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4 months and no answers!
Heads up: this is a vent post about how much this SUCKS! OK, so the story is, I’ve been off work for the past 4 months with exertional breathlessness and no cause. They know my heart is involved, but every single cardiac test (stress test, CPCA, halter, PET/CT, cardiac MRI) has come back normal. CPET
Heads up: this is a vent post about how much this SUCKS! OK, so the story is, I’ve been off work for the past 4 months with exertional breathlessness and no cause. They know my heart is involved, but every single cardiac test (stress test, CPCA, halter, PET/CT, cardiac MRI) has come back normal. CPET
MusicalFurbaby
in
LUPUS UK
2 years ago
Covid prior to ivf
I tested positive for covid last Friday, but negative both Saturday and today. I’m due to start stims either tomorrow or Tuesday. I was barely ill- I had a cough for a day and that was it. We think it’s likely my partner had it as well, he was even less symptomatic, just a scratchy throat for 24hrs at
I tested positive for covid last Friday, but negative both Saturday and today. I’m due to start stims either tomorrow or Tuesday. I was barely ill- I had a cough for a day and that was it. We think it’s likely my partner had it as well, he was even less symptomatic, just a scratchy throat for 24hrs at
NemoFish
in
Fertility Network UK
2 years ago
PROTECTION FROM COVID WITH EVUSHELD??
I have not been on this site for a while, but wanted to share some interesting information with you. I have been in a random trial (arm 1; I/O) at Mayo’s for over 3 years (started April 2019). I am in the high risk category being IgVH unmutated, 11del, and having trisomy 12. My blood picture became
I have not been on this site for a while, but wanted to share some interesting information with you. I have been in a random trial (arm 1; I/O) at Mayo’s for over 3 years (started April 2019). I am in the high risk category being IgVH unmutated, 11del, and having trisomy 12. My blood picture became
Varney
in
CLL Support
2 years ago
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My family smells when i make the slightest progress and ruins it
I was just stabilizing myself with a lot of effort and grandpa called and ruined it all. He said dad, stepmother and the kid have covid and first i hate to be talked about them, second he sees them as family, third mom wants to go to her mom and what if she and sis are infected. But how to tell her
I was just stabilizing myself with a lot of effort and grandpa called and ruined it all. He said dad, stepmother and the kid have covid and first i hate to be talked about them, second he sees them as family, third mom wants to go to her mom and what if she and sis are infected. But how to tell her
Against_the_current
in
Anxiety and Depression Support
2 years ago
Effect of Covid on AF
I am now recovering ( tested positive 7 days ago) from a nasty bout with Covid . I am finding that my heart rhythm is all over the place. Had an ablation in December and have been largely but not entirely in NSR for a while. I am now either tachycardic, unclassified or possible AF according to my kardia
I am now recovering ( tested positive 7 days ago) from a nasty bout with Covid . I am finding that my heart rhythm is all over the place. Had an ablation in December and have been largely but not entirely in NSR for a while. I am now either tachycardic, unclassified or possible AF according to my kardia
BriontePip
in
AF Association
2 years ago
Seems a long time
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
My husband was diagnosed with Right upper lobe T3 N0 M0 non-small cell lung cancer in June 2021. Because he also has COPD they said they couldn’t operate so he was given 20 sessions of radiotherapy in October 2021. Since then he hasn’t seen his oncologist at all, just a phone call every 12 weeks. He
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
partner has covid :(
my partner has just tested positive and I am 6 weeks pregnant.... Has anyone got covid at this stage of pregnancy and been ok? I am hiding from him as much as I can.....
my partner has just tested positive and I am 6 weeks pregnant.... Has anyone got covid at this stage of pregnancy and been ok? I am hiding from him as much as I can.....
Hidden
in
Fertility Network UK - Pregnancy Support
2 years ago
Has anyone taken Paxlovid and PD Meds?
I may have been exposed to COVID and can’t find anything specific about interactions between Paxlovid and Carbidopa/levodopa (sinemet). I’m not sure I will take it even if I do come down with COVID, but I’m trying to be proactive.
I may have been exposed to COVID and can’t find anything specific about interactions between Paxlovid and Carbidopa/levodopa (sinemet). I’m not sure I will take it even if I do come down with COVID, but I’m trying to be proactive.
Juliegrace
in
Cure Parkinson's
2 years ago
Slow COVID recovery -- anti-inflammatory: berberine, anthocyanin, or?
It's been nearly four weeks since the whole family (and a few friends) all tested positive within a day or two of each other. Nothing severe for any of us. We all had "the usual" few days of fever, fatigue, body aches, cough, etc. But I'm the only one feeling lingering effects that include: weakness
It's been nearly four weeks since the whole family (and a few friends) all tested positive within a day or two of each other. Nothing severe for any of us. We all had "the usual" few days of fever, fatigue, body aches, cough, etc. But I'm the only one feeling lingering effects that include: weakness
noahware
in
Advanced Prostate Cancer
2 years ago
Update on Insurance Claim - Staysure
Remember this post about a fortnight ago? Hi Beaver. I am insured with Staysure and had to make a claim when we had to return from Scotland due to testing positive for Covid. I am CEV so had to return for Covid Antibody treatment and of course the moral issue. I made a claim the day after (June 23rd
Remember this post about a fortnight ago? Hi Beaver. I am insured with Staysure and had to make a claim when we had to return from Scotland due to testing positive for Covid. I am CEV so had to return for Covid Antibody treatment and of course the moral issue. I made a claim the day after (June 23rd
Investigator1
in
Vasculitis UK
2 years ago
Treatments for Covid - NHS
https://www.nhs.uk/conditions/
coronavirus
-covid-19/self-care-and-treatments-for-
coronavirus
/treatments-for-
coronavirus
/ Best, Yuck
https://www.nhs.uk/conditions/
coronavirus
-covid-19/self-care-and-treatments-for-
coronavirus
/treatments-for-
coronavirus
/ Best, Yuck
Yuck
in
CLL Support
2 years ago
shingles and Covid at the same time
so I’ve been really stressed with work, a horrible accident my nephew was in, and just over all everything. So I’m not surprised I got shingles I am surprised I got Covid. I work in health care but I’m super careful and had 0 symptoms. I’m just wondering how hard this will hit my liver. I’m on Valtrex
so I’ve been really stressed with work, a horrible accident my nephew was in, and just over all everything. So I’m not surprised I got shingles I am surprised I got Covid. I work in health care but I’m super careful and had 0 symptoms. I’m just wondering how hard this will hit my liver. I’m on Valtrex
mtk0925
in
British Liver Trust
2 years ago
5k Runniversary update
Firstly, I would like to thank everyone who replied to my previous post regarding my 5k Runniversary. The response was very positive and only goes to show how good this community is. It gives people great encouragement spurs everyone on as a result. Just a bit of an update from my 10k run last Monday
Firstly, I would like to thank everyone who replied to my previous post regarding my 5k Runniversary. The response was very positive and only goes to show how good this community is. It gives people great encouragement spurs everyone on as a result. Just a bit of an update from my 10k run last Monday
Freecloud
Graduate
in
Couch to 5K
2 years ago
I have covid, can I have my laparoscopy next month?
hi guys, I have tested positive for covid for the second time as of today, and I’m worried about the implications on my planned laparoscopy. My pre op appointment is on the 13th of August (15 days away) and my surgery is scheduled for the 22nd (24 days away). I’m not sure what to do! Is it safe for me
hi guys, I have tested positive for covid for the second time as of today, and I’m worried about the implications on my planned laparoscopy. My pre op appointment is on the 13th of August (15 days away) and my surgery is scheduled for the 22nd (24 days away). I’m not sure what to do! Is it safe for me
Coco1860
in
Endometriosis UK
2 years ago
An antibody for myelofibrosis – “that’s a true discovery”
Recently, one of our MATES members showed me this (extract) article (MiaGrace), & I believe that many others might wish to see it too... A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
Recently, one of our MATES members showed me this (extract) article (MiaGrace), & I believe that many others might wish to see it too... A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
socrates_8
in
MPN Voice
2 years ago
RLS improved after covid?
I've had RLS for years and have been on Ropinirole for several years. 3 Weeks ago, I tested positive for Covid. I had mild symptoms - a sore throat, cough, slight wheeziness and fatigue. Other than ongoing tiredness and a cough - pretty common - I'm over it and have had 2 negative tests. The thing
I've had RLS for years and have been on Ropinirole for several years. 3 Weeks ago, I tested positive for Covid. I had mild symptoms - a sore throat, cough, slight wheeziness and fatigue. Other than ongoing tiredness and a cough - pretty common - I'm over it and have had 2 negative tests. The thing
Mattly
in
Restless Legs Syndrome
2 years ago
Husband beginning V+O treatment for unmutated CLL
My husband will be beginning the combo Ventaclax and Obinutuzumab for unmutated CLL which will continue for 1 year. We would love any helpful advice about how this treatment affects most people, and how folks are coping in an unmasked COVID world. Are patients staying in a bubble for the entire year
My husband will be beginning the combo Ventaclax and Obinutuzumab for unmutated CLL which will continue for 1 year. We would love any helpful advice about how this treatment affects most people, and how folks are coping in an unmasked COVID world. Are patients staying in a bubble for the entire year
lisakc1
in
CLL Support
2 years ago
does having covid recently stop treatment from starting?
so I had a reactivation of EPstein Barr Virus in May that caused a Monk infection so we put off treatment until I see my doc again next week. To give me time to resolve it. Then , on July 3rd I got Covid and am still with many symptoms. I did have the monoclonal antibodies, but everything is lingering
so I had a reactivation of EPstein Barr Virus in May that caused a Monk infection so we put off treatment until I see my doc again next week. To give me time to resolve it. Then , on July 3rd I got Covid and am still with many symptoms. I did have the monoclonal antibodies, but everything is lingering
WittyApricot
in
CLL Support
2 years ago
sudden onset of fibromyalgia. Is it possible ?
I would like to know if anyone experienced a sudden onset of fibromyalgia. In June 2021 I caught covid (delta variant) and the virus caused me afib (atrial fibrillation) but i was misdiagnosed for many months due to cardiologists' mistakes. At the end of December 2021 unfortunately i got covid again
I would like to know if anyone experienced a sudden onset of fibromyalgia. In June 2021 I caught covid (delta variant) and the virus caused me afib (atrial fibrillation) but i was misdiagnosed for many months due to cardiologists' mistakes. At the end of December 2021 unfortunately i got covid again
JoseT
in
Fibromyalgia Action UK
2 years ago
Covid and Prednisolone
Hi I am recovering from Covid It got.me for my birthday!! One day up one day down but improving so that's good.I increased my pred by 5mg to 10mg.Dr said to increase for a week.He wanted me to increase to 25mg but I thought I would see how I went.Will it be OK to drop straight back to 5mg when I am
Hi I am recovering from Covid It got.me for my birthday!! One day up one day down but improving so that's good.I increased my pred by 5mg to 10mg.Dr said to increase for a week.He wanted me to increase to 25mg but I thought I would see how I went.Will it be OK to drop straight back to 5mg when I am
Raewynne
in
PMRGCAuk
2 years ago
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