Ataxia UK | HealthUnlocked

Ataxia UK

4,046 members4,596 posts

Scared of falling

Falling is really scary. I'm constantly bruised from losing my balance but every...

weight vest

I am a physician in the US. I am looking for interventions that can help my pat...

What is it like to have SCA3?

I have finally found the correct description for what it is like for me with SCA...
Bikebug profile image

missing life before ataxia

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from...

help!

Got another question to ask all my ataxia friend’s are normally quick to answer ...
weegiz12345 profile image

Ataxia Pain

My partner was diagnosed with cerebella ataxia about 4 years ago. He has the us...
l111ulu profile image

Can you do too much exercise?

I wonder if any one else has the same experience as me. We all know how importa...
Libra7 profile image

Supplements

Hi, I have always taken high dose supplements, does it help the ataxia? I don't ...
penelope2 profile image

Apart from the Cerebellum…what else effects balance

Not having enough visual information, such as when you are in darkness, open spa...
wobblybee profile image

All My Life.

Ever since I was a small boy, my hands have shaken, in fact my brother tells me ...
Veteran250 profile image

vestibular dysfunction

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests...

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

I have SCA3 and have looked into best devices to assist getting around safely. ...
Bikebug profile image

Trembling

Hello I have SCA6 and it has been effecting my life for about 5 years, I am...
Kauri1 profile image

My attempts at managing SCA3

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) an...
Bikebug profile image

Russia

You have to be hard to have ataxia so I think we should all get together to beat...
paul456 profile image

Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-s...
wobblybee profile image

I can people with cerebellar ataxia teach themselves to walk again?

Hi folk, I have not written anything on here for a while, but I have two questio...
AnneMenzies profile image

SCA type 48

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. ...
RN12120 profile image

Cionic Neural Sleeve

Has anyone ever heard of this Cionic Neural Sleeve? I heard about it on a podcas...
Rezzy3 profile image

Don't use an EMS machine if you get burning hot feet at night.

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropa...
carol31271 profile image

CEREBAL ATAXIA

Wounded on patrol in the Middle East and a Motar Shell hit my section and I rece...
Guards profile image

Genetic diagnosis

Hi all, sorry I haven't posted anything for ages but sometimes life is like that...

pharmacological coma

Is it possible to resort to pharmacological coma when a person suffering from at...

An online Study….recruiting re Speech Disorders

A new study on speech disorders in ataxias is recruiting participants Do yo...

The good, the bad, and the not so good looking....

I confess I got this idea from an earlier post. Copied the concept as a complim...
Telegraphist profile image

Many thanks!

Thank you so much to all the people who took the trouble to answer my query abou...
Libra7 profile image

My good friend

My best friend 👍🏻
paul456 profile image

Lost site

I lost this site gain. Why?
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About us

Ataxia UK is the national charity for people affected by ataxia. Membership is free and open to anyone affecte...

Read more about Ataxia UK
0207 582 1444