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Hallucinations/delusions?
Hi everyone. Have any of you come across this before. My hubby ger is still taking a very low dose of sinemet even though he has PSP, and a low dose anti depressant, sertraline, plus BP meds. In the last few months he has asked me twice if I was in his bed, he is on his own in a hospital bed, and of
Hi everyone. Have any of you come across this before. My hubby ger is still taking a very low dose of sinemet even though he has PSP, and a low dose anti depressant, sertraline, plus BP meds. In the last few months he has asked me twice if I was in his bed, he is on his own in a hospital bed, and of
Duffers
in
PSP Association
8 years ago
Robin Williams
Suicide was not likely a easy decision for Robin for me it would be a hard but a possible way to end to my life when the time comes for me to leave. Not alone like Robin but with my sweet family and close friends around me. So they could remember me for who i am not the disease that has taken over my
Suicide was not likely a easy decision for Robin for me it would be a hard but a possible way to end to my life when the time comes for me to leave. Not alone like Robin but with my sweet family and close friends around me. So they could remember me for who i am not the disease that has taken over my
Bailey_Texas
in
Cure Parkinson's
8 years ago
European Parkinsons Therapy Centre ,Boario Terme Italy
Have just finished a weeks 'boot camp' and although tired from all the physical therapy,have pushed myself to limits I never thought would be possible again. Being on max dose of Mirapexin and Azelect the Nurologist recommended I start Sinemet. Thanks to my wife's research we found the centre and decided
Have just finished a weeks 'boot camp' and although tired from all the physical therapy,have pushed myself to limits I never thought would be possible again. Being on max dose of Mirapexin and Azelect the Nurologist recommended I start Sinemet. Thanks to my wife's research we found the centre and decided
Bazillion
in
Cure Parkinson's
8 years ago
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multiple sclerosis
About 8 years ago I was diagnosed with parkinson's... have been taking sinemet since that time... this med has been wearing off steadily ever since... I have a great # of markers that show me to be with MS (Multiple Sclerosis) ... extreme fatigue, legs constantly ache, constant hot flashes, a heaviness
About 8 years ago I was diagnosed with parkinson's... have been taking sinemet since that time... this med has been wearing off steadily ever since... I have a great # of markers that show me to be with MS (Multiple Sclerosis) ... extreme fatigue, legs constantly ache, constant hot flashes, a heaviness
imtigger_ca
in
My MSAA Community
8 years ago
MEDICATION NOT WORKING EFFICIENTLY
Over the last couple of weeks my meds have been taking forever to kick in and then have gone off early. I take Stalevo, Requip and half Sinemet for Parkinsons and other meds for different problems. I am beginning to wonder if these meds are working against each other. Is this possible? Last weekend
Over the last couple of weeks my meds have been taking forever to kick in and then have gone off early. I take Stalevo, Requip and half Sinemet for Parkinsons and other meds for different problems. I am beginning to wonder if these meds are working against each other. Is this possible? Last weekend
Court
in
Cure Parkinson's
8 years ago
Sinemet
Is it pronounced 'sign-met' or 'sin-met' and which syllable is the emphasis on the sine or the met? Can't find the phonetics when I google it.
Is it pronounced 'sign-met' or 'sin-met' and which syllable is the emphasis on the sine or the met? Can't find the phonetics when I google it.
TheresaCurley
in
Cure Parkinson's
8 years ago
Rasagline (azilect) and setreline (Zoloft)
I've been on Zoloft for a very long time for depression. Currently taking 100mg. I started taking Azilect three weeks ago at .5mg for the first 10 days and 1 mg since. When my Neuro prescribed Azilect and said it was a Mao-b inhibitor I reminded him I'm on Zoloft and he said not to worry that there
I've been on Zoloft for a very long time for depression. Currently taking 100mg. I started taking Azilect three weeks ago at .5mg for the first 10 days and 1 mg since. When my Neuro prescribed Azilect and said it was a Mao-b inhibitor I reminded him I'm on Zoloft and he said not to worry that there
TheresaCurley
in
Cure Parkinson's
8 years ago
Malanoma
Sinemet this is what my Dr is wanting me take for my pd symptoms witch I just found out I have. I'm early stage of pd. The problem I have is 6 years ago I was found to have stage 4 malanoma and went through a year of hell but am now 5 yrs cancer free. Now my Dr says that the problem with this drug
Sinemet this is what my Dr is wanting me take for my pd symptoms witch I just found out I have. I'm early stage of pd. The problem I have is 6 years ago I was found to have stage 4 malanoma and went through a year of hell but am now 5 yrs cancer free. Now my Dr says that the problem with this drug
nmeurett47
in
Cure Parkinson's
8 years ago
heavy head
Does anyone have heavy head when walking . I've had PD 2 years take sinemet and Pramipexole head feels like ton weight and slows me down and very giddy. Budsey
Does anyone have heavy head when walking . I've had PD 2 years take sinemet and Pramipexole head feels like ton weight and slows me down and very giddy. Budsey
budsey
in
Cure Parkinson's
8 years ago
Correct medication cocktail
Hi Everyone. It is Pat. I found the hardest part of treating PD was getting the right mix of medications taken at the right times. It took quite awhile but my Doctor and I feel we have reached that point at least for now. I take three Stalevos a day, mirapex(an-agonist) three times a day,and at
Hi Everyone. It is Pat. I found the hardest part of treating PD was getting the right mix of medications taken at the right times. It took quite awhile but my Doctor and I feel we have reached that point at least for now. I take three Stalevos a day, mirapex(an-agonist) three times a day,and at
Price69-pat_
in
Cure Parkinson's
8 years ago
Excessive daytime sleepiness
Here is what my mom is taking : Sinemet 25/100 Mg 4 times a day Sinemet 50/200 Mg early morning and nite/ . Macuna Pruriens (natural dopamine supplement) - 4 times (half teaspoon or less) as more causes major dyskinesia. She is also taking Mirapex and amantadine for Dyskinesia . Some other meds
Here is what my mom is taking : Sinemet 25/100 Mg 4 times a day Sinemet 50/200 Mg early morning and nite/ . Macuna Pruriens (natural dopamine supplement) - 4 times (half teaspoon or less) as more causes major dyskinesia. She is also taking Mirapex and amantadine for Dyskinesia . Some other meds
mymomhaspd
in
Cure Parkinson's
8 years ago
Desperate in Maine
Good Morning! I'm brand new on here. I am a 36 year old male looking to pick someone's brain about early onset parkinsons disease. I have had symptoms for quite a while (weight loss, very fatigued, tremors in my thumb and finger, dry eyes, extreme upper back/shoulder pain, insomnia, etc.) It all came
Good Morning! I'm brand new on here. I am a 36 year old male looking to pick someone's brain about early onset parkinsons disease. I have had symptoms for quite a while (weight loss, very fatigued, tremors in my thumb and finger, dry eyes, extreme upper back/shoulder pain, insomnia, etc.) It all came
Dfletcher80
in
Cure Parkinson's
8 years ago
No meds
Having seen the recent posts about the book on nutrition ( written by someone with MS) and as well, reading all the supplements, etc that various of you take, I want to ask if it is dangerous NOT to replace dopamine...will not taking sinemet or the Mucuna equivalent do more harm to the neurotransmitter
Having seen the recent posts about the book on nutrition ( written by someone with MS) and as well, reading all the supplements, etc that various of you take, I want to ask if it is dangerous NOT to replace dopamine...will not taking sinemet or the Mucuna equivalent do more harm to the neurotransmitter
Boyce3600
in
Cure Parkinson's
8 years ago
Sometimes you never know how bad you've been feeling until you start feeling better.
The Azilect and Sinemet has turned my life around. I didn't know how much I hurt until it stopped hurting. I didn't know how stiff I was until I loosened up. I didn't know how good it feels to not be depressed and actually feel happy again. At first I could not go for walks without feeling like I
The Azilect and Sinemet has turned my life around. I didn't know how much I hurt until it stopped hurting. I didn't know how stiff I was until I loosened up. I didn't know how good it feels to not be depressed and actually feel happy again. At first I could not go for walks without feeling like I
TheresaCurley
in
Cure Parkinson's
8 years ago
Sinemet
Sinemet made my stiffness and dystonia (that thing that makes you feel like you're going to push your foot out of the bottom of your shoe) worse. Shall this, too, pass? Or am I taking too much of a good thing?
Sinemet made my stiffness and dystonia (that thing that makes you feel like you're going to push your foot out of the bottom of your shoe) worse. Shall this, too, pass? Or am I taking too much of a good thing?
Beckey
in
Cure Parkinson's
8 years ago
Placebo effect or medication effect?
I've been taking Sinemet for almost a month now and Azilect for a week, and my symptoms are much improved. My Neurologist gave me a tentative diagnosis of having Parkinson Disease. How do I know if it is not a placebo effect that I'm having? Stopping the meds would not answer the question because
I've been taking Sinemet for almost a month now and Azilect for a week, and my symptoms are much improved. My Neurologist gave me a tentative diagnosis of having Parkinson Disease. How do I know if it is not a placebo effect that I'm having? Stopping the meds would not answer the question because
TheresaCurley
in
Cure Parkinson's
8 years ago
mucana capsule dosage
i have had PD for about 16 years. I have never been on Sinemet, except for a couple weeks. I am now on 100 mg of Mirapex 3X A DAY AND AMANTADINE 100mg. 3 X a day. I would like to try taking Mucuna capsules. I have one bottle of Mucuna distributed by Himalaya from India. The label says...organic velvet
i have had PD for about 16 years. I have never been on Sinemet, except for a couple weeks. I am now on 100 mg of Mirapex 3X A DAY AND AMANTADINE 100mg. 3 X a day. I would like to try taking Mucuna capsules. I have one bottle of Mucuna distributed by Himalaya from India. The label says...organic velvet
maryalice
in
Cure Parkinson's
8 years ago
bradykinesia?
Has your medication helped with general slowness? I noticed a slowness in moving (I believe that is bradykinesia?) before I was diagnosed. Now that I'm taking Sinemet it seems to have improved greatly. Sometimes I think my mind (not my brain) is fooling me into believing what I want to believe.
Has your medication helped with general slowness? I noticed a slowness in moving (I believe that is bradykinesia?) before I was diagnosed. Now that I'm taking Sinemet it seems to have improved greatly. Sometimes I think my mind (not my brain) is fooling me into believing what I want to believe.
TheresaCurley
in
Cure Parkinson's
8 years ago
Comtan increasing off times
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Dylpup
in
Cure Parkinson's
8 years ago
New PSP Diagnosis
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Babowen898
in
PSP Association
8 years ago
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