Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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Unexplained Medical Symptoms

Do I have SLE? Do I have Hughes' Syndrome? Diagnosis can only be made by a medical doctor. I real life, many of us suffer for years without a diagnosis....

Do I have SLE? Do I have Hughes' Syndrome? Diagnosis can only be made by a medi...

lupus-support1

Administrator•4 years ago

4 Replies

Followup with the Rheumatologist

Result tests were conclusive for APS as well as a positive result for something called, "68 KD Antigen (HSP70)," which is probably the root cause of the...

Result tests were conclusive for APS as well as a positive result for something ...

JossMiller

•8 years ago

4 Replies

Not sure whether I should be here but think i need to be checked out x

Hi everyone, i havent had a diagnosis but i am going to see my doctor next week as i think i may need to be tested for this condition. I have had 4...

Hi everyone, i havent had a diagnosis but i am going to see my doctor next week...

parkysam

•8 years ago

4 Replies

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Introduction and a query

I received an APS diagnosis early this morning. It caught me completely off guard. I spent a good bit of time today doing the google research thing. I'm more...

I received an APS diagnosis early this morning. It caught me completely off guar...

JossMiller

•8 years ago

13 Replies

Should I push for a diagnosis of APS?

Hi all, hoping for some advice. Having been suffering for a few years now with various symptoms and not really getting to the bottom of them (despite...

Hi all, hoping for some advice. Having been suffering for a few years now with v...

mango20

•8 years ago

18 Replies

Undifferentiated Scattered foci in the deeper part of the brain revealed from MRI

hi, just received results for an mri (as noted above) for my 16 year old daughter who been having chronic headaches for 3 months. The doctor mentioned...

hi, just received results for an mri (as noted above) for my 16 year old daughte...

stickybusiness

•8 years ago

12 Replies

1 positive test, pregnant -advice please...!

Hi all, I am fairly new to all this and would love some advice on my current situation. I have a 5 year old son and a 2 year old son. I then had 3 miscarriages...

Hi all, I am fairly new to all this and would love some advice on my current sit...

Pregnantk

•8 years ago

8 Replies

Miscarriage clinic

Hi after 4 failed ivf and 1 fet I have asked to be referred to the miscarriage clinic as I have unexplained fertility. They have been testing me for sticky...

Hi after 4 failed ivf and 1 fet I have asked to be referred to the miscarriage c...

Smithkin

•8 years ago

5 Replies

neuropathy

I found out today that the pain and numbness in my feet is neuropathy associated with my APS. Thinking back, it's the first symptom I probably had of the APS...

I found out today that the pain and numbness in my feet is neuropathy associated...

mylafont

•8 years ago

12 Replies

Confused

I was diagnosed with APS after having a DVT and multiple PE's. Went to Mayo Clinic in Rochester, they told me my numbers were positive, but not high enough to...

I was diagnosed with APS after having a DVT and multiple PE's. Went to Mayo Clin...

Capesha

•8 years ago

4 Replies

APS/Hughes and Factor V Leiden

Hello everyone! This is Gilda from Palm Beach Gardens, FL, anyone else on here from the States? My question to the APS group is whether any of you have also...

Hello everyone! This is Gilda from Palm Beach Gardens, FL, anyone else on here ...

GILGOMEZ

•8 years ago

9 Replies

Early Christmas present!

Came home to find a voicemail from the Lupus Centre at Guys Hospital - I have my first appointment booked for beginning of February hopefully I will get some...

Came home to find a voicemail from the Lupus Centre at Guys Hospital - I have my...

NicBay

•8 years ago

7 Replies

seron negative

Hi all saw a diagnostic specialist a couple of months ago who reviewed my symptoms and blood test and gave me the DX of APS. He would have liked a second...

Hi all saw a diagnostic specialist a couple of months ago who reviewed my sympt...

suntap

•8 years ago

3 Replies

My story

Hello I am 41 and a few weeks ago had a funny turn at work which I think was a reactive hypoglycaemic turn. However my doc thought it may be a stroke and sent...

Hello I am 41 and a few weeks ago had a funny turn at work which I think was a r...

linagirl

•8 years ago

19 Replies

Confusing APS diagnosis

Hi - I have recently been given a diagnosis of APS after two positive blood tests for the Lupus Anticoagulent - one as part of pre-surgery assessment and the...

Hi - I have recently been given a diagnosis of APS after two positive blood test...

NicBay

•9 years ago

11 Replies

Misscarriage and migraine

Hi I'm looking for any help or advice. I've had three misscariages one at 8 weeks one at ten weeks and one at 12 weeks. I have practically begged for testing...

Hi I'm looking for any help or advice. I've had three misscariages one at 8 wee...

Charlie09

•9 years ago

12 Replies

New to APS Scared but relieved

Hello. I was diagnosed 2 days ago with Hughes Syndrome and I cried. Not in fear but in that someone had finally found out what was wrong. See I live in...

Hello. I was diagnosed 2 days ago with Hughes Syndrome and I cried. Not in fear ...

medlock62

•9 years ago

13 Replies

Follower

I have not been getting update lately

morro

•9 years ago

1 Reply

Brain Aneurysm

As if the Factor V Leiden and Anti phospholipid wasn't enough--- Due to a family history of brain aneurysms, -my mother died of one, my sister had 3 but were...

As if the Factor V Leiden and Anti phospholipid wasn't enough--- Due to a family...

mozelle

•9 years ago

12 Replies

APS/Hughes Syndrome?

A few years after suffering my 1st DVT in 1999 I was diagnosed with Factor V Leiden. I suffered my 2nd DVT in 2011. Some other info about me medically: I have...

A few years after suffering my 1st DVT in 1999 I was diagnosed with Factor V Lei...

PamZ

•9 years ago

5 Replies

Could I have Hughes syndrome??

Hi all, I have come across an article in a magazine and the woman described an illness that she had suffered from for a long time. Hughes syndrome. I have had...

Hi all, I have come across an article in a magazine and the woman described an i...

Svd80

•9 years ago

7 Replies

Right side of head hurts bad when I sit up or stand up

Help me figure out what is wrong

girl_12

•9 years ago

4 Replies

Memory problems

Hallo there.... Am glad to have seen this and joined coz am so scared of what is happening to me... I started having memory issues a while ago but it's gotten...

Hallo there.... Am glad to have seen this and joined coz am so scared of what is...

Jeccey

•9 years ago

20 Replies

mag7

Hi ,anyone heard of progressive paraparesis its tied up with APS and all too scary.

Hi ,anyone heard of progressive paraparesis its tied up with APS and all too sca...

mag7

•9 years ago

2 Replies

My health

Today morning I woke up having chest pains,but the pain comes and goes..

Timon

•9 years ago

2 Replies

Young(ish) APS patients?

Hey everyone, I'm new and wondering if anyone on here was diagnosed with APS when they were in their teens or younger? Or if you know anyone who was? I was...

Hey everyone, I'm new and wondering if anyone on here was diagnosed with APS whe...

disloyalorder

•9 years ago

11 Replies

New to forum. Love some advice!!

Hi all, I am new to the forum and would really appreciate some advice. Bit of back history.... I have 3 children but have also had 4 miscarriages all before...

Hi all, I am new to the forum and would really appreciate some advice. Bit of b...

Nattylioness

•9 years ago

24 Replies

Having chest pain

Hi there, have not been on for a while but I read Health Unlocked all the time. Diagnosed with APS in 2007 and on warfarin. Had a stroke in 2006 but have...

Hi there, have not been on for a while but I read Health Unlocked all the time. ...

MaryH

•9 years ago

3 Replies

APS or over thinking

Hello, I am new to this forum and i am looking for some advice and answers really. My mother was diagnosed with APS about 20years ago. Both my sister and I...

Hello, I am new to this forum and i am looking for some advice and answers real...

RebeccaAnn22

•9 years ago

13 Replies

Deep behind knee pain

Hi I have been suffering this deep aching sort of pain behind my left knee it also travels about half way down my calf, it's even there when I wake up in the...

Hi I have been suffering this deep aching sort of pain behind my left knee it al...

SharonTOsborne

•9 years ago

6 Replies

Write a post or ask a question

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

Diagnosis posts

Unexplained Medical Symptoms

Followup with the Rheumatologist

Not sure whether I should be here but think i need to be checked out x

Introduction and a query

Should I push for a diagnosis of APS?

Undifferentiated Scattered foci in the deeper part of the brain revealed from MRI

1 positive test, pregnant -advice please...!

Miscarriage clinic

neuropathy

Confused

APS/Hughes and Factor V Leiden

Early Christmas present!

seron negative

My story

Confusing APS diagnosis

Misscarriage and migraine

New to APS Scared but relieved

Follower

Brain Aneurysm

APS/Hughes Syndrome?

Could I have Hughes syndrome??

Right side of head hurts bad when I sit up or stand up

Memory problems

mag7

My health

Young(ish) APS patients?

New to forum. Love some advice!!

Having chest pain

APS or over thinking

Deep behind knee pain

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