Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2015

Pain in legs and arms

Hi everyone Can I just ask if any of you suffer from pain in legs and arms I can only discribe it as a dull pain but it can keep me awake at night. I also...

Hi everyone Can I just ask if any of you suffer from pain in legs and arms I ca...

spider7

•9 years ago

17 Replies

Really Worried !

After seeing professor D'Cruz yesterday I am left feeling really scared. He said my APS levels are low and thinks long term fragmin use could result in a...

After seeing professor D'Cruz yesterday I am left feeling really scared. He said...

jessie68

•9 years ago

18 Replies

Its been a while...

Hello, its been 10 months since I last visited this website. My partner and I chose to take some time out and try and get ourselves back together again after...

Hello, its been 10 months since I last visited this website. My partner and I ch...

kirstyleigh

•9 years ago

5 Replies

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APS and alcohol

Hi does anyone with APS find that the effects of alcohol are exaggerated. I have been recently diagnosed and have found periodically my body will not tolerate...

Hi does anyone with APS find that the effects of alcohol are exaggerated. I hav...

NicBay

•9 years ago

16 Replies

Numbness/Tingling and involuntary spasms?

Hi, I was diagnosed with APS nearly four years ago following seven consecutive early miscarriages. I've since gone on to have two children (taking both aspirin...

Hi, I was diagnosed with APS nearly four years ago following seven consecutive e...

ecwyllie

•9 years ago

2 Replies

Traveling pain to my Joints and my calf muscles

Greetings, I am a 39 year old male from the Bronx, New York. I have 3 older siblings, and tons of Nieces and Nephews as well as Great Nieces and Nephews. My...

Greetings, I am a 39 year old male from the Bronx, New York. I have 3 older sibl...

MrCally

•9 years ago

4 Replies

Seizures

Does anyone on here suffer seizures? I have APS, Lupus and two aneurysms in the brain (small at last MRA). Most APS problems have been cerebral (silent stroke...

Does anyone on here suffer seizures? I have APS, Lupus and two aneurysms in the ...

minnime63

•9 years ago

13 Replies

IVF & when to take blood thinners

Hi there, So after 2 miscarriages in 2013 / 2014, I was diagnosed with APS. I went on aspirin and heparin for my next pregnancy that happened very quickly...

Hi there, So after 2 miscarriages in 2013 / 2014, I was diagnosed with APS. I we...

Tlove

•9 years ago

10 Replies

Just seen Professor Cruz with a result I think ?

Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I no longer have APS. Prof D'Cruz looked at all my blood work and history and...

Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I n...

jessie68

•9 years ago

10 Replies

Amitriptyline

Hi all just been prescribed Amitriptyline 10mg for nasty migraine headaches most of what I find on the internet appears to regard this as a pain relief but...

Hi all just been prescribed Amitriptyline 10mg for nasty migraine headaches most...

Twadd

•9 years ago

7 Replies

Elevated Red cells and APS

I have APS and am on 6 mg Warfarin daily. My INR stays between 2.5 and 3.0 I was recently diagnosed, again, with elevated red cells. The Doctor didn't tell me...

I have APS and am on 6 mg Warfarin daily. My INR stays between 2.5 and 3.0 I was...

DannyBoy1

•9 years ago

30 Replies

Air travel

Following my hubby's 3rd stroke 2 weeks after returning from a short hall flight we have been very reluctant to book another holiday abroad, (This was May 2014...

Following my hubby's 3rd stroke 2 weeks after returning from a short hall flight...

Vespa1

•9 years ago

12 Replies

Leg pain

I have had a very sore leg since yesterday. Achy crampy feeling at the back of my calf and up into my thigh. It does feel a bit hot but not swollen. I did...

I have had a very sore leg since yesterday. Achy crampy feeling at the back of m...

Fusch

•9 years ago

10 Replies

Radio interview with Yvonne Wren on Radio Marlow

via Hughes Syndrome Foundation/Facebook Page: https://clyp.it/1zolckte Well done. MaryF

via Hughes Syndrome Foundation/Facebook Page: https://clyp.it/1zolckte Well ...

MaryF

Administrator•9 years ago

3 Replies

Headaches

Hi all, I had an aortic valve replacement some 10 years ago and I've been on phenprogamma 3 (German equivalent to Warfarin) and always ok. I self test at home...

Hi all, I had an aortic valve replacement some 10 years ago and I've been on phe...

harrio

•9 years ago

7 Replies

Reminding members of our rules and regs

Hi everybody, this is a forum which works for everybody, we as unpaid ADMINs give up our time freely to help others, most days of the week, unpaid....

Hi everybody, this is a forum which works for everybody, we as unpaid ADMINs giv...

MaryF

Administrator•9 years ago

42 Replies

Operations

Hi iv had my operations on my right hand carpul tunnel and my left frozen sholder done all gone well so Farr but did have to stop in longer cos I did not have...

Hi iv had my operations on my right hand carpul tunnel and my left frozen sholde...

Lesley61

•9 years ago

9 Replies

Rheumatologist in Kent, UK

Hi I have just looked on the the HS website and see that there are several rheumatologists listed for the Kent area - I am going to see my GP tomorrow to asked...

Hi I have just looked on the the HS website and see that there are several rheum...

NicBay

•9 years ago

7 Replies

Help with my labs

Hi everyone, I've had 3 tests now come up positive for Anticardiolipin IGM and Phosphatidylserine AB IGM. I've had so many other tests looking for lupus and...

Hi everyone, I've had 3 tests now come up positive for Anticardiolipin IGM and P...

Crogers

•9 years ago

4 Replies

Via Hughes Syndrome Foundation Facebook page ASPIRIN/clinical trial

The world's largest clinical trial has begun in the UK to establish whether aspirin prevents cancers from returning. We know how effective aspirin is in APS,...

The world's largest clinical trial has begun in the UK to establish whether aspi...

MaryF

Administrator•9 years ago

2 Replies

Via Hughes Syndrome Foundation/Facebook Page

If have not done to, do like the Facebook Page for Hughes Syndrome Foundation, to help keep up with articles, however I do mainly put them on here: Exciting...

If have not done to, do like the Facebook Page for Hughes Syndrome Foundation, t...

MaryF

Administrator•9 years ago

1 Reply

LA Negative?

Hello all. I'm confused after receiving a letter from consultant at St Thomas's. Apparently my bloods this visit came up with negative LA and also negative on...

Hello all. I'm confused after receiving a letter from consultant at St Thomas's....

minnime63

•9 years ago

4 Replies

Very personal alil worried

How much is "too" much blood loss during a menstrul cycle? Yes I'm on warfarin..

Pearl-a

•9 years ago

6 Replies

Sharp pain

I've been having sharp pains that goes through my right temple. It doesn't last long and I don't have it everyday but is this something to be worried about

I've been having sharp pains that goes through my right temple. It doesn't last...

Kristi66

•9 years ago

4 Replies

So many questions

I am in New Jersey USA and I feel like there are no experts here in this confusing aps syndrome. I have a hemotologist and a rheumatologist who I feel are...

I am in New Jersey USA and I feel like there are no experts here in this confusi...

Apriljm76

•9 years ago

19 Replies

Tested negative then positive within a week

Hi I'm new here but been lurking since May. My name is Gemma I have had 3 successful full term pregnancies thn lost my daughter at 21 weeks in May. 4 days...

Hi I'm new here but been lurking since May. My name is Gemma I have had 3 suc...

Burtie-bengal

•9 years ago

2 Replies

Ablation , Riveroxaban and neurology

It has been a while since I wrote a post catching up on here, Glad to see everyone seems to be getting great treatment regarding their Hughes. At the start of...

It has been a while since I wrote a post catching up on here, Glad to see everyo...

Kittybaker

•9 years ago

7 Replies

Amytripyline

Saw my RA consultant last week as since I went on warfarin for APS my RA and Fibromyalgia has been worse and I feel rubbish. My last INR was 2.4 and at moment...

Saw my RA consultant last week as since I went on warfarin for APS my RA and Fib...

Fra22-57

•9 years ago

17 Replies

Wow!

I was diagnosed at the age of 16, I'm now 41 with my first major blood clot (besides my placentas) I've been reading your stories & had NO CLUE there was so...

I was diagnosed at the age of 16, I'm now 41 with my first major blood clot (bes...

Pearl-a

•9 years ago

2 Replies

Can MRI and CT scan miss a stroke?

Hello everyone, I have been reading into every one experience. I am so lost and also broken and depressed. I just had an awful experience. I was with my...

Hello everyone, I have been reading into every one experience. I am so lost and ...

Garcia73

•9 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2015

Pain in legs and arms

Really Worried !

Its been a while...

APS and alcohol

Numbness/Tingling and involuntary spasms?

Traveling pain to my Joints and my calf muscles

Seizures

IVF & when to take blood thinners

Just seen Professor Cruz with a result I think ?

Amitriptyline

Elevated Red cells and APS

Air travel

Leg pain

Radio interview with Yvonne Wren on Radio Marlow

Headaches

Reminding members of our rules and regs

Operations

Rheumatologist in Kent, UK

Help with my labs

Via Hughes Syndrome Foundation Facebook page ASPIRIN/clinical trial

Via Hughes Syndrome Foundation/Facebook Page

LA Negative?

Very personal alil worried

Sharp pain

So many questions

Tested negative then positive within a week

Ablation , Riveroxaban and neurology

Amytripyline

Wow!

Can MRI and CT scan miss a stroke?

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