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Newby wondering what medicine to take for sickness and diarrhoea?
Hello everyone 🤗, this is my first proper post after dipping in and out to read your chats which I have found invaluable to settle my nerves somewhat after being diagnosed with Afib. However, I’m suffering with sickness and diarrhoea and am aware that while on the afib drugs you have to be careful what
Hello everyone 🤗, this is my first proper post after dipping in and out to read your chats which I have found invaluable to settle my nerves somewhat after being diagnosed with Afib. However, I’m suffering with sickness and diarrhoea and am aware that while on the afib drugs you have to be careful what
Ailsablue
in
AF Association
1 year ago
Afib Wearables, capturing data for your EP and a helpful tool.
Thought I would give an update as to my personal study of my AF. For those that have not been following my posts, I consciously decided not to take medications for my AF so I could study the beast by trying alternatives to medications. One of my earliest thoughts was to set up a citizen science website
Thought I would give an update as to my personal study of my AF. For those that have not been following my posts, I consciously decided not to take medications for my AF so I could study the beast by trying alternatives to medications. One of my earliest thoughts was to set up a citizen science website
OzRob
in
AF Association
1 year ago
Aching feet at night
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
1Golf
in
AF Association
1 year ago
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AF and now coronary artery disease at 47. I recently had a CT angiogram and the results aren’t great. Back to being scared and worried.
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
Dadtoalad23
in
AF Association
1 year ago
clinical trial RBN-2397-19-001
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Cynthgob
in
Advanced Prostate Cancer
1 year ago
ANY ADVICE
Hi everyone I have been AF free for nearly a year now. I have been taking 75 mg flecainide morning and night half of 125mg Bisoprolol in the morning, Apixaban and 20 mg Tamoxifen. Everything has been great. However in the past week I wake up every morning and my lips are stinging and cracked and
Hi everyone I have been AF free for nearly a year now. I have been taking 75 mg flecainide morning and night half of 125mg Bisoprolol in the morning, Apixaban and 20 mg Tamoxifen. Everything has been great. However in the past week I wake up every morning and my lips are stinging and cracked and
SilverliningsForNow
in
AF Association
1 year ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
A shared story of SCA3
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
wobblybee
in
Ataxia UK
1 year ago
PIP advice please
hi all some of you know my story but I’ve had PAF for 29 years about 8 times in that period. I went back in AF in August and went on regime of Flecainide, Metropolol and Apixiban. Decided to do Cardioversion end of September after being on drugs for a month. Went off all drugs after a few weeks told
hi all some of you know my story but I’ve had PAF for 29 years about 8 times in that period. I went back in AF in August and went on regime of Flecainide, Metropolol and Apixiban. Decided to do Cardioversion end of September after being on drugs for a month. Went off all drugs after a few weeks told
OzJames
in
AF Association
1 year ago
Mini Oven Recommendations
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
LhasaMomma
in
Fibromyalgia Action UK
1 year ago
Supporting Children Suffering from Narcolepsy
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
1 year ago
Ectopic Beats and Afib recurrence
Hi All, I am now more than 6 months out of the ablation and the 3 months follow up was okay. I am on bisoprolol. Lately, I started feeling many ectopics and as of last 3-4 days they seem to be with me all the time. Two weeks ago, I went to an ER following a sleepless night of anxiety (ECG no Afib and
Hi All, I am now more than 6 months out of the ablation and the 3 months follow up was okay. I am on bisoprolol. Lately, I started feeling many ectopics and as of last 3-4 days they seem to be with me all the time. Two weeks ago, I went to an ER following a sleepless night of anxiety (ECG no Afib and
Lonelytraveller
in
AF Association
1 year ago
KEYNOTE-B96 Clinical trial
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Vilinew
in
My Ovacome
1 year ago
ORION -4
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Sizzlerman
in
British Heart Foundation
1 year ago
Interesting
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
wateron
in
MPN Voice
1 year ago
Better measures of disease severity needed in lupus, study says
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Are there any clinical trials currently using mRNA technologies to fight PC?
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Rocketman1960
in
Advanced Prostate Cancer
1 year ago
What do you wish people knew about pancreatitis? | Rare Disease Day
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
helvella
Thyroid UK
in
Thyroid UK
1 year ago
You tube video on Atrial fibrillation , very long but answers so many questions.
I really didn't want to watch football & thought I would look something up on YouTube.This video answers so many questions from what causes AFib to Alcohol & caffeine and is only 7 days old.I found it incredible and if you can sit through 1hr 29 it will answer so many questions.I only found about 20
I really didn't want to watch football & thought I would look something up on YouTube.This video answers so many questions from what causes AFib to Alcohol & caffeine and is only 7 days old.I found it incredible and if you can sit through 1hr 29 it will answer so many questions.I only found about 20
kkatz
in
Atrial Fibrillation Support
1 year ago
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