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answers please
I had OH surgery 4 weeks ago. Came home and went into permanent Afib. I’ve got a PM. I’ve been on flecanide twice daily for last 2 years. I went to local hospital last week and was told to go on Bisoprolol I must be totally allergic to it as was really sick, dizzy,faint, eye probs. So I took myself
I had OH surgery 4 weeks ago. Came home and went into permanent Afib. I’ve got a PM. I’ve been on flecanide twice daily for last 2 years. I went to local hospital last week and was told to go on Bisoprolol I must be totally allergic to it as was really sick, dizzy,faint, eye probs. So I took myself
Sally_Scott
in
Atrial Fibrillation Support
1 year ago
BP monitor
Howdy folks - I used to take my BP monthly with a manual BP cuff and monitor. Since going into permanent controlled AFib I find it almost impossible to get an accurate reading using this method. On reading up on this I understand that most BP monitors are "fooled" by AFib and will give inaccurate readings
Howdy folks - I used to take my BP monthly with a manual BP cuff and monitor. Since going into permanent controlled AFib I find it almost impossible to get an accurate reading using this method. On reading up on this I understand that most BP monitors are "fooled" by AFib and will give inaccurate readings
Kennyb1968
in
Atrial Fibrillation Support
1 year ago
Mini maze heart ablation surgery
Please can you kindly advise me my 40 yr old son as had mini maze heart ablation surgery 5 weeks ago for the last 4 days his heart is all over he had a ecg yesterday at the Dr he said it was out of sink but not in afib his blood pressure was higher so they have upped his meds but he is a little breathless
Please can you kindly advise me my 40 yr old son as had mini maze heart ablation surgery 5 weeks ago for the last 4 days his heart is all over he had a ecg yesterday at the Dr he said it was out of sink but not in afib his blood pressure was higher so they have upped his meds but he is a little breathless
P1956
in
AF Association
1 year ago
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I just began the Eclipse Clinical Trial and will be posting my experiences here. Please share yours too.
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
SViking
in
Advanced Prostate Cancer
1 year ago
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone
[i]
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone, MedPage Today, by John Gever, Contributing Writer, May 4, 2023
[/i] While not specific to PCa, this contribution to the understanding of the complex nature
[i]
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone, MedPage Today, by John Gever, Contributing Writer, May 4, 2023
[/i] While not specific to PCa, this contribution to the understanding of the complex nature
cujoe
in
Fight Prostate Cancer
1 year ago
Final STAMPEDE results for Abi with/out Enza when starting ADT.
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
pca2004
in
Fight Prostate Cancer
1 year ago
Phase II 2020-0200 Clinical Trial
Hello everyone, I was diagnosed in May 2021 at 50 years old. PSA 426/Gleason 8. Had been on Abiraterone Acetate (AA) along with Lupron and Prednisone. My PSA dropped to 0.1 until recently I became castrate resistant. I was advised by my team at MD Anderson that my cancer was a strong variant type.
Hello everyone, I was diagnosed in May 2021 at 50 years old. PSA 426/Gleason 8. Had been on Abiraterone Acetate (AA) along with Lupron and Prednisone. My PSA dropped to 0.1 until recently I became castrate resistant. I was advised by my team at MD Anderson that my cancer was a strong variant type.
Z06505hp
in
Advanced Prostate Cancer
1 year ago
Meds post ablation.
Hello. I am 52 and in discussions to have an ablation, probably, in a few months. My Afib was spurred by an overactive thyroid and as far as I can tell I am in pretty much constant Afib. I don't have any major symptoms but if I check my heart rate / rhythm they are always irregular. When I have had EKGs
Hello. I am 52 and in discussions to have an ablation, probably, in a few months. My Afib was spurred by an overactive thyroid and as far as I can tell I am in pretty much constant Afib. I don't have any major symptoms but if I check my heart rate / rhythm they are always irregular. When I have had EKGs
Jafib53
in
AF Association
1 year ago
PHASE 2 SATIVEX CLINICAL TRIAL (ARISTOCRAT)
Excellent news! The Brain Tumour Charity has announced that the Aristocrat Phase 2 clinical trial of SATIVEX is now going ahead. Please see the link below for further details. https://www.thebraintumourcharity.org/media-centre/news/research-news/aristocrat-a-pioneering-trial-using-a-cannabinoid-based-drug-to-treat-brain-tumours
Excellent news! The Brain Tumour Charity has announced that the Aristocrat Phase 2 clinical trial of SATIVEX is now going ahead. Please see the link below for further details. https://www.thebraintumourcharity.org/media-centre/news/research-news/aristocrat-a-pioneering-trial-using-a-cannabinoid-based-drug-to-treat-brain-tumours
Tansi75
in
Glioblastoma Support
1 year ago
Patient Engagement Day UCL Cancer Trials Centre 23 June 2023
Hello All This is to let you know about a Patient Engagement Day being run by Cancer Research UK and UCL Cancer Trials Centre. The organisers have five patient spaces left available, and asked if any of our members would like to attend. It will be taking place in central London on Friday 23 June 2023
Hello All This is to let you know about a Patient Engagement Day being run by Cancer Research UK and UCL Cancer Trials Centre. The organisers have five patient spaces left available, and asked if any of our members would like to attend. It will be taking place in central London on Friday 23 June 2023
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
Prazosin side effect
I use Prazosin for possible anti-PCa effects. Alas, all is not gold that glitters. Prazosin is prescribed for LUTS and high blood pressure, with an effect that tends to lower diastolic more than systolic ( upper number) blood pressure. In my own case it can lower diastolic to below 60, which tends
I use Prazosin for possible anti-PCa effects. Alas, all is not gold that glitters. Prazosin is prescribed for LUTS and high blood pressure, with an effect that tends to lower diastolic more than systolic ( upper number) blood pressure. In my own case it can lower diastolic to below 60, which tends
Purple-Bike
in
Advanced Prostate Cancer
1 year ago
Just me
I found out I have a-fib. only because my wife heart the beat when laying on my chest. Don't know how long I have had it and never felt it. I was diagnosed with sleep apnea and trying to address it at this time. The heart doc put me on 25 mg of Metoprolol and it made my blood pressure too low. Now
I found out I have a-fib. only because my wife heart the beat when laying on my chest. Don't know how long I have had it and never felt it. I was diagnosed with sleep apnea and trying to address it at this time. The heart doc put me on 25 mg of Metoprolol and it made my blood pressure too low. Now
Hearthealth111
in
Arrhythmia Alliance
1 year ago
update
last November i was diagnosed with Afib which had appeared overnight - possible covid induced?. I found this site and was so reassured by people I thought i would give an update. So on 23rd November i went to af clinic, we are automatically referred here when diagnosed. I had echocardiogram first, then
last November i was diagnosed with Afib which had appeared overnight - possible covid induced?. I found this site and was so reassured by people I thought i would give an update. So on 23rd November i went to af clinic, we are automatically referred here when diagnosed. I had echocardiogram first, then
Dudtbin
in
Atrial Fibrillation Support
1 year ago
Stopped Flecainide, update
I have been off Flecainde now for almost a month. Had two short episodes of Afib the end of the first week. Then nothing. I also noticed that the weird off balance feeling, I have had for at least a year, has gone. So I believe it was caused by the Flecainide. Last night I had a short half hour
I have been off Flecainde now for almost a month. Had two short episodes of Afib the end of the first week. Then nothing. I also noticed that the weird off balance feeling, I have had for at least a year, has gone. So I believe it was caused by the Flecainide. Last night I had a short half hour
Budken
in
AF Association
1 year ago
Also in Persistent Afib
I am in continous afib with a slower than normal heart rate (brachycardia). I experience no symtoms. I'm on the blood thinner Eliquis, 5 mg, 10 AM and 10PM to prevent my having a stroke. My cardiologist (who performs many ablations per year) recommended I do an ablation. I consulted with another cardiologist
I am in continous afib with a slower than normal heart rate (brachycardia). I experience no symtoms. I'm on the blood thinner Eliquis, 5 mg, 10 AM and 10PM to prevent my having a stroke. My cardiologist (who performs many ablations per year) recommended I do an ablation. I consulted with another cardiologist
theluckyone
in
AF Association
1 year ago
Rapid heart rate on Ozempic
Has anyone had to go off of Ozempic due to rapid heart rate? I had an ablation a year and a half ago for AFib and now when I started Ozempic after 3 days I woke up with my heart raving at 162 bpm. It felt like AFib anc then after deep breathing it started to go down to 157 then 128 and tachycardic
Has anyone had to go off of Ozempic due to rapid heart rate? I had an ablation a year and a half ago for AFib and now when I started Ozempic after 3 days I woke up with my heart raving at 162 bpm. It felt like AFib anc then after deep breathing it started to go down to 157 then 128 and tachycardic
Itsanafiblife
in
AF Association
1 year ago
Wolff-Parkinson-White Syndrome
My brother (age 65) has had occasional afib episodes (and tachy episodes) for years. He was diagnosed a while back with WPW. Is being sent for ablation tomorrow. Anyone else have WPW? And was ablation curative for you, if so? Any advice for ablation recovery? Do's and dont's? My brother is not one
My brother (age 65) has had occasional afib episodes (and tachy episodes) for years. He was diagnosed a while back with WPW. Is being sent for ablation tomorrow. Anyone else have WPW? And was ablation curative for you, if so? Any advice for ablation recovery? Do's and dont's? My brother is not one
PlanetaryKim
in
AF Association
1 year ago
Persistent afib
I thought I was okay now I'm in persistent afib ( since September 2022) but looking at the posts from yesterday's health unlocked (estesbubba post) people are saying it's not good to be in persistent afib as it causes the heart to work harder and then become enlarged and that can lead to heart failure
I thought I was okay now I'm in persistent afib ( since September 2022) but looking at the posts from yesterday's health unlocked (estesbubba post) people are saying it's not good to be in persistent afib as it causes the heart to work harder and then become enlarged and that can lead to heart failure
Swimsyroke
in
AF Association
1 year ago
Tantaanna needs support
My history: Afib since 2014- cardio version, (symptomatic)Flecanide pill in pocket-2015-2017. After getting three episodes in one week I had my First ablation- 2017- had two more ablations 2018-19. (Afib free ten- eleven months I better) unable to take more flecanide because of long qt on ekg 2020
My history: Afib since 2014- cardio version, (symptomatic)Flecanide pill in pocket-2015-2017. After getting three episodes in one week I had my First ablation- 2017- had two more ablations 2018-19. (Afib free ten- eleven months I better) unable to take more flecanide because of long qt on ekg 2020
Tantaanna
in
AF Association
1 year ago
Pride comes before a fall! Anticoagulant thoughts.
Good evening everyone, Well there I was, floating on my little cloud of self-satisfaction, thinking I’d kicked the AF monster good and proper once I got my sleep apnoea under control. My nightly AF episodes became a thing of the past - bliss! You all know what’s coming next though, don’t you. That
Good evening everyone, Well there I was, floating on my little cloud of self-satisfaction, thinking I’d kicked the AF monster good and proper once I got my sleep apnoea under control. My nightly AF episodes became a thing of the past - bliss! You all know what’s coming next though, don’t you. That
Threecats
in
AF Association
1 year ago
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