PBC Foundation | HealthUnlocked

What's the best advice you received when first diagnosed that you would pass along to our newer members?

What have you found to be the greatest challenge for you since diagnosis?

Anyone still keep in contact with a best friend from school?

What is your biggest fear about having PBC?

Moderating a PBC support group before for several years, I had members nearly from every state in the US. If anyone would like to share what state they are...

Do you feel anything 'positive' has come as a result of your diagnosis? What would you tell a newly diagnosed patient about being...

I'll be leaving for The International PBC Summit in Edinburgh this Friday afternoon. I will return late on April 13th. I am excited to meet some interesting...

If you knew you couldn't fail, what would you try??

Taking time for yourself is so important. We can't care for others when we've got nothing to give of ourselves. We all deserve some 'me' time'. We matter......

My question this Thursday was " what are your biggest fears having PBC?" The responses from this were, I'm sure, some things many of us had...

I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a...

About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason...

I just watched a very interesting documentary on Netflix called Hack your Health: Secrets of the Gut (or something like that). Scientists discussing the gut...

Does anyone experiences 'brain fog'? If so , how do you deal with it? Has it affected your job performance at all? Does everyone know what this is?

Diagnosed with PBC in 2018. After numerous scans doctors have found 18 mm lesion on my liver. They were going to do a biopsy but have now decided to remove...

Share with us how you've taken care of yourself mentally and/ or physically this past week. We all deserve to take time for us...no matter how small the...

Diagnosed with PBC 20 years ago which is !O3IS34zum=& well to OCA. But I have very painful legs particularly when resting . And a recent worrying symptom is...

Have you visited our on-line PBC Community Cafe yet? You can do so by registering and logging in here:...

hi I have pbc/aih and on the usual meds . Just wondering if anyone has any trouble with their joints . I am getting so much grief from my knees . Had one sore...

this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next...

Would anyone be willing to post here when there are events or meetings locally in areas of the UK? I know these are usually part of The Bear Facts. I would...

I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated....

I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and...

Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many...

Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has...

I have to be honest here... I'm wondering why so few members are asking for any advice from other members about any aspect of their PBC experiences or...

I hope each of you have a lovely day today! Easter Greetings from here in the Midwest...🐣🐇

This past weekend I did a virtual 2 day retreat on 'Food Freedom". For many years I have struggled with weight and my relationship with food. A huge part of...

The American Liver Foundation is a proud partner in the Know Your Dose campaign, which is led by the Acetaminophen Awareness Coalition. The initiative seeks...

has anyone taken milk thistle and alk phos or lft improve? are they any vitamins or supplements that have have been known to help PBC test results? thanks!