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Nees help
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
i’m a 43-year-old guy who’s been diagnosed with Parkinson’s for five years. The meds for Parkinson sort of help. I’ve tried lots and lots of things, but the thing that made me feel the very best was B12. I think I have pernicious, anemia and Parkinson’s. I also have a very low B2 levels. If I don’t
38yroldmale
in
Pernicious Anaemia Society
6 months ago
HICCUPS!
Started Costentino/Bryant B1 Protocol 6 weeks ago, using the injection method. Utterly stunned after 3 days to already feel a considerable improvement. Can this be real? Improvements continue over 4 weeks. My life has changed. Yes, Daphne is right, I felt at least 70% better. Time to up the dose to
Started Costentino/Bryant B1 Protocol 6 weeks ago, using the injection method. Utterly stunned after 3 days to already feel a considerable improvement. Can this be real? Improvements continue over 4 weeks. My life has changed. Yes, Daphne is right, I felt at least 70% better. Time to up the dose to
FoieGras
in
Cure Parkinson's
8 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
5 months ago
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non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
6 months ago
thyroid results need advice
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
had a test with medichecks and need advice on my results. TSH 0.61. Range 0.27-4.2Mu/L Free T3. Range 3.3 - 3.1-6.8 pmol/L Free thyroxine 20.5 range 12-22 pmol/L Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine. Had underactive thyroid for nearly
elwins
in
Thyroid UK
6 months ago
Addicted or not addicted
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
m1946
in
Restless Legs Syndrome
27 days ago
NKF launches educational video series for lupus, lupus nephritis
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
5 months ago
Gabapentin side effects
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
Louless9
in
Restless Legs Syndrome
28 days ago
Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Magnesium, how much and tablet/spray
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
ChilliChocolateLover
in
Restless Legs Syndrome
30 days ago
RLS Requip (the devil med) and then Gabapentin(my savior)
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
Maystamper1
in
Restless Legs Syndrome
1 month ago
methadone or buprenorphine
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
Mongolia2020
in
Restless Legs Syndrome
1 month ago
Bisoprolol again!
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
Be-still-my-heart
in
AF Association
5 months ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
1 month ago
Triggers
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
wantokporo
in
Restless Legs Syndrome
1 month ago
Best UK substitue for US Synthroid
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
SeedSensation
in
Thyroid UK
6 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
6 months ago
cirrhosis and rheumatoid arthritis
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
Rshc
in
British Liver Trust
7 months ago
Ascites Long Term
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
redlion1954
in
British Liver Trust
8 months ago
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