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Radium 223
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Undiagonosed for 3.5 years, could it be lupus???
Hi all, I've been suffering with debilitating symptoms for the past and three and a half years, which are upper abdominal pain,extreme nausea and fatigue, weak legs, facial flushing. These symptoms are so bad that they've left me bed bound during this time. I have seen a rhumatologist who was
Hi all, I've been suffering with debilitating symptoms for the past and three and a half years, which are upper abdominal pain,extreme nausea and fatigue, weak legs, facial flushing. These symptoms are so bad that they've left me bed bound during this time. I have seen a rhumatologist who was
Rnew1999
in
LUPUS UK
2 years ago
Melatonin for PD
Melatonin (5-methoxy-N-acetyltryptamine): powerful antioxidant that treats abnormalities in sleep-wake cycle, jet lag, cancer, and Parkinson’s disease. Epileptic children have a higher incidence of sleep problems; epilepsy is exacerbated by sleep deprivation. Melatonin has antiepileptic activity. Mechanism
Melatonin (5-methoxy-N-acetyltryptamine): powerful antioxidant that treats abnormalities in sleep-wake cycle, jet lag, cancer, and Parkinson’s disease. Epileptic children have a higher incidence of sleep problems; epilepsy is exacerbated by sleep deprivation. Melatonin has antiepileptic activity. Mechanism
Farooqji
in
Cure Parkinson's
2 years ago
Hemo Dislysis
I am 78 yo , stage 5, and getting my fistula installed next week. I take BP meds, potassium binder, phosphorus binder with few other meds. I am not diabetic. My question is. Can HD remove potassium, phosphorus and sodium and lower my BP without meds?. I am very nervous. Your input will be highly appreciated
I am 78 yo , stage 5, and getting my fistula installed next week. I take BP meds, potassium binder, phosphorus binder with few other meds. I am not diabetic. My question is. Can HD remove potassium, phosphorus and sodium and lower my BP without meds?. I am very nervous. Your input will be highly appreciated
htpi1543
in
Kidney Dialysis
2 years ago
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still decompensated after 5 months any hope?
my partner diagnosed with decompensated cirrhosis on 22.12.21. Stopped drinking that day, 5 months later eating healthy high protein low salt, doing everything he has been asked. At the start sodium was dangerously low so he couldn't take water tablets - now his sodium is back within normal levels whilst
my partner diagnosed with decompensated cirrhosis on 22.12.21. Stopped drinking that day, 5 months later eating healthy high protein low salt, doing everything he has been asked. At the start sodium was dangerously low so he couldn't take water tablets - now his sodium is back within normal levels whilst
Rshc
in
British Liver Trust
2 years ago
Test Results Are In and There’s Improvement
Hi All, Yesterday, I had my first urinalysis and a renal panel done. This was the last step to take before being referred to a nephrologist. Well, it’s not likely I will be referred now because my creatinine went from 1.13 a year ago to 1.05 yesterday. My GFR went from 52 to 56. (Calculated using
Hi All, Yesterday, I had my first urinalysis and a renal panel done. This was the last step to take before being referred to a nephrologist. Well, it’s not likely I will be referred now because my creatinine went from 1.13 a year ago to 1.05 yesterday. My GFR went from 52 to 56. (Calculated using
Grateful2021
in
Kidney Disease
2 years ago
According to PSMA PET Scan all metastases found are in bones; so after discussion with Oncologist about options, Xofigo (Radium-223) is next
The Veterans Administration (My cancer is traceable to Agent Orange exposure in Vietnam) is referring me to the Levine Cancer Institute for therapy with Xofigo (
Radium
-
223
). It is normally given IV once a month for six months.
The Veterans Administration (My cancer is traceable to Agent Orange exposure in Vietnam) is referring me to the Levine Cancer Institute for therapy with Xofigo (
Radium
-
223
). It is normally given IV once a month for six months.
diamondrn
in
Advanced Prostate Cancer
2 years ago
Blood results
Might anyone have any thoughts please? Do I need to act on these results? Fresh blood results all normal although I am still suffering from daily fatigue and brain fog. I am currently on Levo 25 - reduced from 50 last year as I was having heart flutters. TSH 2.57 mU/L normal [down from 4.55 Feb 1st]
Might anyone have any thoughts please? Do I need to act on these results? Fresh blood results all normal although I am still suffering from daily fatigue and brain fog. I am currently on Levo 25 - reduced from 50 last year as I was having heart flutters. TSH 2.57 mU/L normal [down from 4.55 Feb 1st]
Quinc
in
Thyroid UK
2 years ago
Help my Momma
Hey all. I am new here and have a few questions I would love to get your input on. My mom recently had her 3rd stroke on may 1st. She has stage 4 kidney disease and had a fistula placed a while back for future dialysis. While in the hospital waiting transport to get to rehab, her creatinine levels
Hey all. I am new here and have a few questions I would love to get your input on. My mom recently had her 3rd stroke on may 1st. She has stage 4 kidney disease and had a fistula placed a while back for future dialysis. While in the hospital waiting transport to get to rehab, her creatinine levels
Ilovelucy65
in
Kidney Dialysis
2 years ago
High BP and Stage 4
I noticed most people have diabetes which I do not, per my biopsy my CKD was caused by untreated High BP. Well now I'm on 3 different meds and while my BP is good I still have a lot of protein in my urine and my eGF is 22 with a creatinine of 2.35. I haven't had red meat in several years, watch my
I noticed most people have diabetes which I do not, per my biopsy my CKD was caused by untreated High BP. Well now I'm on 3 different meds and while my BP is good I still have a lot of protein in my urine and my eGF is 22 with a creatinine of 2.35. I haven't had red meat in several years, watch my
horsie63
in
Kidney Disease
2 years ago
MY CKD JOURNEY..FROM EGFR OF 11 TO EGFR OF 84.. FROM AKI 5 TO CKD 2.. STRUGGLING WITH LOW SODIUM LEVELS.
Good morning CKD heroes? Thanks for reading my long post.. Today,marks one month since I joined this wonderful community. Got my past lab tests results from my Dr..they read as follows. First, have summarised them into 2 stanzas. FIRST STANZA(From February 28-2021 to November 22 - 2021)...Was admitted
Good morning CKD heroes? Thanks for reading my long post.. Today,marks one month since I joined this wonderful community. Got my past lab tests results from my Dr..they read as follows. First, have summarised them into 2 stanzas. FIRST STANZA(From February 28-2021 to November 22 - 2021)...Was admitted
Mwachibwago
in
Kidney Disease
2 years ago
Low hemoglobin & Platelets - Xofigo
Low hemoglobin - Hi all, my Dad had his last infusion of Xofigo (
radium
223
) on December 23rd. He needed 1 blood transfusion prior to this and then again the following week (Jan 4th, his levels were hemoglobin 8 platelets 55).
Low hemoglobin - Hi all, my Dad had his last infusion of Xofigo (
radium
223
) on December 23rd. He needed 1 blood transfusion prior to this and then again the following week (Jan 4th, his levels were hemoglobin 8 platelets 55).
Nickhmcg
in
Advanced Prostate Cancer
2 years ago
Patients located in France?? In urgent need of advice!!!
Based on what I have read on this great forum, I think my father should ask about targeted radiotherapy for his spine metastasis and also about
radium
223
. Will the new Dr get pissed off if my parents ask him these questions?
Based on what I have read on this great forum, I think my father should ask about targeted radiotherapy for his spine metastasis and also about
radium
223
. Will the new Dr get pissed off if my parents ask him these questions?
Lousab
in
Advanced Prostate Cancer
2 years ago
decompensated cirrhosis - aching
Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he was suffering from awful edema (he previously couldn't take water tablets due to low sodium). He is back home and bloods are now looking better
Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he was suffering from awful edema (he previously couldn't take water tablets due to low sodium). He is back home and bloods are now looking better
Rshc
in
British Liver Trust
2 years ago
Follow up on previous post
Okay, I had my sodium IV this morning. It is amazing! I feel like a different person. I never knew that your sodium level could cause such horrible problems. It was an easy fix. Thank goodness I have a fabulous doctor who rooted out the problem and immediately fixed it! I am really grateful. Thank you
Okay, I had my sodium IV this morning. It is amazing! I feel like a different person. I never knew that your sodium level could cause such horrible problems. It was an easy fix. Thank goodness I have a fabulous doctor who rooted out the problem and immediately fixed it! I am really grateful. Thank you
Amore55
in
My MSAA Community
2 years ago
Not a relapse
I have been dealing with some problems lately. I didn’t know if I was having a relapse, but it really didn’t feel like it was MS related. I explained to my doctor that all my bones were aching and I felt a bit confused. Thankfully he really listened and ran some blood work. It turned out that my sodium
I have been dealing with some problems lately. I didn’t know if I was having a relapse, but it really didn’t feel like it was MS related. I explained to my doctor that all my bones were aching and I felt a bit confused. Thankfully he really listened and ran some blood work. It turned out that my sodium
Amore55
in
My MSAA Community
2 years ago
Lower dose and feeling unwell
Hi everyone, I wanted to ask for some comments on my recent blood results. I have taken 200ug/day of levothyroxine for several years. In April 2021 I had a blood test, and a GP advised me to reduce to 175ug/day. In January this year I had another test, and was reduced to 150ug/day. While my results
Hi everyone, I wanted to ask for some comments on my recent blood results. I have taken 200ug/day of levothyroxine for several years. In April 2021 I had a blood test, and a GP advised me to reduce to 175ug/day. In January this year I had another test, and was reduced to 150ug/day. While my results
andi_smithe
in
Thyroid UK
2 years ago
Wife ready to give up on Thyroid Medication, bad reactions like allergic to something in it.
My wife has been on Thyroid medication for 14 years but has been struggling the last 2 years when Nature ND thyroid had dosage problems. She is 59 140 lbs 5ft 5” My wife has started having serious side effects since our last Holistic Doctor’s visit, after being switched from Armour Thyroid 30 mg
My wife has been on Thyroid medication for 14 years but has been struggling the last 2 years when Nature ND thyroid had dosage problems. She is 59 140 lbs 5ft 5” My wife has started having serious side effects since our last Holistic Doctor’s visit, after being switched from Armour Thyroid 30 mg
FredDemeter
in
Thyroid UK
2 years ago
Stage 5 symptoms just before dialysis begins
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
Ok, some of you folks who have gone before me, tell me again what symptoms I should be seeing at stage 5 to know it's "time" to start dialysis. I've been waiting for these symptoms to show up for months and I still feel ok, doing pretty much whatever I want to do (within reason for my age-69). I see
RonZone
in
Kidney Disease
2 years ago
Trimbow dry powder Nexthaler
Hi what are people's thoughts on Trimbow dry power nexthaler. I have been using sodium cromiglicate Intel 5mg old steroid free inhaler. But now sods law this has been discontinued. So now both non steroid inhalers are finished. I see the max is 2 puffs twice a day what do people do when unwell. I am
Hi what are people's thoughts on Trimbow dry power nexthaler. I have been using sodium cromiglicate Intel 5mg old steroid free inhaler. But now sods law this has been discontinued. So now both non steroid inhalers are finished. I see the max is 2 puffs twice a day what do people do when unwell. I am
1Smiler1
in
Asthma Community Forum
2 years ago
Who knows about ferritin/ iron tests? Confused here! Do I need to do something? Help please!
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
TaraJR
in
Thyroid UK
2 years ago
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