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Experiences with
Abdominal hysterectomy
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Recurrence :(
I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total
abdominal
hysterectomy
and omentectomy after the 3rd cycle.
I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total
abdominal
hysterectomy
and omentectomy after the 3rd cycle.
Kjpip
in
My Ovacome
27 days ago
so many questions
She had her surgery today for total
abdominal
hysterectomy
and they removed a tumour the size of a melon. The cancer nurse specialist has already been round and confirmed it is cancerous but they are sending it off for grading? What is grading? They have left her womb in but we aren’t sure why.
She had her surgery today for total
abdominal
hysterectomy
and they removed a tumour the size of a melon. The cancer nurse specialist has already been round and confirmed it is cancerous but they are sending it off for grading? What is grading? They have left her womb in but we aren’t sure why.
Kerri1402
in
My Ovacome
7 months ago
mum update
So she’s having total
abdominal
hysterectomy
and they will biopsy after and also biopsy her lymph nodes to check they’re clear.
So she’s having total
abdominal
hysterectomy
and they will biopsy after and also biopsy her lymph nodes to check they’re clear.
Kerri1402
in
My Ovacome
8 months ago
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Clinical Trial with Abemaciclib and Olaparib
I had a total
abdominal
hysterectomy
in addition to chemotherapy with Taxol/Carboplatin, then Zegula for maintenance. My CA125 dropped down to 11, but 4 months later at my checkup, that number shot up. Legions were found at the back end of my colon, on my liver, and on my psoas muscle.
I had a total
abdominal
hysterectomy
in addition to chemotherapy with Taxol/Carboplatin, then Zegula for maintenance. My CA125 dropped down to 11, but 4 months later at my checkup, that number shot up. Legions were found at the back end of my colon, on my liver, and on my psoas muscle.
TealBlooms
in
My Ovacome
9 months ago
Trying to get my health on track..
Had a
abdominal
hysterectomy
and kept my ovaries in Early March, was put into chemical menopause with Prostap SR which really messed me up. The drug caused me to be extremely depressed/anxious. As well as thyroid/heart/ kidney issues.
Had a
abdominal
hysterectomy
and kept my ovaries in Early March, was put into chemical menopause with Prostap SR which really messed me up. The drug caused me to be extremely depressed/anxious. As well as thyroid/heart/ kidney issues.
Kinzy1979
in
My EXI Community
9 months ago
MDT recommends...
Their recommendation was Total
Abdominal
Hysterectomy
with Bilateral salpingo oophorectomy and omental biopsy. I have to do a repeat CA125 on Tuesday and my Cyst is now 8cm result from CT scan, it was 6 cm a few weeks ago.
Their recommendation was Total
Abdominal
Hysterectomy
with Bilateral salpingo oophorectomy and omental biopsy. I have to do a repeat CA125 on Tuesday and my Cyst is now 8cm result from CT scan, it was 6 cm a few weeks ago.
Booty42
in
Endometriosis UK
1 year ago
helpful YouTube yoga channel
She has a whole series of gentle yoga specifically for post
hysterectomy
/post
abdominal
surgery recovery. I have found it helpful and it’s good that it’s very specific. Anyway just wanted to share. I’ll put one link here but she has lots from week 1-12 of recovery building up. hope it helps!
She has a whole series of gentle yoga specifically for post
hysterectomy
/post
abdominal
surgery recovery. I have found it helpful and it’s good that it’s very specific. Anyway just wanted to share. I’ll put one link here but she has lots from week 1-12 of recovery building up. hope it helps!
Batwoman3
in
Endometriosis UK
4 months ago
Help and advice needed please
I had a full
abdominal
hysterectomy
in Oct 2022 I've healed well but I'm now getting the exact same pains as I was before my operations the gynecology discharged me the day I left after my op I don't know wat else to do.
I had a full
abdominal
hysterectomy
in Oct 2022 I've healed well but I'm now getting the exact same pains as I was before my operations the gynecology discharged me the day I left after my op I don't know wat else to do.
Bexb89
in
Endometriosis UK
1 year ago
Link between adhesions and ongoing abdominal pain.
.20 years ago after several years of
abdominal
pain I had a total
hysterectomy
. They found that my abdomen was full of violin string adhesions. I was great for a short time then I started to have intermittent abdominal pain. Lost lots of weight.
.20 years ago after several years of
abdominal
pain I had a total
hysterectomy
. They found that my abdomen was full of violin string adhesions. I was great for a short time then I started to have intermittent abdominal pain. Lost lots of weight.
Mrsmr
in
Endometriosis UK
4 months ago
Help needed
I was put on zoladex injecti9ns for 10months in preparation for a full
abdominal
hysterectomy
, which I had done in October 2022. But unfortunately now all the symptoms had previously apart from the bleeding has resurfaced. I'm happyto tell my full story!
I was put on zoladex injecti9ns for 10months in preparation for a full
abdominal
hysterectomy
, which I had done in October 2022. But unfortunately now all the symptoms had previously apart from the bleeding has resurfaced. I'm happyto tell my full story!
Bexb89
in
Endometriosis UK
1 year ago
7 days post and home.
I don't remember it being as painful as this when I got my transplant but they said
abdominal
surgery is worse and I have already had a
hysterectomy
so lots of scarring. I hope you are all well char x
I don't remember it being as painful as this when I got my transplant but they said
abdominal
surgery is worse and I have already had a
hysterectomy
so lots of scarring. I hope you are all well char x
Thanksnhs
in
British Heart Foundation
3 months ago
advice
Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
hysterectomy
. I have had
abdominal
scan and was told everything ok. The pain is excruciating. I feel like I’m on my own and no one is willing to help me.
Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
hysterectomy
. I have had
abdominal
scan and was told everything ok. The pain is excruciating. I feel like I’m on my own and no one is willing to help me.
Hidden
in
Endometriosis UK
7 months ago
Zoledex injection 2
Hi all so im had zoledex jab number 2 on tuesday and wednesday i had a major flare up and now im writing this at 3am with another major flare up.I was in A&E wednesday as the pain was so bad but after tests i was told it was uti and carry on. I was told the paind anyway by my endo nurse would get worse
Hi all so im had zoledex jab number 2 on tuesday and wednesday i had a major flare up and now im writing this at 3am with another major flare up.I was in A&E wednesday as the pain was so bad but after tests i was told it was uti and carry on. I was told the paind anyway by my endo nurse would get worse
Chartolfrey
in
Endometriosis UK
11 hours ago
Dealing with endo after children in late thirties
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
EKP31
in
Endometriosis UK
2 days ago
decapeptyl
hi everyone! My first time posting ! I am 35 diagnosed with Endometriosis im dec 2022 after years of being told I am completely fine I had my first decapeptyl injection on Wednesday at my doctors after being recommended it pre hysterectomy (stage 4 endo & suspected adenomyosis) so far I have had hot
hi everyone! My first time posting ! I am 35 diagnosed with Endometriosis im dec 2022 after years of being told I am completely fine I had my first decapeptyl injection on Wednesday at my doctors after being recommended it pre hysterectomy (stage 4 endo & suspected adenomyosis) so far I have had hot
Beaugirl89
in
Endometriosis UK
7 days ago
Please enlighten me!!!
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
milkgoat
in
Thyroid UK
11 days ago
Advice Please
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
CecilyParsley
in
Pelvic Pain Support Network
13 days ago
A book recommendation from my Doctor.
Dear fellow sufferers, After a visit to my doctor, who was brilliant, and took time to listen to me! I’ve been recommended a book to read by her. It’s called Mine Your Gut by Kate Scarlata and Dr Megan Riehl. I’ve started it and it’s brilliant! Defo worth a read…. Secondly, interestingly she was keen
Dear fellow sufferers, After a visit to my doctor, who was brilliant, and took time to listen to me! I’ve been recommended a book to read by her. It’s called Mine Your Gut by Kate Scarlata and Dr Megan Riehl. I’ve started it and it’s brilliant! Defo worth a read…. Secondly, interestingly she was keen
Martini1
in
IBS Network
15 days ago
1c ovarian cancer
hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hysterectomy but my consultant has informed me that chemotherapy is not a option as it won’t work is anybody else been in this situation
hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hysterectomy but my consultant has informed me that chemotherapy is not a option as it won’t work is anybody else been in this situation
Marketlover
in
My Ovacome
17 days ago
Pain management
Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy and have prostap injections but as I can only have them for 6months and a 6months break.I find that when I don't have them the flare ups are every few weeks sometimes lasting 13 days .It really effects my life the pain is
Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy and have prostap injections but as I can only have them for 6months and a 6months break.I find that when I don't have them the flare ups are every few weeks sometimes lasting 13 days .It really effects my life the pain is
Sammy455
in
Endometriosis UK
18 days ago
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