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Auto immune hepatitis (AIH) and decompensated cirrhosis
Hi. Was recently diagnosed with the above. Consultant had taken me off AIH meds Nov 2019 when bloods were normal. A year later I have the above diagnosis. Now they say they will not put me back on AIH meds, it’s not the policy. Am I just being left to die or are others with this well without meds
Hi. Was recently diagnosed with the above. Consultant had taken me off AIH meds Nov 2019 when bloods were normal. A year later I have the above diagnosis. Now they say they will not put me back on AIH meds, it’s not the policy. Am I just being left to die or are others with this well without meds
CastorOyl
in
British Liver Trust
3 years ago
Azathioprine - what's the point?
I have autoimmune hepatitis (diagnosed June 2018) for which I take 75mg of Azathioprine. Yesterday I had my first fibroscan. The nurse had to do it about 3 or 4 times because something was wrong with the machine & when she was explaining this at the end I looked at the screen & saw it said 261 7.7. Dr
I have autoimmune hepatitis (diagnosed June 2018) for which I take 75mg of Azathioprine. Yesterday I had my first fibroscan. The nurse had to do it about 3 or 4 times because something was wrong with the machine & when she was explaining this at the end I looked at the screen & saw it said 261 7.7. Dr
Hidden
in
British Liver Trust
3 years ago
Severe Penis Skin Problem - HELP
Severe Penis Skin Issue for a few years now. Can someone tell me what kind of doctor I need to see? Do I need to see a urologist or Dermatologist? Also, does anyone here know of a doctor in the US in the DFW area that specializes in this? Any idea what this may be and any recommendations on something
Severe Penis Skin Issue for a few years now. Can someone tell me what kind of doctor I need to see? Do I need to see a urologist or Dermatologist? Also, does anyone here know of a doctor in the US in the DFW area that specializes in this? Any idea what this may be and any recommendations on something
Bigmanneedshelp
in
Men's Health Forum (Penis Health)
3 years ago
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Still breathing
Ex smoker (2 years quit) ex pulmonary embolism. Breathing poor but spirometry OK. What I want to know is: if you have embolism with infarction does that mean you have lost a percentage of lung function? If yes then why don't they tell you how much? Anyone know?
Ex smoker (2 years quit) ex pulmonary embolism. Breathing poor but spirometry OK. What I want to know is: if you have embolism with infarction does that mean you have lost a percentage of lung function? If yes then why don't they tell you how much? Anyone know?
bronchobob
in
Lung Conditions Community Forum
3 years ago
Cirrhosis and hair loss
Has anyone else experienced hair loss? I have a condition called Telogen Effluvium thank you Sammmi
Has anyone else experienced hair loss? I have a condition called Telogen Effluvium thank you Sammmi
Shakyamuni12
in
British Liver Trust
3 years ago
Hair loss and Abraxane
Hello I am currently having chemo for ovarian cancer. I had a reaction to paclitaxel do I am on Abraxane instead. My Doctor told me my hair wouldnt fall out and I wouldn't need the cold cap but I'm starting to see it come out at 2 weeks since the cycle. I'm just wondering if it's the start of it all
Hello I am currently having chemo for ovarian cancer. I had a reaction to paclitaxel do I am on Abraxane instead. My Doctor told me my hair wouldnt fall out and I wouldn't need the cold cap but I'm starting to see it come out at 2 weeks since the cycle. I'm just wondering if it's the start of it all
Gemma-A
in
My Ovacome
3 years ago
Budeonside advice?
Hi all! Looking for some advice, I was diagnosed with Aih last year but liver results are still elevated so docs have decided too put me on Bude, they say it has less side effects, any advice is grateful.
Hi all! Looking for some advice, I was diagnosed with Aih last year but liver results are still elevated so docs have decided too put me on Bude, they say it has less side effects, any advice is grateful.
Sweetpeesue
in
British Liver Trust
3 years ago
Functional Therapist required
My elderly friend, mentioned before, has had a private blood test done ( on my recommendation) and has folate deficiency anemia and her vitamin d is also very low. Please may I ask if anyone knows of a functional therapist, please pm me. We are in Gloucestershire, but as it would probably be a telephone
My elderly friend, mentioned before, has had a private blood test done ( on my recommendation) and has folate deficiency anemia and her vitamin d is also very low. Please may I ask if anyone knows of a functional therapist, please pm me. We are in Gloucestershire, but as it would probably be a telephone
Pastelart
in
Thyroid UK
3 years ago
New to group
Hi to all... I've just been diagnosed with pbc and autoimmune hepatitis... Its been a terrible shock and I'd love to hear from anyone in the same situation as me. Thankyou in advance feeling quite lonely at the moment although I have an amazing partner..
Hi to all... I've just been diagnosed with pbc and autoimmune hepatitis... Its been a terrible shock and I'd love to hear from anyone in the same situation as me. Thankyou in advance feeling quite lonely at the moment although I have an amazing partner..
Lagathavikings
in
PBC Foundation
3 years ago
Aspire Leflunomide
Hi all HAPPY NEW YEAR XXX Does anyone take Aspire leflunomide and noticed massive hair loss ? It’s so upsetting I’m shoving Rosemary oil on my scalp twice a day as it’s as effective as regain hair loss tonic but my losses are ridiculous Thanks x
Hi all HAPPY NEW YEAR XXX Does anyone take Aspire leflunomide and noticed massive hair loss ? It’s so upsetting I’m shoving Rosemary oil on my scalp twice a day as it’s as effective as regain hair loss tonic but my losses are ridiculous Thanks x
Hidden
in
NRAS
3 years ago
Insomnia
Hi anyone suffering with insomnia that seems to be made even worse now with ET Usual sleep products vary, zopiclone and Tesco sleep aid not always effective, lm allergic to chamomile and other sleep tea. Any tips and advice most welcome.
Hi anyone suffering with insomnia that seems to be made even worse now with ET Usual sleep products vary, zopiclone and Tesco sleep aid not always effective, lm allergic to chamomile and other sleep tea. Any tips and advice most welcome.
Hidden
in
MPN Voice
3 years ago
My nails are peeling!
My nails are going haywire! First since taking Thyroxine they were unusually strong and long, then they've all split or broken and seem to be peeling! Could it be a lack if something Im wondering and if what? Any ideas welcome!.......pS Im taking Selenium
My nails are going haywire! First since taking Thyroxine they were unusually strong and long, then they've all split or broken and seem to be peeling! Could it be a lack if something Im wondering and if what? Any ideas welcome!.......pS Im taking Selenium
Chicadee16
in
Thyroid UK
3 years ago
Pleural effusion
Hi ladies, I hope you’re all as well as can be. I’m wondering what symptoms you had with a pleural effusion. My mum was diagnosed with HGS OC stage 3A in Jan 19. Finished chemo in July 19 with a ca125 of 13. The number has bounced around as 13,11,10,15,18,17,16. The 16 was done is September 2020
Hi ladies, I hope you’re all as well as can be. I’m wondering what symptoms you had with a pleural effusion. My mum was diagnosed with HGS OC stage 3A in Jan 19. Finished chemo in July 19 with a ca125 of 13. The number has bounced around as 13,11,10,15,18,17,16. The 16 was done is September 2020
N-A-58
in
My Ovacome
4 years ago
Prolia and Celebrex
Tall Allen has occasionally noted, for example, that “A bone preserving agent (Zometa or Xgeva) coupled with Celebrex is probably a good idea too.” I believe Prolia and Xgeva are the same generic drug, and I am about to start Prolia, so I assume the same reasoning about Celebrex applies?
Tall Allen has occasionally noted, for example, that “A bone preserving agent (Zometa or Xgeva) coupled with Celebrex is probably a good idea too.” I believe Prolia and Xgeva are the same generic drug, and I am about to start Prolia, so I assume the same reasoning about Celebrex applies?
cigafred
in
Advanced Prostate Cancer
3 years ago
On going Tinnitus
The wierd thing with my Tinnitus, is I hardly notice it until I think about it or read about it I have had Tinnitus for many years, anbd only recently attempted to find a cure or some kind of method to reduce the high pictched wistle sound I bought two white noise based devices, the first was rechageable
The wierd thing with my Tinnitus, is I hardly notice it until I think about it or read about it I have had Tinnitus for many years, anbd only recently attempted to find a cure or some kind of method to reduce the high pictched wistle sound I bought two white noise based devices, the first was rechageable
gcomm
in
Tinnitus UK
3 years ago
Israeli experts show that some already widely used drugs help fight COVID-19.
I stumbled across this while searching for vaccine safety information for my wife- she has both LUPUS and antiphosopholipid syndrome. Looks like statins, Pepcid, Anti-cholesterol fibrates, and even Viagra can help tamp it down. I'm on 3 of them plus Vit D & C. Time to make a reservation at my favorite
I stumbled across this while searching for vaccine safety information for my wife- she has both LUPUS and antiphosopholipid syndrome. Looks like statins, Pepcid, Anti-cholesterol fibrates, and even Viagra can help tamp it down. I'm on 3 of them plus Vit D & C. Time to make a reservation at my favorite
V10fanatic
in
Advanced Prostate Cancer
3 years ago
Morning interactions with levothyroxine?
I recently moved up to 75mg, I used to not eat breakfast, wake up take my thyroid in the morning with my wellbutrin, 100mg caffeine, b12, fish oil and theanine. Recently I started having breakfast about 10-15 minutes after , and the same set of supplements. I feel like I am more underdosed than I was
I recently moved up to 75mg, I used to not eat breakfast, wake up take my thyroid in the morning with my wellbutrin, 100mg caffeine, b12, fish oil and theanine. Recently I started having breakfast about 10-15 minutes after , and the same set of supplements. I feel like I am more underdosed than I was
biowarrior
in
Thyroid UK
3 years ago
PD, Stroke Prevention and Recovery With Melatonin
As though dealing with PD isn't bad enough, PwP are thought to have an increased risk for stroke and a poorer outcome than non PwP, according to the following article : https://academic.oup.com/qjmed/article-abstract/112/4/269/5284930 Previously I've written about some of the health benefits
As though dealing with PD isn't bad enough, PwP are thought to have an increased risk for stroke and a poorer outcome than non PwP, according to the following article : https://academic.oup.com/qjmed/article-abstract/112/4/269/5284930 Previously I've written about some of the health benefits
chartist
in
Cure Parkinson's
3 years ago
PLEASE CONTRIBUTE TO THE FOLLOWING RESEARCH
AF Anticoagulant Medicines Research to Improve AF Patient Advice As a patient rep for Wessex AHSN and an AF Patient Support Group Coordinator, I am asking for your participation please in the following research. It is part of a collaborative project between Wessex Academic Health Science Network (WAHSN
AF Anticoagulant Medicines Research to Improve AF Patient Advice As a patient rep for Wessex AHSN and an AF Patient Support Group Coordinator, I am asking for your participation please in the following research. It is part of a collaborative project between Wessex Academic Health Science Network (WAHSN
Kempsh0tt
in
Anticoagulation Support
4 years ago
Job with MSA Patients
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
RhiMallorca
in
Multiple System Atrophy Trust
3 years ago
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