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Response to want to chat
I have wanted to chat with others on
dialysis
since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t work like they used to, and I run out of energy very quickly. Also I’m cold all the time. I am assuming all this is part of
dialysis
patients?
I have wanted to chat with others on
dialysis
since I started this whole process. I struggle with eating enough, my leg and arm muscles don’t work like they used to, and I run out of energy very quickly. Also I’m cold all the time. I am assuming all this is part of
dialysis
patients?
PD20
in
Dialysis Support
2 years ago
Creatinine vs. CystatinC eGFR
I have my fistula and Dr. thought I'd be on
dialysis
by now. My Dr. said that cystatin C is more useful for people in stage 1 or 2 since the creatinine based eGFR scales for normal and CKD overlap so much. I worked so hard to get on the transplant list and they will probably make me inactive now.
I have my fistula and Dr. thought I'd be on
dialysis
by now. My Dr. said that cystatin C is more useful for people in stage 1 or 2 since the creatinine based eGFR scales for normal and CKD overlap so much. I worked so hard to get on the transplant list and they will probably make me inactive now.
barbara55109
in
Kidney Disease
2 years ago
Fluid overload
I have
dialysis
tomorrow but if my blood pressure doesn’t get high enough I will be in trouble. I don’t want to die. I feel terrible right now.
I have
dialysis
tomorrow but if my blood pressure doesn’t get high enough I will be in trouble. I don’t want to die. I feel terrible right now.
Jeaukool
in
Dialysis Support
2 years ago
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New here. From all I read, dialysis sounds horrific. Why aren’t more people stepping up to be living donors 4 family members instead?
Family, living donor,
dialysis
Family, living donor,
dialysis
KellyLS
in
Kidney Donation
2 years ago
Cipro and bactrim for Pseudomonas aeruginosa infection
Deceased donor, never on
dialysis
. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent me home with some changes in the meds.
Deceased donor, never on
dialysis
. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent me home with some changes in the meds.
vision22
in
Kidney Transplant
2 years ago
Just need some support
We're lucky and blessed to not have to go to
dialysis
or a transplant center. However, I'm a single mom who manages all of this on her own while also just being a single mom who works 40 hours a week and do everything I have to do on that front.
We're lucky and blessed to not have to go to
dialysis
or a transplant center. However, I'm a single mom who manages all of this on her own while also just being a single mom who works 40 hours a week and do everything I have to do on that front.
Turtlepower88
in
Parents of Children with Kidney Disease
2 years ago
Hyperparathyroidism diagnosis plz help!
Hi Everyone, I had my kidney transplant 8months ago after being on
dialysis
for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on
dialysis
for so long. He prescribed Cinacalcet to be taking once a day.
Hi Everyone, I had my kidney transplant 8months ago after being on
dialysis
for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on
dialysis
for so long. He prescribed Cinacalcet to be taking once a day.
Tuna14
in
Kidney Transplant
2 years ago
Cocktail Please: Bipolar/Spinal Cord Injury Now Dialysis
So question is has anyone had to manage other health issues in conjunction with
dialysis
? I imagine people have, it'd just be nice to hear from some of you.
So question is has anyone had to manage other health issues in conjunction with
dialysis
? I imagine people have, it'd just be nice to hear from some of you.
HipHopQueen
in
Kidney Dialysis
2 years ago
Living with Meningitis effects
I required
dialysis
and was tube fed, first through my nose and then through my stomach. I had to learn to walk again. The effects the meningitis has left me with are truly unbearable. Back in 2020 my ankles and feet started fl hurt and swell.
I required
dialysis
and was tube fed, first through my nose and then through my stomach. I had to learn to walk again. The effects the meningitis has left me with are truly unbearable. Back in 2020 my ankles and feet started fl hurt and swell.
CR1109
in
Meningitis Now
2 years ago
"I Had Parkinson's" FB Group
Then in 2019 I guess they told him he was going to have to go on
dialysis
so he went on a 62 day extended water fast and then switched to a carnivore diet with a 23/1 intermittent fasting schedule.
Then in 2019 I guess they told him he was going to have to go on
dialysis
so he went on a 62 day extended water fast and then switched to a carnivore diet with a 23/1 intermittent fasting schedule.
Bolt_Upright
in
Cure Parkinson's
2 years ago
He is out of the hospital
My dad just came home from the hospital he starts near home
dialysis
tomorrow. Said it’s 3 times a week.
My dad just came home from the hospital he starts near home
dialysis
tomorrow. Said it’s 3 times a week.
dadinfo
in
Kidney Dialysis
2 years ago
What to do when dad gets home from hospital
My dad 79 and a veteran, just started kidney
dialysis
in the hospital. I live an hour and I am hoping they can setup rides to
dialysis
when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated.
My dad 79 and a veteran, just started kidney
dialysis
in the hospital. I live an hour and I am hoping they can setup rides to
dialysis
when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated.
dadinfo
in
Kidney Dialysis
2 years ago
Positive crossmatch ?
So we are trying to provent her from
dialysis
which i am afraid thet will make things harder for her. Doas anyone had the same situation? Not sure which option we can go for? I am seeking for some information that could help me decide and explain to her. Regards
So we are trying to provent her from
dialysis
which i am afraid thet will make things harder for her. Doas anyone had the same situation? Not sure which option we can go for? I am seeking for some information that could help me decide and explain to her. Regards
MAK88
in
Kidney Disease
2 years ago
Does anyone doing dialysis suffer with IBS?
Hello I was just diagnosed with IBS, and I was wondering does anyone who does
dialysis
have this issue? And how do you find a balance with your meal plan? Any advice would help
Hello I was just diagnosed with IBS, and I was wondering does anyone who does
dialysis
have this issue? And how do you find a balance with your meal plan? Any advice would help
Quita55
in
Kidney Dialysis
2 years ago
Activity restrictions on peritoneal dialysis?
I just attended my first PD orientation and I am very sad to learn that once the catheter is in place I won't be able to soak in a bathtub or go swimming. The RN didn't seem in favor of doing other strenuous sports like snowboarding or running. Have other been able to stay active and do sports while
I just attended my first PD orientation and I am very sad to learn that once the catheter is in place I won't be able to soak in a bathtub or go swimming. The RN didn't seem in favor of doing other strenuous sports like snowboarding or running. Have other been able to stay active and do sports while
Cabrilla
in
Kidney Transplant
2 years ago
My story. I had CKD 3 then Kidney failure went on dialysis over 5 years then a friend donated his kidney and I received a transplant 2020.
I went into kidney failure and started
dialysis
for over 5 years. I received a transplant from a friend in 2020. Perfect match.
I went into kidney failure and started
dialysis
for over 5 years. I received a transplant from a friend in 2020. Perfect match.
ESRDRLS
in
Kidney Transplant
2 years ago
Hello
My name is Christina and after being on
dialysis
for 10 years I received my transplant September 26, 2019. Happy to find this wonderful community.
My name is Christina and after being on
dialysis
for 10 years I received my transplant September 26, 2019. Happy to find this wonderful community.
Cookup60
in
Kidney Transplant
2 years ago
The Queens first steps inside the Dialysis Center
I went to
dialysis
education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got
dialysis
. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest.
I went to
dialysis
education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got
dialysis
. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest.
HipHopQueen
in
Kidney Dialysis
2 years ago
Fistula Time
I guess I won't know how I will feel until I begin
dialysis
, but for now I'm trying to education myself and stay positive. On another note I will be going to the transplant center for evaluating. My dad wants to see if he can donate to me.
I guess I won't know how I will feel until I begin
dialysis
, but for now I'm trying to education myself and stay positive. On another note I will be going to the transplant center for evaluating. My dad wants to see if he can donate to me.
HipHopQueen
in
Kidney Dialysis
2 years ago
Emergency dialysis
I might have to do emergency
dialysis
if I don’t get better tomorrow. I’m wondering what they are going to do and what it’s going to be like, how it feels. Anything I need to know. I’m prettty nervous
I might have to do emergency
dialysis
if I don’t get better tomorrow. I’m wondering what they are going to do and what it’s going to be like, how it feels. Anything I need to know. I’m prettty nervous
NaomiBru
in
Kidney Dialysis
2 years ago
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