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Interstitial lung disease (ILD)
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What were your first symptoms?
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
WitchingHour2point0
in
NRAS
2 months ago
Help and advice for mum
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
PerpetuallySad
in
British Liver Trust
6 months ago
Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
6 months ago
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Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
6 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
2 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
2 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
2 months ago
Blood test Results AST/GGT
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Hi all.I have a history of pancreatitis and liver issues. I did a private blood test in the week and it's come back that my AST and GGT are both high. GGT is worse. Should I be concerned? I'm going to ring my GP tomorrow for another blood test but wondering if I should go to A+E? I'm in pain and managing
Koswecan
in
British Liver Trust
6 months ago
liver transplant : build up
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
hi everyone I’m really in need of some support. I’m 37 and have liver failure . I went to see my consultant in Belfast a few weeks ago and was my doctor when I attended Antrim hospital hospital. She was extremely direct and blunt with myself. She said my score is is high but didn’t tell me the range.
Meanies
in
British Liver Trust
6 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
2 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
2 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
2 months ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
2 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
2 months ago
PSA of <0.1 undetectable?
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
I am on ADT, lupron and Zytiga, at Kaiser Oakland. My latest PSA came back as <0.1. My MO sent me a message with the results: "congratulations, great news, your PSA is undetectable!" I thought undetectable was 0.01, is it more likely she misread the number or that the lab used by Kaiser only reports
pj1121
in
Advanced Prostate Cancer
6 months ago
B1 therapy side effects
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
Hi, I am 55 years old male diagnosed with PD about 5 years ago. Started B1 therapy couple of days ago in consultation with my Neurologist. He suggested 100 mg Thiamine oral tablets 3 times a day for 10 days and taper down after 10 days. However severe side effects like feverish, body aches, headache
ashok200
in
Cure Parkinson's
6 months ago
Can i take vacation when already 5 years PSA < 0.01
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Cancer of the prostate and pelvic lymph nodes found with PET 1, MRI, biopsy, PSA=100. - After 6 cycles of chemotherapy with docetaxel and ADT-ELIGARD with PET 2 and PET 3 show a rapid decrease in the size of the lymph nodes and their emission of SUV, as well as the disappearance of several of them
Vasili
in
Advanced Prostate Cancer
6 months ago
SPECT scan horror
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
spencoid2
in
Advanced Prostate Cancer
6 months ago
The ups and downs of our rollercoaster OC journeys
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
Jholly4
in
My Ovacome
6 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
2 months ago
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