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Ibrutinib
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Good end to a bad year... My MRD Results are in!
ClinicalTrials.gov Identifier: NCT04016805 Recruitment Status : Recruiting First Posted : July 11, 2019 Last Update Posted : December 2, 2020 Study to Assess the Efficacy and Safety of Ublituximab and Umbralisib in Subjects With Chronic Lymphocytic Leukemia (CLL) Currently Treated With
Ibrutinib
,
ClinicalTrials.gov Identifier: NCT04016805 Recruitment Status : Recruiting First Posted : July 11, 2019 Last Update Posted : December 2, 2020 Study to Assess the Efficacy and Safety of Ublituximab and Umbralisib in Subjects With Chronic Lymphocytic Leukemia (CLL) Currently Treated With
Ibrutinib
,
MikeHoff
in
CLL Support
3 years ago
Can my mother take hemp oil tablets with Melatonin to help her sleep whilst taking Ibrutinib?
My Mum struggles sleeping, she is also on I
Ibrutinib
. I recently bought her some hemp oil tablets with melatonin to see they helped her sleep. Is this ok with the chemo? Many thanks Michael C
My Mum struggles sleeping, she is also on I
Ibrutinib
. I recently bought her some hemp oil tablets with melatonin to see they helped her sleep. Is this ok with the chemo? Many thanks Michael C
MICHAELC74
in
CLL Support
3 years ago
I don’t have CLL. Do you also post about CNS lymphomas?
Do you also post about
ibrutinib
use with CNS lymphomas?
Do you also post about
ibrutinib
use with CNS lymphomas?
Lemur2020
in
CLL Support
3 years ago
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CLL and covid-19 vaccine
hello due to the lack of enough information about the safety of covid-19 vaccine specially to mention Pfizer vaccine , with CLL disease My mom is taken Imbruvica (
Ibrutinib
) as a chronic use from 2 years now , I want to ask if any one know the safety of takin the vaccine any recommendation , experience
hello due to the lack of enough information about the safety of covid-19 vaccine specially to mention Pfizer vaccine , with CLL disease My mom is taken Imbruvica (
Ibrutinib
) as a chronic use from 2 years now , I want to ask if any one know the safety of takin the vaccine any recommendation , experience
hajtamer
in
CLL Support
3 years ago
Bruising with Ibrutinib
Does anyone have pictures of red blotches on skin whilst taking
Ibrutinib
. Looks like a blood bruise. Thank you and a Merry Xmas to you all.
Does anyone have pictures of red blotches on skin whilst taking
Ibrutinib
. Looks like a blood bruise. Thank you and a Merry Xmas to you all.
Broadbent
in
CLL Support
3 years ago
Regeneron treatment for CLL people with early Covid symptoms
Her CLL background is 13q, mutated, and was diagnosed at 46 years old in 2014 and was on W&W, until summer 2020 when she got AIHA (auto immune hemolytic anemia) which they treated successfully with Prednisone, Rituximab and
Ibrutinib
.
Her CLL background is 13q, mutated, and was diagnosed at 46 years old in 2014 and was on W&W, until summer 2020 when she got AIHA (auto immune hemolytic anemia) which they treated successfully with Prednisone, Rituximab and
Ibrutinib
.
Twin21
in
CLL Support
3 years ago
Bleending gums
I'm on
ibrutinib
about 6 weeks. Any advice or opinion will be appreciated! Best wishes , Lilica
I'm on
ibrutinib
about 6 weeks. Any advice or opinion will be appreciated! Best wishes , Lilica
lilica955
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with
Ibrutinib
s my second line treatment, I cannot go to Venetoclax-Rituximab in the event that I have to quit
Ibrutinib
...
As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with
Ibrutinib
s my second line treatment, I cannot go to Venetoclax-Rituximab in the event that I have to quit
Ibrutinib
...
Me2AsWell
in
CLL Support
4 years ago
Ibrutinib: Is it best used early in treatment, or after other treatment options have failed?
Watch the interview here. https://cllsociety.org/2020/11/ash-2019-dr-paul-barr-on-
ibrutinib
-as-an-early-line-treatment-for-chronic-lymphocytic-leukemia-cll/
Watch the interview here. https://cllsociety.org/2020/11/ash-2019-dr-paul-barr-on-
ibrutinib
-as-an-early-line-treatment-for-chronic-lymphocytic-leukemia-cll/
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
LATEST AND GREATEST LOXO-305 UPDATE
Male 71 years old, Diagnosed 2009, 6 months of FCR 2010, 2015
Ibrutinib
, 2018 Venclaxta, now LOXO-305. 11q del. C-481 mutation and I don't care to know what other blood abnormalities.
Male 71 years old, Diagnosed 2009, 6 months of FCR 2010, 2015
Ibrutinib
, 2018 Venclaxta, now LOXO-305. 11q del. C-481 mutation and I don't care to know what other blood abnormalities.
steve5441
in
CLL Support
3 years ago
Looking for a fifth line of CLL treatment
I’m 55 and on my fourth line of treatment in 4 years: BR,
Ibrutinib
, Venetoclax, Acalabrutinib. And it looks like I’ll need a fifth soon. The acalabrutinib keeps the CLL in check but gives me neutropenia. Stopping acalacbrutinib for a week raised my ANC from 0.6 to 2.0.
I’m 55 and on my fourth line of treatment in 4 years: BR,
Ibrutinib
, Venetoclax, Acalabrutinib. And it looks like I’ll need a fifth soon. The acalabrutinib keeps the CLL in check but gives me neutropenia. Stopping acalacbrutinib for a week raised my ANC from 0.6 to 2.0.
john-doe
in
CLL Support
3 years ago
Vaccine Covid 19
I feel fine after 4 years on
ibrutinib
, so in that sense, that are good news for 17p CLL patients. In this case I would like to ask you if anyone here know if there is any scientific information about the aviability of the vaccines against covid with CLL.
I feel fine after 4 years on
ibrutinib
, so in that sense, that are good news for 17p CLL patients. In this case I would like to ask you if anyone here know if there is any scientific information about the aviability of the vaccines against covid with CLL.
Bixilon
in
CLL Support
4 years ago
Obinutuzumab and Venetoclax cleared for use in UK
I think I read somewhere that this is also sometimes combined with
ibrutinib
or acalabrutinib?
I think I read somewhere that this is also sometimes combined with
ibrutinib
or acalabrutinib?
Research123
in
CLL Support
4 years ago
Increasing LDH
Joined a trial of obinituzimab,
ibrutinib
, and venetoclax. I’m on cycle 13 and numbers in general have been doing well. HOWEVER, my LDH has steadily increased month after month linearly and now is at 400. My doc was thinking transformation and ordered a PET scan - no tumors.
Joined a trial of obinituzimab,
ibrutinib
, and venetoclax. I’m on cycle 13 and numbers in general have been doing well. HOWEVER, my LDH has steadily increased month after month linearly and now is at 400. My doc was thinking transformation and ordered a PET scan - no tumors.
RSSpoke
in
CLL Support
4 years ago
Corona Ibrutinib
I wonder if anybody under
ibrutinib
or acalabrutinib treatment was infected and can describe how she/he survive. Thanks.
I wonder if anybody under
ibrutinib
or acalabrutinib treatment was infected and can describe how she/he survive. Thanks.
Mik_
in
Non Hodgkin's Lymphoma Friends
4 years ago
Itching with CLL
Two rounds of chemo with rituxin , after last round and 18 months later I was started on
ibrutinib
and had no side effects for 3 1/2 years but then it all went south. Horrible side effects which caused my doctor to immediately discontinue the
ibrutinib
.
Two rounds of chemo with rituxin , after last round and 18 months later I was started on
ibrutinib
and had no side effects for 3 1/2 years but then it all went south. Horrible side effects which caused my doctor to immediately discontinue the
ibrutinib
.
40fo
in
CLL Support
4 years ago
Covid/Ibrutinib?
Is anybody tested positive for Covid or covid antibodies being under
Ibrutinib
or acalabrutinib?
Is anybody tested positive for Covid or covid antibodies being under
Ibrutinib
or acalabrutinib?
Mik_
in
CLL Support
4 years ago
Reducing ibrutinib for 14 days
shift a lung infection with no problems but as this is a 14 day course they recommend I miss my
ibrutinib
every 3 rd day so as to make it safe I'm reluctant to do this as I have never missed a day of
ibrutinib
in 3.5 years and I'm in remission with good bloods what are your thoughts
shift a lung infection with no problems but as this is a 14 day course they recommend I miss my
ibrutinib
every 3 rd day so as to make it safe I'm reluctant to do this as I have never missed a day of
ibrutinib
in 3.5 years and I'm in remission with good bloods what are your thoughts
cartwheels
in
CLL Support
4 years ago
Flu Vaccine
I am CLL and on
Ibrutinib
now for 4 months. All my Drs have advised that I should tale the Flu vaccine. Yet all the people I know - who are not CLL - had some fever and much fatigue for at least couple of days. So I am afraid that it would affect me badly given my low immunity.
I am CLL and on
Ibrutinib
now for 4 months. All my Drs have advised that I should tale the Flu vaccine. Yet all the people I know - who are not CLL - had some fever and much fatigue for at least couple of days. So I am afraid that it would affect me badly given my low immunity.
AshGS
in
CLL Support
4 years ago
5 months on Ibrutinib with side effects
Her heart is fine but her Dr took her off
Ibrutinib
for 2 weeks at this time because he said her neutrophils were low. She started the tablets on a lower dose this week and last night she had the dreaded palpitations again.
Her heart is fine but her Dr took her off
Ibrutinib
for 2 weeks at this time because he said her neutrophils were low. She started the tablets on a lower dose this week and last night she had the dreaded palpitations again.
mouseygirl
in
CLL Support
4 years ago
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