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Interstitial lung disease (ILD)
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Anyone been diagnosed with Interstitial Lung Disease
Today I received a CT report that says I may have
Interstitial
Lung
Disease
. I have been researching to see the connection between PMR and that disease. The prognosis is not favorable. Has anyone else been diagnosed with this disease? Thanks for any help.
Today I received a CT report that says I may have
Interstitial
Lung
Disease
. I have been researching to see the connection between PMR and that disease. The prognosis is not favorable. Has anyone else been diagnosed with this disease? Thanks for any help.
singingloud
in
PMRGCAuk
18 days ago
oxygen on flights
Hi I have
interstitial
lung
disease
and have some lung removed due to lung cancer. However I do not need oxygen or inhaler(lung stats of 52 pev) and am generally well. However my rheumatologist has suggested that the cabin pressure might cause me an issue when flying.
Hi I have
interstitial
lung
disease
and have some lung removed due to lung cancer. However I do not need oxygen or inhaler(lung stats of 52 pev) and am generally well. However my rheumatologist has suggested that the cabin pressure might cause me an issue when flying.
Lovemydogs1
in
Lung Conditions Community Forum
3 months ago
Hydroxycarbamide and lungs
I was surprised to read that this medicine can cause
interstitial
lung
disease
such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases with stop you from communicating freely. Any comments? Jumbo4
I was surprised to read that this medicine can cause
interstitial
lung
disease
such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases with stop you from communicating freely. Any comments? Jumbo4
Zeigler
in
MPN Voice
5 months ago
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Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?
Has anyone else been prescribed it for reasons other than
interstitial
lung
disease
?
Has anyone else been prescribed it for reasons other than
interstitial
lung
disease
?
lynntregaron
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
oxygen on flight advice sought
I have
interstitial
lung
disease
and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would like to fly short haul later in the year. My rheumatologist has suggested I may struggle with cabin pressure.
I have
interstitial
lung
disease
and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would like to fly short haul later in the year. My rheumatologist has suggested I may struggle with cabin pressure.
Lovemydogs1
in
LUPUS UK
3 months ago
Appointments
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific
interstitial
lung
pneumonitis /hypersensitivity spectrum
interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific
interstitial
lung
pneumonitis /hypersensitivity spectrum
interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
ProudYorky
in
Living with Interstitial Lung Disease (ILD)
3 months ago
PMR and Parkinson's Disease
I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced
interstitial
lung
disease
(now resolved). Current situation: My GP suspects I now also have Parkinson’s Disease (PD). I saw the Neurologist on Friday.
I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced
interstitial
lung
disease
(now resolved). Current situation: My GP suspects I now also have Parkinson’s Disease (PD). I saw the Neurologist on Friday.
JanetRosslyn
in
PMRGCAuk
6 months ago
Bands pulmonary fibrosis tomography
x-ray and linear opacities appeared, the diagnosis was
interstitial
lung
disease
, post-covid 19 sequelae, I was not given any treatment, now I started having breathing difficulties again, the pulse oximeter shows spo2 97-98%, it doesn't matter if I make an effort or sit, I have difficulties.
x-ray and linear opacities appeared, the diagnosis was
interstitial
lung
disease
, post-covid 19 sequelae, I was not given any treatment, now I started having breathing difficulties again, the pulse oximeter shows spo2 97-98%, it doesn't matter if I make an effort or sit, I have difficulties.
Petre84
in
Lung Conditions Community Forum
5 months ago
Methotrexate-induced lung disease
Towards the end of last year I was hospitalised for about a week with a dry cough/breathlessness that turned out to be Methotrexate-induced
Interstitial
Lung
Disease
(previous posts - cough cough cough). The MTX was stopped immediately but I was warned the damage may be permanent.
Towards the end of last year I was hospitalised for about a week with a dry cough/breathlessness that turned out to be Methotrexate-induced
Interstitial
Lung
Disease
(previous posts - cough cough cough). The MTX was stopped immediately but I was warned the damage may be permanent.
JanetRosslyn
in
PMRGCAuk
8 months ago
Feel like giving up.
A shadow area was found on my
lung
with suspected
interstitial
lung
disease
( possibly RA related) , breathing tests and CT Scan ordered, which I had in January.
A shadow area was found on my
lung
with suspected
interstitial
lung
disease
( possibly RA related) , breathing tests and CT Scan ordered, which I had in January.
3LittleBirds2
in
NRAS
2 months ago
#AskChatGPT - Top ADC Treatment for prostate cancer
The median duration of response was 4.4 months, with notable toxicities including
interstitial
lung
disease
and cytopenia (https://www.onclive.com/view/adcs-novel-targets-represent-next-wave-of-treatment-advances-in-mcrpc).
The median duration of response was 4.4 months, with notable toxicities including
interstitial
lung
disease
and cytopenia (https://www.onclive.com/view/adcs-novel-targets-represent-next-wave-of-treatment-advances-in-mcrpc).
God_Loves_Me
in
Advanced Prostate Cancer
6 days ago
Rituximab...
Fast forward 6 months later and I now have RA
Interstitial
Lung
Disease
and the treatment for this is Rituximab, my lung specialist has said abatacept doesn't work on the lungs and Rituximab is their go to for ILD.
Fast forward 6 months later and I now have RA
Interstitial
Lung
Disease
and the treatment for this is Rituximab, my lung specialist has said abatacept doesn't work on the lungs and Rituximab is their go to for ILD.
RAat13
in
NRAS
1 year ago
SSc-related bronchiectasis
Does anyone know if you can have both bronchiectasis (which I've been diagnosed with) and
interstitial
lung
disease
(which I haven't)?
Does anyone know if you can have both bronchiectasis (which I've been diagnosed with) and
interstitial
lung
disease
(which I haven't)?
volvox45
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
ILD and pulmonary hypertension caused by sjogrens
sjogrens and
lung
disease
. I have alveolitis, asthma and now
interstitial
lung
disease
(ILD). My doc has now diagnosed pulmonary hypertension. My doc can find no cause for this. They did a bronchoscopy and my lungs were so inflamed they couldn’t take a sample for fear my lung would collapse.
sjogrens and
lung
disease
. I have alveolitis, asthma and now
interstitial
lung
disease
(ILD). My doc has now diagnosed pulmonary hypertension. My doc can find no cause for this. They did a bronchoscopy and my lungs were so inflamed they couldn’t take a sample for fear my lung would collapse.
Xxxxxxx
in
The Australian Sjögren's Syndrome Association
1 year ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
I have just been diagnosed with overlap autoimmune
disease
- systemic sclerosis/myositis - symptoms include raynauds,
interstitial
lung
disease
, (ILD), thickened fingers with pain and stiffness, achy thighs and upper arms.
I have just been diagnosed with overlap autoimmune
disease
- systemic sclerosis/myositis - symptoms include raynauds,
interstitial
lung
disease
, (ILD), thickened fingers with pain and stiffness, achy thighs and upper arms.
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Please join us Tuesday,May 21st, for our Living Room discussion on Is a Clinical Trial Right for You?
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Michelezeh
Partner
in
Lung Cancer Support
2 days ago
New approval for treatment of Small Cell Lung Cancer (SCLC)
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
Miranda_GO2
Partner
in
Lung Cancer Support
3 days ago
Lung cancer stage 4
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
younginmind
in
Lung Conditions Community Forum
7 days ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
9 days ago
Please join INHERIT Study
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Miranda_GO2
Partner
in
Lung Cancer Support
28 days ago
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