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Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
7 months ago
Travelling abroad with coeliac
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Hi Recently been diagnosed with coeliac disease and going for a European interrail trip in the summer. Probably staying in hotels 1 or 2 nights before going to a different country. Can anyone give me some advice which countries are good with gluten free foods and any practical advice. e.g. do I take
Welshtoffee
in
Gluten Free Guerrillas
4 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
4 months ago
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PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
7 months ago
Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
7 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
7 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
7 months ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
8 months ago
Cardioversion with amiodarone or straight to ablation?
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
Hallane
in
Atrial Fibrillation Support
3 months ago
Endocrinologist recommendations in/near West Sussex for Addison's / adrenals
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
JumpJiving
in
Thyroid UK
6 months ago
Commenced Bisoprolol
Hi I suffer from Paroxysmal AF. I have been taking Rivaroxaban for 2 months. I saw the cardiologist and he has started me on 2.5mg Bisoprolol daily. I took my first dose at 10am and by 2.30pm my Heart Rate had dropped to 50 bpm. My question is to others who take Bisoprolol for rhythm control and who
Hi I suffer from Paroxysmal AF. I have been taking Rivaroxaban for 2 months. I saw the cardiologist and he has started me on 2.5mg Bisoprolol daily. I took my first dose at 10am and by 2.30pm my Heart Rate had dropped to 50 bpm. My question is to others who take Bisoprolol for rhythm control and who
Cat715
in
Atrial Fibrillation Support
3 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
7 months ago
MyLupus mobile phone app aims to help patients in care decisions
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
7 months ago
Treadmill test
As an aid to diagnosing persistent chest pains - the consultant thinks they are non-cardiac but wants to investigate a bit more-I’m to be given a treadmill test in a few weeks. I asked for this instead of the more rigourous but not very pleasant “stress test”. The heart rate will be raised to 100 during
As an aid to diagnosing persistent chest pains - the consultant thinks they are non-cardiac but wants to investigate a bit more-I’m to be given a treadmill test in a few weeks. I asked for this instead of the more rigourous but not very pleasant “stress test”. The heart rate will be raised to 100 during
Samazeuilh2
in
Atrial Fibrillation Support
3 months ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
8 months ago
Low dose <5mg eliquis
I am taking Eliquis 5 mg twice a day. I get some significant bruising. I am also taking ibrutinib 140 mg which is lowest dose...blood counts are good. I was also diagnosed with afib. I'm wondering if anyone is taking less than 5 mg Eliquis twice daily and if that works? I've talked with a couple friends
I am taking Eliquis 5 mg twice a day. I get some significant bruising. I am also taking ibrutinib 140 mg which is lowest dose...blood counts are good. I was also diagnosed with afib. I'm wondering if anyone is taking less than 5 mg Eliquis twice daily and if that works? I've talked with a couple friends
Bobsterguy
in
Atrial Fibrillation Support
3 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
7 months ago
Worried about these results please help
Had this blood test done in January and had text to say book a non urgent appointment and just put it off also getting print out from docs they’ve requested a telephone consultation which I’ve eventually booked but looking at it I know the TSH is low in their opinion and obviously cholesterol too high
Had this blood test done in January and had text to say book a non urgent appointment and just put it off also getting print out from docs they’ve requested a telephone consultation which I’ve eventually booked but looking at it I know the TSH is low in their opinion and obviously cholesterol too high
Silverlady5
in
Thyroid UK
3 months ago
Arrhythmias
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Wilkie1
in
Atrial Fibrillation Support
3 months ago
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