PSP Association | HealthUnlocked

Hi all, I am wondering if anyone has had any success with securing or appealing CHC funding under the Surrey heartlands ICB? My dad's assessment was in March...

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Our hearts are broken as our dad passed away on April 15th. We wanted to summarise his journey and symptoms to hopefully help others and to also raise...

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then dizzyness that won't stop. Now I walk with a rollator which I have used for 2...

My beautiful Ben passed away on Monday and is now free of this terrible disease. My heartfelt thanks to everyone who contributes to this site. My partner died...

Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her...

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

I have seen few articles about relaxing muscle around the eyes area for psp patients with affected eyes problems, Any experience from anyone will be helpful,...

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone else experienced this and if so what have you done to resolve issue?...

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a...

Is anyone watching This Morning with the Salt Path couple?!

Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now...

A few years ago, one kind member here sent me a memory aid alarm clock. Mum no longer needs this. Happy to post in UK if it could be of use to someone...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

my mum will be visiting a speech therapist tomorrow, what are the areas you suggest the speech therapist should focus on? What questions do you think will be...

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Royal Navy football/rugby player fall, loose the use of his right hand and leg,...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

Our lovely, independent and previously very active mum, Chris, was diagnosed with CBD on 16th April 2024. Her symptoms started out over 3 years ago with loss...

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

Hi everyone, I just wanted to give an updat on the London Marathon. As many of you know, I posted in here that I was doing it for the PSPA, and quite a few of...

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

I would like to share information about this book, as so little is written about this horrible disease. The author's husband was diagnosed with...

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much gone apart from the very occasional word, he’s now in a wheelchair and is...

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

Not only has mum got psp ,been to the hospital today only be told by the heart specialist that she has severe heart failure as well .I know she is 86 years of...