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Denied Covid-19 Vaccination
01/05/2023 - Received NHS email to book Spring Covid-19 Vaccination 25/05/2023 - Attended 4pm appointment at our own GP surgery with Husband who has Rituximab IV infusions + DMARDS for his RA (he is immunocompromised). I have SLE (Lupus). ~ On entering treatment room we were met with, “Neither of
01/05/2023 - Received NHS email to book Spring Covid-19 Vaccination 25/05/2023 - Attended 4pm appointment at our own GP surgery with Husband who has Rituximab IV infusions + DMARDS for his RA (he is immunocompromised). I have SLE (Lupus). ~ On entering treatment room we were met with, “Neither of
Turquoise-1
in
LUPUS UK
1 year ago
Post covid secretions
My husband spent two months in icu during the first wave of covid from December 2020. He was in a coma for 3 weeks of that. We are forever grateful that he managed to come back to us and has made a huge recovery at home. He still struggles with very large and sticky secretions on a daily basis. We initially
My husband spent two months in icu during the first wave of covid from December 2020. He was in a coma for 3 weeks of that. We are forever grateful that he managed to come back to us and has made a huge recovery at home. He still struggles with very large and sticky secretions on a daily basis. We initially
Lauralou412
in
ICUsteps
1 year ago
Covid and RA pain
I'm recovering from Covid. I didn't get an antiviral and to be honest didn't really need it. I'd had an MTX jab (my first - moving from oral) the day before symptoms started. I stopped taking Sulphazalasine partly because I thought it may be wise but mostly because I didn't feel up to taking them. What
I'm recovering from Covid. I didn't get an antiviral and to be honest didn't really need it. I'd had an MTX jab (my first - moving from oral) the day before symptoms started. I stopped taking Sulphazalasine partly because I thought it may be wise but mostly because I didn't feel up to taking them. What
Gottarelax
in
NRAS
1 year ago
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weight
HI I have just joined this group in the hope that it will help me achieve my weight loss goals. I feel like I need to be able to chat with people who are going through the same as me and who will understand my struggles without any judgement. I am in a really down phase at the moment and am struggling
HI I have just joined this group in the hope that it will help me achieve my weight loss goals. I feel like I need to be able to chat with people who are going through the same as me and who will understand my struggles without any judgement. I am in a really down phase at the moment and am struggling
Emuna
in
Weight Loss Support
1 year ago
Paxlovid or not?
Hi, sorry for another covid post but I’d value your thoughts… My question: Anyone out there with CLL had covid recently and not used antivirals and recovered ok? Background: I’m down with covid for the third time in 18months… the first time (Feb 22) I wasn’t yet diagnosed with CLL and rode it
Hi, sorry for another covid post but I’d value your thoughts… My question: Anyone out there with CLL had covid recently and not used antivirals and recovered ok? Background: I’m down with covid for the third time in 18months… the first time (Feb 22) I wasn’t yet diagnosed with CLL and rode it
Courage_Love_Legacy
in
CLL Support
1 year ago
covid
hi guys I’ve got covid I’m taking anti viral I’m very sore day two any advice
hi guys I’ve got covid I’m taking anti viral I’m very sore day two any advice
581959
in
CLL Support
1 year ago
Latest Endo visit.... bit weird 😕 When all seems lost just say NO 😉
Started with being told I would have to drop my dose as not happy with TSH 0.05 talked all about this (T4 48% T3 95%) risk of heart and bone damage blah blah..... I pointed out that we had tried that before and it didn't go well for me... threatened to cut me loose if I didn't reduce! Continued to bang
Started with being told I would have to drop my dose as not happy with TSH 0.05 talked all about this (T4 48% T3 95%) risk of heart and bone damage blah blah..... I pointed out that we had tried that before and it didn't go well for me... threatened to cut me loose if I didn't reduce! Continued to bang
TiggerMe
in
Thyroid UK
1 year ago
Still waiting for over 3 weeks for urgent appointment
3 weeks ago, after several hours in A&E, I was told that I need an urgent appointment with my cardiologist. At that time, I was also just about to complete an urgent 7 day holter test. I rang my cardiologist's secretary on the next working day to request an emergency appointment as instructed to do by
3 weeks ago, after several hours in A&E, I was told that I need an urgent appointment with my cardiologist. At that time, I was also just about to complete an urgent 7 day holter test. I rang my cardiologist's secretary on the next working day to request an emergency appointment as instructed to do by
Norfolk_spaniel
in
AF Association
1 year ago
covid (any benefit to azithromycin)
I posted at the weekend about hoping to secure anti virals as I had a significant exposure to covid. As expected I did get covid & feel very ill now. As also expected it’s unlikely I’ll get Paxlovid, despite some strong words with my less than competent GP. She has sent across a script for Azithromycin
I posted at the weekend about hoping to secure anti virals as I had a significant exposure to covid. As expected I did get covid & feel very ill now. As also expected it’s unlikely I’ll get Paxlovid, despite some strong words with my less than competent GP. She has sent across a script for Azithromycin
PW_R
in
Lung Conditions Community Forum
1 year ago
Covid Antivirals
I know some people are eligible for these. I’ve been exposed to covid and I’m pretty sure I’m about to get it, ironically for the first time also. I don’t have copd but fairly full on chronic bronchitis. I’m concerned that it’l be a rough dose . Whats the criteria for getting antivirals for covid?
I know some people are eligible for these. I’ve been exposed to covid and I’m pretty sure I’m about to get it, ironically for the first time also. I don’t have copd but fairly full on chronic bronchitis. I’m concerned that it’l be a rough dose . Whats the criteria for getting antivirals for covid?
PW_R
in
Lung Conditions Community Forum
1 year ago
Further COVID boosters
I suspect I know the answer to my question but the collective is usually very sensible To date I have had 4 COVID jabs, the system is quite persistent in wanting me to have further boosters but I have basically been forgetting to book one. However we have a trip booked to Nepal in September which
I suspect I know the answer to my question but the collective is usually very sensible To date I have had 4 COVID jabs, the system is quite persistent in wanting me to have further boosters but I have basically been forgetting to book one. However we have a trip booked to Nepal in September which
Billiebobdog
in
PMRGCAuk
1 year ago
blood tests
So I had my blood results back and the long and the short of it is that I have certain antibodies which means I have an autoimmune disease -an antisynthetase syndrome which has lung disease and skin problems,arthritis as part of it . I don’t have muscle weakness, or raynaulds or sun sensitivity but must
So I had my blood results back and the long and the short of it is that I have certain antibodies which means I have an autoimmune disease -an antisynthetase syndrome which has lung disease and skin problems,arthritis as part of it . I don’t have muscle weakness, or raynaulds or sun sensitivity but must
Bronte007
in
Lung Conditions Community Forum
1 year ago
Covid vaccine and histadine connection
Some time ago I saw a post about Covid vaccine containing histadine, it gave two web sites, unfortnately I didn't note them thinking I would be able to find it again. I have had bad reactions to my covid vaccines and boosters, such that I didn't have the last booster, but have now been invited to the
Some time ago I saw a post about Covid vaccine containing histadine, it gave two web sites, unfortnately I didn't note them thinking I would be able to find it again. I have had bad reactions to my covid vaccines and boosters, such that I didn't have the last booster, but have now been invited to the
Watamu
in
Thyroid UK
1 year ago
covid jab?
i have just had a text from nhs to have the latest covid injection, i have had all the covid injections up to now and not sure i want another one! recently had shingles jab too! has anyone else had the latest one.
i have just had a text from nhs to have the latest covid injection, i have had all the covid injections up to now and not sure i want another one! recently had shingles jab too! has anyone else had the latest one.
Seashoreshanty
in
NRAS
1 year ago
Flying, Covid & Bronchiectasis - Your tips/thoughts
Hi, again. Thank you all for being so responsive and lovely with my previous posts. **I was wondering about Broncheictasis and Covid. I have multiple other issues, like heart disease post cancer radiation and previous cancers, I also have no spleen, so I feel quite vulnerable. I'm still shielding from
Hi, again. Thank you all for being so responsive and lovely with my previous posts. **I was wondering about Broncheictasis and Covid. I have multiple other issues, like heart disease post cancer radiation and previous cancers, I also have no spleen, so I feel quite vulnerable. I'm still shielding from
Yess1e
in
Bronchiectasis Support
1 year ago
7th Covid
Have just had 7th Covid and really feel awful the fatigue which I suffer every day is unbelievable. Also have bad headache feel nauseous and stomache turning over. Hopefully will be back to normal soon think this will be my last jab X
Have just had 7th Covid and really feel awful the fatigue which I suffer every day is unbelievable. Also have bad headache feel nauseous and stomache turning over. Hopefully will be back to normal soon think this will be my last jab X
mia20
in
CLL Support
1 year ago
COVID booster
Has anybody had their booster this spring for COVID I don’t know what brand it is and also I’m not sure if I can have this particular one while I’m having immunotherapy can anybody help ? I’ve messaged my surgery to ask if I can have it and had no answer as yet.
Has anybody had their booster this spring for COVID I don’t know what brand it is and also I’m not sure if I can have this particular one while I’m having immunotherapy can anybody help ? I’ve messaged my surgery to ask if I can have it and had no answer as yet.
Cosmic54
in
The Roy Castle Lung Cancer Foundation
1 year ago
Recently of Prednisolone. But still aches & Pains.
diagnosed with PMRA September 21. Reduced by 1mg per month. Had Covid February this year only in bed three days no temperature, tiny cough just felt sleepy. Last two doses I reduced Pred by a half mg per month. Came off Pred. late March 23. I have early morning difficulty in walking but this gets
diagnosed with PMRA September 21. Reduced by 1mg per month. Had Covid February this year only in bed three days no temperature, tiny cough just felt sleepy. Last two doses I reduced Pred by a half mg per month. Came off Pred. late March 23. I have early morning difficulty in walking but this gets
Fetlar73
in
PMRGCAuk
1 year ago
CLL in treatment and possible long Covid and managing isolation
My 74 year old husband has CLL and is on treatment consisting of Obinutuzumab infusions (just completed) and Venetoclax. He got Covid for the second time in January 2023, took Paxlovid, and it resolved without too much complication. He then had the "Paxlovid rebound." He recovered from that pretty well
My 74 year old husband has CLL and is on treatment consisting of Obinutuzumab infusions (just completed) and Venetoclax. He got Covid for the second time in January 2023, took Paxlovid, and it resolved without too much complication. He then had the "Paxlovid rebound." He recovered from that pretty well
keikikumu
in
CLL Support
1 year ago
White Paper recommends steps to improve the care and support of people with Chronic Lymphocytic Leukemia who face immune challenges
[i]". . . despite advances in therapy, infection remains a major risk in CLL and is a key challenge in CLL management. People with CLL face varied immune challenges – in addition to infections – along the patient pathway, which form a major part of managing day-to-day life with CLL."[/i] The SARS-CoV
[i]". . . despite advances in therapy, infection remains a major risk in CLL and is a key challenge in CLL management. People with CLL face varied immune challenges – in addition to infections – along the patient pathway, which form a major part of managing day-to-day life with CLL."[/i] The SARS-CoV
CLLerinOz
Volunteer
in
CLL Support
1 year ago
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