Um, I take Ritalin, and two anti-depressants -- Wellbutrin and Escitalopram (Selexa maybe?) Not much of either.

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Kaliber
Kaliber
in reply to Cisco99

Seems like you might want to ease back on the Ritalin because that stuff jacks your nerves while calming you at the same time. You and your doctor have to be the best judge of that tho. The other two I’m not very familiar with.

Peace brother ✌️

1 like
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Cisco99
Cisco99
in reply to Kaliber

Oh, I never go to HealthUnlocked without 4 hits of Ritalin. Kidding.

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Whimpy-p
Whimpy-p
in reply to Cisco99

Wrong brand for you . Do Indica

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Cisco99
Cisco99
in reply to Whimpy-p

Are we talking Cannabis Indica? I think I am stuck with a shoebox of Sativa.

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Whimpy-p
Whimpy-p
in reply to Cisco99

Good for tedious jobs like house cleaning .

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Whimpy-p
Whimpy-p
in reply to Cisco99

😂👏🏼Shake it off! Where would we be without snowflakes? The forest would disappear.. we need your spice.. but we Cant sell crazy here .... We’re all full up! We ‘re all fighting the same beast brother...

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Cisco99
Cisco99
in reply to Whimpy-p

We make snowmen

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Whimpy-p
Whimpy-p
in reply to Kaliber

😂😂😂😂😂😎✌️

1 like
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Whimpy-p
Whimpy-p
in reply to Cisco99

This is the big one!

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Flydoggy

Right? I follow the people that I feel can give me the best info for my case...I can't read it all anyway, so skip over what you don't need, and follow those you do. Ima follow Cisco99.

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Whimpy-p

👏🏼👏🏼👏🏼👏🏼👏🏼from the peanut gallery .

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Tmetz

Dear Cisco99,

Please remember that not everyone will enjoy your work. I personally do! Please don’t be chased off by the critics. You have every right to express your thoughts and feelings as anyone else. For those who don’t like it, feel free not to read it!

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Fox2018

I haven't really gotten much out of the poetry. Some may have. Just not my "cup of tea" at this point. Would rather hear of your experiences and real world actions

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Tall_Allen

I like your poems, even when I don't feel the same way. I think poetry is a good way to express one's feelings, especially on difficult subjects. One guy in my support groups paints and sculpts, another writes songs. We all have to figure out our own way of dealing with it.

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kaptank

Cisco, please don't give up on us. I relayed to my partner your story about the anarchist raid on a NY police station. Ten minutes of hooting laughter was my best therapy all year. Every one of us every day ponders how we should spend the time we have left and reading how another does it breaks that mist of loneliness. Believe me, you are PCa relevant.

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Currumpaw
Currumpaw
in reply to kaptank

Hey kaptank!

Laughter Is Medicine - Healing Cancer Naturally

healingcancernaturally.com/...

An excerpt:

"If all the medicine in the world were thrown into the sea, it would be bad for the fish and good for humanity.

O.W. Holmes (Professor of Medicine, Harvard University)

Laughter Has Healing Power: Seriously!

For example, the documentary "The Secret" (which is all about the “law of attraction”, i.e. the power of the mind to help shape our reality) apparently features a lady who cured herself of cancer by purely watching comedies and telling herself repeatedly that she was in great health."

Then --this--

quirkyhealthtips.com/mind-s...

Maybe? At least it would make it more fun!

Currumpaw

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Cisco99
Cisco99
in reply to Currumpaw

Oliver Wendell Holmes? He was a Supreme Court Justice. And a poet! They tend to make pithier remarks.

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Cisco99
Cisco99
in reply to kaptank

Thanks, kaptank!

1 like
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Whimpy-p
Whimpy-p
in reply to Cisco99

See, they ain’t all bad . Stay welcome

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tallguy2

We who have advanced prostate cancer all have experiences to share that can help our fellow man. Please stay with us and share when you wish.

Blessings.

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CRK2

Well, this is an interesting post. In my unsolicited opinion, there’s a lot of ADT talk threaded into the reply’s. ADT gets me in trouble all the time, I’m a self aware butthead because of it. I think everyone affected by PCA should be able to express what’s on their mind on this site. I skip over lots of posts that don’t interest me. This one, however, is interesting.

Cisco99...you’re in the club, like it or not...you’re welcome.

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Kaliber
Kaliber
in reply to CRK2

Absolutely ..

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Cisco99
Cisco99
in reply to CRK2

CRK2 -- tell me what you mean by ADT talk. I take Zytiga pills and Lupron infusion. I hear whispers that they cause brain fog. What qualifies as brain fog thinking? How does it get you in trouble?

I just went to the grocery store and didn't bring my credit cards.

I don't know what to blame.

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CRK2
CRK2
in reply to Cisco99

ADT - Androgen deprivation therapy...

ADT - Aloof, dismissive, tired.

The second version is how I (Probably most people on this site) feel most of the time despite a good diet, exercise and several other drugs to counteract side effects of drugs; and it makes me (us) grumpy...

I’m always on guard because the general grumpiness will cause me to do or say something stupid...then I’m in trouble (usually with my wife).

When I read this particular post...I sense that peoples reactions are a reflection of not only the man’s response but their “ADT” state of mind.

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Cisco99
Cisco99
in reply to CRK2

Thanks CRK2. I knew what ADT is, and I take two of them. I'm not sure I am having all the personality changes. I nap more, I get a little foggy in my brain -- but I don't feel grumpy.

My current problem is my wife and I are losing our hearing. I don't mind saying Wuzzat whenever she speaks, but SHE is the grumpy one, like I'm not listening. I admit, sometimes I look the other way ...

I take Narcos and Ritalin -- a two-way elevator.

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CRK2
CRK2
in reply to Cisco99

looking at your picture...I see grumpy 😳

My picture is less grumpy than your picture

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Cisco99
Cisco99
in reply to CRK2

Oh, right, the picture ...can't remember why I made that face. Oh, I was in a Mexican restaurant, and my friend's autistic son took the picture. I was trying to amuse him!

Maybe I'll change that picture to something snowflakier.

1 like
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CRK2
CRK2
in reply to Cisco99

Lol...I liked the grumpy pic...just saying. But if you could reposition the new pic to focus more on the girl...

1 like
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Cisco99
Cisco99
in reply to CRK2

Right. Jayne Mansfield and I were just friends. Always calling late at night to check in ...

1 like
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Whimpy-p
Whimpy-p
in reply to CRK2

😂yah!

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Whimpy-p
Whimpy-p
in reply to CRK2

You’ve got the happy face , also by your side.

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Whimpy-p
Whimpy-p
in reply to Cisco99

What a fn combo? How could you remember anything? I’d break

Bad in that combo quickly. I had a young friend that took Ritalin . Said it helped him concentrate . So I took one. I was dizzy and spinning for a day . Whoa.. but some are on a boat load of meds. So far I’m lucky not to be .

1 like
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Cisco99
Cisco99
in reply to CRK2

I liked Aloof, dismissive, tired ...

1 like
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CRK2
CRK2
in reply to Cisco99

My wife came up with that definition of ADT

2 likes
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Whimpy-p
Whimpy-p
in reply to CRK2

I knew it!

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Whimpy-p
Whimpy-p
in reply to CRK2

Aloof , dismissive, tired,? Can I use that one? 😂

1 like
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monte1111
monte1111
in reply to Cisco99

I never forget my credit cards. I do get half way to my car and say "Oh, crap. Where are my groceries?"

2 likes
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Cisco99
Cisco99
in reply to monte1111

Both are signs something has gone goofy

1 like
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Whimpy-p
Whimpy-p
in reply to monte1111

😂😂😂

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Whimpy-p
Whimpy-p
in reply to Cisco99

😂I do stuff like that daily ..

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Whimpy-p
Whimpy-p
in reply to CRK2

😂👏🏼

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Schwah

I’m with the guys who say “stay” Cisco99. I love some of your work, I dislike some and I’m confused by some. But it seems to be a release for you so I’m very happy we can be here for you. I read this site every night. The posts that do not interest me, I pass over to the next one. I even enjoy the back and forth on differing opinions. I take it all in and I make my own choices, albeit more informed choices thx to this site. The only things I do not like are mean spirited posts like the ones that ask you to go away. How easy is it for those who do not wish to read your posts to pass them by. Keep them coming my friend. You have plenty of supporters here.

Let’s focus on supporting each other gang.

We can all use it. Happy New Years to all and to all a great and healthier 2020!!!

Schwah.

7 likes
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Cisco99
Cisco99
in reply to Schwah

Happy upsidedown e, ə!

1 like
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Whimpy-p
Whimpy-p
in reply to Schwah

👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼👏🏼

Reply
Murph256

Yes, please stay and continue to post. I don’t like all of your stuff but most of it is thought provoking and induces many positive comments and discussions. I mean look at this thread...there are already 32 comments and counting

When I was sitting in the waiting room at MSK, waiting for my radiation each weekday, I read books of poems and essays by MSK patients and caregivers. Apparently, MSK publishes these books every year, in a book called Visible Ink Anthology. I found the poems and essays to be insightful, poignant and brutally honest. I mean when you’re dying of cancer, you tend to be sincere and heartfelt.

I’m not sure if there are any such publications nationally, but if there are, you should submit your poetry that relates most closely to cancer. I think your writings would be appreciated by a larger audience.

mskcc.org/experience/patien...

giving.mskcc.org/visible-in...

5 likes
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Cisco99
Cisco99
in reply to Murph256

Thanks for what you say, Murph. I'll check out Sloan Kettering. But, truth is, I like talking to ordinary people, who don't have mets climbing up and down their spines. WE are all kinda sick of one another's situation. Regular people are too polite, and too incurious, to ask what's going on.

I'm kinda sick of it, too.

SNOWFLAKE

1 like
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Brent_Wilson

These past weeks I have daily looked forward to Cisco99's poems, though I read little poetry. They set me thinking, take me away from worrying about my cancer or anything connected to it for a few moments, and so provide some relief. I would not wish everybody to be posting whatever doggerel they have written. Cisco99's poems are not doggerel, however, and I much appreciate them.

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Cisco99

Thanks very much, Brent ... that meant a lot to me

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JuanVV

Poetry can sometimes express emotions -and take you to places- prose can't, my husband

has always been a keen reader and me (after all I'm a poet),I'm all for poetry everywhere.

4 likes
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Cisco99
Cisco99
in reply to JuanVV

A poet, you say ... ?

1 like
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JuanVV
JuanVV
in reply to Cisco99

Yes!

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michael00

I enjoy reading your posts. I've never looked at it as negativity but rather just differences of opinions. Seems much of the differences come from availavle conflicting research. However those discussions fuel the need for proof and we can learn from all opinions whether it be positive or negative. I look forward to seeing more of your words.

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Bebby1

Just hold on to the positives

Your contributions are well respected

Somehow this site gives me hope.... in mankind

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billyboy3

I think you missed the point. THIS site is for men with advanced prostate cancer, most of us have been in the war for some time. My upset with you and anyone else who professes to have some magic answer in regards to alternative treatment working by slowing down or curing PC, is spouting from fiction, nor fact.

THE issue for me is the false hope, upset and complications some of your posts will have on those coming onto what will end up in our demise, whether sooner or later. I tried to convey this to you in my earlier posts, but you did not read or listen to what I was saying.

I do not want anyone to leave this site nor feel constricted but that said this is a site dedicated to advanced prostate cancer, that is cancer for which there is NO current cure and NO way to stop its advance. If lucky, we can do a variety of things based upon medical treatments to keep our cancer at bay for as long as possible.

Nobody wants to die sooner than they have to suffer needlessly, so by throwing out your kitchen lab leave treatment as have validity and is the reason for the lowering of your psa, is harmful and NOT true.

I am sorry that you do not see the damage that you can cause, by doing this, but go back to my earlier posts and try to understand this. Your success thus far in lowering your psa score is solely due to your lupron treatment, not the leaves concoctions you make up.

I have had several men I came to meet, who were taken in by false claims, but by the time they realized that they did nothing, it was too late and their cancers had spread, which led to a much earlier demise than would have been the case. My best friend would not listen to me and died six or more years earlier than he would have, had he not listened to some half baked ideas on treatments that had NO scientific basis to their working, beyond a placebo effect.

HIs last words to me were, "Bill, I wish I had listened to you and started on lupron treatments instead of listening to some quack who professed he had "never lost a patient" to prostate cancer. He was brainwashed into the false believe that herbs and all sorts of other non-proven treatments would work. It made the bastard who treated him lots of money but cost me my pal's dearly demise because he conned my pal into this false belief that one can be cured or have their ps controlled by these homemade remedies.

We grasp at straws for anything that might buy us more time. That is human nature. That said, this site is to assist men in this last struggle to buy that extra time, to keep up on what is happening in the real/scientifically supported medical treatment world, so that they can make informed decisions on the options, however few there currently are, and get the most time for them and their families.

I do not want to lose one more guy to the war, or have it shortened by his death, because someone read a post where someone has thrown in the quick fixes to the PC war, for which there is NO support as to these having any effect on the PC war.

We need to focus on medical treatments that work, or as I also heavily promote, to get into scientific drug research testing-which are done in real labs, with real test results, might buy you some extra time, or at the least, will have our early demise serve a purpose in moving the research forward sooner, and hopefully our sacrifices in going on drug trials, will save the next generation from having to die far too early.

We also need to remember that we are all going to pass and that our focus is on living whatever time we have left to the fullest, and NOT to try to create some imaginary recipe that will cure you/us. They do NOT exist, so live life large, live with your cancer, but do NOT spend your last days in going in circles looking for the non-existent magic pill.

Prostate cancer is the toughest beast that any of us will face and the most we can hope for is that our medical treatments, coupled with living as healthy as one can, will buy us more time. This is serious stuff, yes I think we can and need some laughter as we march along, but I do not think that we need distractions by false claims as to the voracity of some made at home remedy.

So, I repeat, make up a bucket list of things you would like to do while on the planet, love those close and LIVE LARGE boys!!!!

5 likes
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Drphil1938

Well said.🍸🍸🤠

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billyboy3

thanks, not sure why he took offence but perhaps upon reflection he will understand that his words on his homemade cures-not the poetry which he also throws out, can create harm to others.

One other point on the issue of promoting fake cures or treatments, is the time and energy that our healthcare professionals have to spend to debunk these myths with new patients-and I have been repeatedly been told by some I know that they see the negative impact of men grasping at straws to avoid dealing with the harsh reality of advanced prostate cancer and that none of these home remedies work.

I think we need to do a better job in this area, as I see so many drug trials are taking far to long to get men into them, and we need to do our part to help those researchers who are attempting to help us and make huge sacrifices in their own lives in order to hasten their research to the drug trial stage.

5 likes
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gregg57
gregg57
in reply to billyboy3

I went to funeral of a friend just over a year ago. He died from stage 4 prostate cancer after having received no approved treatments. He got sucked into these alternatives-to-treatment that so many are promoting. I had no idea it was even going on until I heard he passed away. He kept telling himself that he was getting better, despite the obvious. Those in his family could see through the bullshit he was being offered, but he wanted to believe that things that "sound good" must also be good. It was sad to be there and I made sure I didn't talk about the fact that I was in the same situation as he was, only I was getting approved treatments. Not that anyone could tell anyway.

So I do think we have a responsibility to warn others about this, try to at least make sure we tell people the truth. I just want to give guys the opportunity to make a truly informed decision.

4 likes
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Cisco99
Cisco99
in reply to gregg57

Sobering ... "optimism" wants to see improvement even when it's not happening. A desperate type of optimism.

3 likes
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billyboy3
billyboy3
in reply to Cisco99

are you now getting the point I was trying to make?

1 like
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Cisco99
Cisco99
in reply to billyboy3

I got it, billy, and I dug the care with which you made your case. Thumb up, man.

1 like
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dbrooks_h
dbrooks_h
in reply to Cisco99

"PONCHO"

2 likes
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StuartS
StuartS
in reply to billyboy3

Perfect summary of how we should focus our energies on fighting PCa.

5 likes
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j-o-h-n

Too much negativity here! 😃 <===<<< quote from the Cisco kid

I AGREE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Not enough silly ass humor.................

Too many guys with dashes in their ID's

Date and time stamps are a pain in the ass too....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 12/25/2019 12:07 PM EST

11 likes
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SPEEDYX
SPEEDYX
in reply to j-o-h-n

Hi Ho Silver Away!!

4 likes
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westof
westof
in reply to j-o-h-n

Hmm... I agree brother!

We are all sick to various degrees, however, although venting may be helpful:

"Laughter reduces pain, increases job performance, connects people emotionally, and improves the flow of oxygen to the heart and brain. Laughter, it's said, is the best medicine. And there's lots of evidence that laughter does lots of good things for us. It reduces pain and allows us to tolerate discomfort."

Best

3 likes
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Cisco99
Cisco99
in reply to j-o-h-n

You are the greatest j-o-h-n, right after you-know-who.

2 likes
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Cisco99
Cisco99
in reply to Cisco99

(Muhammad Ali)

3 likes
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j-o-h-n
j-o-h-n
in reply to Cisco99

I agree... float like a butterfly and sting like a bee..

Good Luck, Good Health and Humor.

J-o-h-n Sunday 12/29/2019 9:58 PM EST

2 likes
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dbrooks_h
dbrooks_h
in reply to Cisco99

The router or the Kid

1 like
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CRK2
CRK2
in reply to j-o-h-n

Oh...I get it...I thought your ID was some kind of physics equation...kind of like e=mc2

2 likes
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j-o-h-n
j-o-h-n
in reply to CRK2

It is..... like my degrees............

BS, MS, PHD...............

Good Luck, Good Health and Humor.

J-o-h-n Sunday 12/29/2019 9:31 PM EST

3 likes
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j-o-h-n
j-o-h-n
in reply to CRK2

oooooooo I forgot... they're

Bull Shit, More Shit, Piled High & Deep.....

Good Luck, Good Health and Humor.

J-o-h-n Sunday 12/29/2019 9:32 PM EST

3 likes
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Kaliber
Kaliber
in reply to j-o-h-n

Rotflmao

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billyboy3

all good man, we are brothers here and need each other in the war we fight.

3 likes
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Snoger

N my

1 like
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monte1111

Was it something I said? Ignore me. Everyone else does. Hang around for a while. We'll leave the light on.

4 likes
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I feel that this is a big dose of reality. There are some great success stories, and some end-of-life stories. I have learned so much from this site that ... no matter what ... I will keep reading.

Please stay engaged. We all need to support each other and learn from each other,

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Whimpy-p

Everyone has the same right to speak . That’s my opinion .. I say stay but just don’t post too much for the average guy to read . That’s my suggestion as a friend . Don’t run away . Grin and bear it , like the rest of do. I’ve run before but I have contact her that help me much . Be well Cisco.. Don’t let others discourage you and don’t do it to yourself either. It’s easy to be a critic it seems .. we are all equal .. Take care

2 likes
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Kaliber
Kaliber
in reply to Whimpy-p

Thank you brother 😁😁😁

1 like
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Cisco99

You gentlemen have been kind to me, in the main.

I did intend to leave, but every day I get 30 emails from you. Back into the river I go ... Happy new year y'all.

2 likes
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Kaliber
Kaliber
in reply to Cisco99

😁😁😁👍👍👍💪💪💪

1 like
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Whimpy-p
Whimpy-p
in reply to Cisco99

Happy New Year ... you’re hooked now, you can’t go elsewhere ? 🎣

3 likes
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Cisco99
Cisco99
in reply to Whimpy-p

Well there is a PCa halfway house across the street

1 like
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Hirsch

In a way I agree. Site is very informative but some of the posts are very depressing.

2 likes
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