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Chronic leukaemia
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6dp3dt
Although this is my 5th time doing the TWW, I am STILL symptom spotting. I really am my own worst enemy. To be fair, I held off googling anything until today 😬. [u]Symptoms so far:[/u] - Vivid dreams - Frequent urination (this started last night) - Waking in the night AND that’s it. No cramps,
Although this is my 5th time doing the TWW, I am STILL symptom spotting. I really am my own worst enemy. To be fair, I held off googling anything until today 😬. [u]Symptoms so far:[/u] - Vivid dreams - Frequent urination (this started last night) - Waking in the night AND that’s it. No cramps,
Mrs_MT
in
Fertility Network UK
4 months ago
Small gestational sac - experiences?
Hi guys, Found out I was pregnant a couple of weeks ago, very faint lines on the tests but they were there (they were also progressing nicely). Had a scan at my EPU as I have a history of ectopics so have to go in early, by my period dates I was 5 weeks but as I ovulated on day 21 I knew I was more
Hi guys, Found out I was pregnant a couple of weeks ago, very faint lines on the tests but they were there (they were also progressing nicely). Had a scan at my EPU as I have a history of ectopics so have to go in early, by my period dates I was 5 weeks but as I ovulated on day 21 I knew I was more
Esb27
in
Fertility Network UK
4 months ago
The Leukemia & Lymphoma Society - - COVID Updates: Where We Are and Where We Go From Here
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
lankisterguy
Volunteer
in
CLL Support
1 year ago
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Eptopic?
I have a repeat blood test tomorrow after my HCG last week was just 9, I had a sore stomach through the week and Ive had a consistently dull pain in my right side tonight and so paranoid it's eptopic (originally thought chemical) has anyone had experience of this and had similar symptoms? I will obviously
I have a repeat blood test tomorrow after my HCG last week was just 9, I had a sore stomach through the week and Ive had a consistently dull pain in my right side tonight and so paranoid it's eptopic (originally thought chemical) has anyone had experience of this and had similar symptoms? I will obviously
Xmishell37
in
Fertility Network UK
4 months ago
CLL relapse
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Taupe7
in
CLL Support
1 year ago
Webinar - What You Need To Know About Polycythemia Vera
[i]From our friends at MPN Advocacy & Education International. [/i]
A Conversation with MPN Specialists - What You Need To Know About Polycythemia Vera
Wednesday, April 12, 2023 11:30am-1:00pm EST Drs. Gaby Hobbs, Mass General, and Andrew Kuykendall, Moffitt Cancer Center, will focus their
[i]From our friends at MPN Advocacy & Education International. [/i]
A Conversation with MPN Specialists - What You Need To Know About Polycythemia Vera
Wednesday, April 12, 2023 11:30am-1:00pm EST Drs. Gaby Hobbs, Mass General, and Andrew Kuykendall, Moffitt Cancer Center, will focus their
hunter5582
in
MPN Voice
1 year ago
9dp5dt, no positive test result, period missed 6 days
It is 9th day after FET. On the day 7, I had a faint line on the pregnancy test, only in the morning urine. Today it is much more faint, almost impossible to see, instead of getting thicker line. I am using sensitive dipsticks which are able to capture 10mui. My period missed 6 days. My fever is between
It is 9th day after FET. On the day 7, I had a faint line on the pregnancy test, only in the morning urine. Today it is much more faint, almost impossible to see, instead of getting thicker line. I am using sensitive dipsticks which are able to capture 10mui. My period missed 6 days. My fever is between
WaitingforGabriel
in
Fertility Network UK
4 months ago
People's lived experience of complete remission after long illness?
Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene). I entered the trial at
Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene). I entered the trial at
Greyhound23
in
CLL Support
1 year ago
Sensitive - How long does it take to get a negative pregnancy test after miscarriage?
Hi all, I took medication for a miscarriage on Dec 23rd (due to a empty 3cm sac). I was told the hcg pregnancy test should be negative 3 weeks after, which will be Saturday. I took the HCG test this morning and the test line is still almost as dark as the control. I was expecting the test to be negative
Hi all, I took medication for a miscarriage on Dec 23rd (due to a empty 3cm sac). I was told the hcg pregnancy test should be negative 3 weeks after, which will be Saturday. I took the HCG test this morning and the test line is still almost as dark as the control. I was expecting the test to be negative
Orangeflowers
in
Fertility Network UK
4 months ago
First COVID Antibody Test
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
noeagaman
in
CLL Support
1 year ago
Patient Power's MOST-READ ARTICLEs for 2022
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
lankisterguy
Volunteer
in
CLL Support
1 year ago
ivf embryo measuring small
Hi, just wanting to hear some thoughts/past experiences others may have had- I had a 5 day embryo transfer on the 12th Dec meaning I should be 6 weeks pregnant, my beta hcg level was low at 67, but a week later was 572 and is now 7,600 so is rising as it should. I had a 6 week scan yesterday and the
Hi, just wanting to hear some thoughts/past experiences others may have had- I had a 5 day embryo transfer on the 12th Dec meaning I should be 6 weeks pregnant, my beta hcg level was low at 67, but a week later was 572 and is now 7,600 so is rising as it should. I had a 6 week scan yesterday and the
MinnieM27
in
Fertility Network UK
4 months ago
missed miscarriage - I need some advice
hello, On Wednesday I had my first pregnancy scan at 7w2d. An empty pregnancy sac is all they found. My hcg on Wednesday was 914, today it is 893. I have been told to stop all medication. anyone with a similar experience, when did you start miscarrying after stopping meds? im so scared to miscarry
hello, On Wednesday I had my first pregnancy scan at 7w2d. An empty pregnancy sac is all they found. My hcg on Wednesday was 914, today it is 893. I have been told to stop all medication. anyone with a similar experience, when did you start miscarrying after stopping meds? im so scared to miscarry
Bee_86
in
Fertility Network UK
4 months ago
Latest Consultation/Bloods
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Divisidero
in
CLL Support
1 year ago
Slow rising HCG… 6 weeks
Hello, To update since my last post, I’m currently 6+3 with painfully slow rising HCG… Need some positive stories that are similar to mine as I can’t bear this limbo! I transferred x2 day 7 embryos on the 4th Dec via FET. My betas have been as follows: 15.12 - 11dp7dt - 33 18.22 - 14dp7dt - 56
Hello, To update since my last post, I’m currently 6+3 with painfully slow rising HCG… Need some positive stories that are similar to mine as I can’t bear this limbo! I transferred x2 day 7 embryos on the 4th Dec via FET. My betas have been as follows: 15.12 - 11dp7dt - 33 18.22 - 14dp7dt - 56
Kg44
in
Fertility Network UK
5 months ago
Heading for transfer no.6 - protocol modifications
So today I had my follow up appt after 5th failed transfer. Was hoping mr Dr would suggest something new and boy has he done that! 😊😊 5th transfer I had HCG wash before transfer but no other additional tests/treatments. This time I’m having clexane injections, prednisolone, oestrogen patches instead
So today I had my follow up appt after 5th failed transfer. Was hoping mr Dr would suggest something new and boy has he done that! 😊😊 5th transfer I had HCG wash before transfer but no other additional tests/treatments. This time I’m having clexane injections, prednisolone, oestrogen patches instead
Doodlebug23
in
Fertility Network UK
5 months ago
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
lankisterguy
Volunteer
in
CLL Support
1 year ago
Kidneys affected by Hydroxyurea?
Was admitted to hospital last week due to severely low sodium levels and creatinine levels were way off normal. Admitting diagnosis was acute kidney failure. Nephrologists were not sure what was causing the change in my kidney’s health. They wondered if the Hydroxyurea could be playing a part
Was admitted to hospital last week due to severely low sodium levels and creatinine levels were way off normal. Admitting diagnosis was acute kidney failure. Nephrologists were not sure what was causing the change in my kidney’s health. They wondered if the Hydroxyurea could be playing a part
KHardey
in
MPN Voice
1 year ago
Managing Life With an MPN | What You Need to Know
Looks like it may be an interesting Webinar from our friends at Patient Empowerment Network. In this webinar, Dr. Raajit Rampal, an MPN specialist, will share advice for making treatment decisions for patients with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). Dr.
Looks like it may be an interesting Webinar from our friends at Patient Empowerment Network. In this webinar, Dr. Raajit Rampal, an MPN specialist, will share advice for making treatment decisions for patients with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). Dr.
hunter5582
in
MPN Voice
1 year ago
chemical pregnancy?
hi all. I’ve previously had an MMC from a natural pregnancy followed by 2 x failed IUI cycles. I then had my daughter through a 3rd IUI in 2022. Since then I’ve had a natural MC. I’m now under care of a new clinic and agreed to try naturally with progesterone and aspirin support for 2/3 my cycles before
hi all. I’ve previously had an MMC from a natural pregnancy followed by 2 x failed IUI cycles. I then had my daughter through a 3rd IUI in 2022. Since then I’ve had a natural MC. I’m now under care of a new clinic and agreed to try naturally with progesterone and aspirin support for 2/3 my cycles before
London_Em
in
Fertility Network UK
5 months ago
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