Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,364 members • 10,559 posts

All posts for October 2015

Thyroid UK - Results of their in depth survey:

Thyroid UK undertook a huge survey on Hypothyroidism, this is terribly important, as often people are not tested, the TSH test is not reliable, also there is a...

Thyroid UK undertook a huge survey on Hypothyroidism, this is terribly important...

MaryF

Administrator•9 years ago

9 Replies

Vanity?

Hi all, Anyone here had or thought about getting a tattoo with APS? Any thoughts or advice? I've toyed with the idea for years but never done anything......

Hi all, Anyone here had or thought about getting a tattoo with APS? Any thought...

lloydyuk

•9 years ago

16 Replies

Recurrent miscarriages ! 5 in a row

Hi I am looking for some advice! In all 5 pregnancies my hcg has not risen. On the 4th pregnancy I had a positive APS result and was told if I got pregnant...

Hi I am looking for some advice! In all 5 pregnancies my hcg has not risen. On t...

Esmes2013

•9 years ago

8 Replies

Want to take advantage of all our features? Just log in!

APS and Eyes

Hi can you help? I'm seronegative APS and I keep getting conjunctivitis and Celuitus. Is this normal with people who have APS? Thanks.

Hi can you help? I'm seronegative APS and I keep getting conjunctivitis and Celu...

strawberry69

•9 years ago

4 Replies

More Blood Work

So I received more if my blood work and instead of having one positive antibody I have 3 out of 6 on the panel that was done. Still no sign of lupus, my...

So I received more if my blood work and instead of having one positive antibody ...

medlock62

•9 years ago

9 Replies

Confusing APS diagnosis

Hi - I have recently been given a diagnosis of APS after two positive blood tests for the Lupus Anticoagulent - one as part of pre-surgery assessment and the...

Hi - I have recently been given a diagnosis of APS after two positive blood test...

NicBay

•9 years ago

11 Replies

Scroll down this link if you are in the UK, to play the TV This Morning Clip with Dr Chris Steele.

Here we go, http://www.itv.com/thismorning MaryF

MaryF

Administrator•9 years ago

9 Replies

Hi

I saw a piece about this syndrome on This Morning today and when I Googled the symptoms it was a bit of a Eureka moment! I was reading a list of me!!! I am...

I saw a piece about this syndrome on This Morning today and when I Googled the s...

daisy82

•9 years ago

7 Replies

ITV This Morning

Hello I had a very interesting telephone call this morning, which alerted me to the fact that ITV This Morning will feature a section with a patient,...

Hello I had a very interesting telephone call this morning, which alerted me to...

MaryF

Administrator•9 years ago

9 Replies

Flu Shot?

If you have Hughes Syndrom/APS Should you get the flu shot or will this possibly mess with your already out of wack immune system?

If you have Hughes Syndrom/APS Should you get the flu shot or will this possibly...

LauraKlumpp

•9 years ago

23 Replies

surgery and warfarin

As I posted several weeks ago, I was diagnosed with a Brain Aneurysm in September, and saw the Neurosurgeon on Sept. 28. I am having a Cerebral Artery...

As I posted several weeks ago, I was diagnosed with a Brain Aneurysm in Septembe...

mozelle

•9 years ago

8 Replies

useful article via HUGHES SYNDROME FOUNDATION

MaryF

Administrator•9 years ago

2 Replies

Newbie with pains

Hi all, I am from Australia and diagnosed APS (by blood tests) two weeks ago. I have been very ill all year following pulmonary embolisms on the 18th dec 14....

Hi all, I am from Australia and diagnosed APS (by blood tests) two weeks ago. ...

suntap

•9 years ago

10 Replies

APS

Hi all I am going to hospital to day for my pr operation then go in next week for 2 operations one on my right hand carpul tunnel just had my left one done 3...

Hi all I am going to hospital to day for my pr operation then go in next week fo...

Lesley61

•9 years ago

8 Replies

APS PLUS Chronic Intervillositis of Placenta....not good

I just got my test results and found out that I have Chronic Intervillositis of Placenta-...

I just got my test results and found out that I have Chronic Intervillositis of...

MStiff

•9 years ago

8 Replies

Sun Sensitivity

Los Angeles has been in a extreme heat wave the last few weeks. I have been out in the sun the last few weekends and have slathered on 85 SPF lotion. I don't...

Los Angeles has been in a extreme heat wave the last few weeks. I have been out...

maustria

•9 years ago

6 Replies

Confused. Again.

I'm just wondering if anyone can help. I have just received a letter saying this Lymphopenia so I have Google it. Does this mean that while I'm taking hydroxy...

I'm just wondering if anyone can help. I have just received a letter saying this...

Paulie303

•9 years ago

4 Replies

Burn like welts - neck

Does anyone get burn like welts (looks like I was burned with a curling iron) all around the front of my neck? I did not change soaps, wear a new knecklace,...

Does anyone get burn like welts (looks like I was burned with a curling iron) al...

Meddlingwife

•9 years ago

2 Replies

Sheffield royal hallamshire

Hi just got a referal to go to see rheumatologist at Sheffield ...does anyone on here go to that hospital ....just wondering

Hi just got a referal to go to see rheumatologist at Sheffield ...does anyon...

stargazer5761

•9 years ago

10 Replies

Headline in todays Daily Mirror: I lost my first baby at 21 weeks - but one little pill gave me a healthy boy

This has really perturbed me, they describe exactly what happened with our baby boy whom we lost at 28 weeks before being I was diagnosed with Antiphospholipid...

This has really perturbed me, they describe exactly what happened with our baby ...

Herbs77

•9 years ago

5 Replies

Schamberg's Pigmented Purpura, any suggestions?

I was diagnosed with this in September.I'm having a flare at the moment and the red patches are REALLY itchy. The steroid cream isn't doing anything. Any...

I was diagnosed with this in September.I'm having a flare at the moment and the ...

Holley

•9 years ago

5 Replies

Wondering how common these symptoms are

Hi Everyone, I posted a few weeks ago that I received my second positive test for APS and I have not had any events such as blood clots, miscarriages, etc....

Hi Everyone, I posted a few weeks ago that I received my second positive test f...

bassetpup

•9 years ago

19 Replies

APS

Hi looking for insurance for going abroad dose any one know any cheap one can let me know please x

Hi looking for insurance for going abroad dose any one know any cheap one can le...

Lesley61

•9 years ago

8 Replies

Articles from the press

1. http://dailymail.co.ukhttp://www.dailymail.co.uk/registration/password-reset.html?resetPasswordCode=1486cafb-9a46-4f41-b171-9f663b25023f 2....

1. http://dailymail.co.ukhttp://www.dailymail.co.uk/registration/password-re...

MaryF

Administrator•9 years ago

1 Reply

Article on Boots WebMD

Hi All There's a really good article on the above website - interesting they comment on the genetic tendency of our condition as well as the more low grade...

Hi All There's a really good article on the above website - interesting they co...

Hidden

•9 years ago

1 Reply

The charity office has moved

Hi All Just to let you know that the charity office is no longer based on the Guy's Hospital campus but has moved to: The Orchard Basingstoke Hampshire RG21...

Hi All Just to let you know that the charity office is no longer based on the G...

Hidden

•9 years ago

6 Replies

Balance problems

His guys Not been on here for ages, had a lot going on i.e moving house I've been getting electric shocks down the right side of my body since April and...

His guys Not been on here for ages, had a lot going on i.e moving house I've b...

JoJo0405

•9 years ago

13 Replies

APS and Lupus

Hi everyone it's been a long time since I have been on here. I was told I had APS about 30 years ago. And finally after seeing Dr. after Dr. no one would...

Hi everyone it's been a long time since I have been on here. I was told I had A...

strawberryblonde

•9 years ago

3 Replies

Misscarriage and migraine

Hi I'm looking for any help or advice. I've had three misscariages one at 8 weeks one at ten weeks and one at 12 weeks. I have practically begged for testing...

Hi I'm looking for any help or advice. I've had three misscariages one at 8 wee...

Charlie09

•9 years ago

12 Replies

Normal levels after pregnancy?

Hi Everyone, I am wondering if anyone else has had the APS affect them during pregnancy but then their levels gradually improve afterwards? My levels seem to...

Hi Everyone, I am wondering if anyone else has had the APS affect them during p...

ema_35

•9 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2015

Thyroid UK - Results of their in depth survey:

Vanity?

Recurrent miscarriages ! 5 in a row

APS and Eyes

More Blood Work

Confusing APS diagnosis

Scroll down this link if you are in the UK, to play the TV This Morning Clip with Dr Chris Steele.

Hi

ITV This Morning

Flu Shot?

surgery and warfarin

useful article via HUGHES SYNDROME FOUNDATION

Newbie with pains

APS

APS PLUS Chronic Intervillositis of Placenta....not good

Sun Sensitivity

Confused. Again.

Burn like welts - neck

Sheffield royal hallamshire

Headline in todays Daily Mirror: I lost my first baby at 21 weeks - but one little pill gave me a healthy boy

Schamberg's Pigmented Purpura, any suggestions?

Wondering how common these symptoms are

APS

Articles from the press

Article on Boots WebMD

The charity office has moved

Balance problems

APS and Lupus

Misscarriage and migraine

Normal levels after pregnancy?

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive