What is the most helpful support to offer peop... - Tinnitus UK
What is the most helpful support to offer people with tinnitus - some we currently offer some we don’t - please tick your top THREE answers
Really, really, really, really need a cure and fast !!
Other. Forum
I only voted for two options as I get emails and participate in the forum discussions. I have no local support groups for tinnitus that I am aware of and I do not know of any other sources of help quoted in your options. I badly need more help and I have an appointment with the Audiology Department in my local hospital on 13 June which I will use to gain further advice and assistance.
Hi. Can't see where to write comment / explain other
Hi Lindsay - just comment here, I'm monitoring everything to pick them up
Thanks. Sorry for delay and if I repeat my suggestions over the years . I would like BTA to fund properly trained and supervised 1-2-1 ' counsellors ' , as there is a gap in NHS services . I know statutory funding should provide this , but they don't and private ' counsellors' can be hit and miss both in where they are located and in their understanding of tinnitus . There is a danger on relying on support groups and lay counsellors with basic training ( great and valued as both of these are ) .
i would also like a little more ' something' for those of us whose tinnitus never eases , never have a ' easier 'day . This is possibly more an approach , or addition to an approach. It can be hard when the reading / listening / talking is ' Do this and it'll get better'.
I'm going through the same thing you are I understand.
A better forum interface would be useful. This Health Unlocked one is better than the dreadful AoHL website, but it's still pretty poor. The football forum I frequent is miles better in keeping tabs on popular threads and threads you've been active on.
Hi Ruud1boy - do you know which platform the football forum uses? An advantage to being here is that it is free for us to use, which as a charity is very helpful. We are also able to reach more people because Health Unlocked cover so many conditions.
It's called ProBoards - AFAIK it's a free forum hosting service, but I don't know whether there would be any issue with using it in a quasi-commercial setting.
thank you!
The Supporters Trust I am involved with use Slack - but alas I have no idea how it works or if it would be useful , as I'm totally untechnological !
List of available treatment and what to ask for. Both NHS and private
The Forum is a source of comfort and shared experience.
We need to be continuously informed on the progress of research on the causes and cures of tinnitus
We need to be continuously informed of the progress being made wrt tinnitus
People around you don't seem to understand this affliction "basically a torture"provide counselling to suferer without fail.
Hi Nic,
I found your information sheets and the Quiet Magazine very useful at the beginning of my tinnitus. And later on - the forum.
Lynne
Most of local support groups seem to be when I am at work
Online tinnitus management course would be good!!!!
We do have a free tinnitus management e-programme takeontinnitus.co.uk which you may like to try
!
Warmest wishes
Nic (BTA Communications Manager and Forum Administrator)
Ye I think online management programme Be good especially if people can’t access support if say they work or have other commitment. I’d like to try as although it doesn’t disturb me too much I do get a bit irritated like just recovering from a cold during the middle of it I’d swear an alarm was set off. If could learn strategies for times like this it be useful
Many thanks x
Whatever we NEED, and whenever... Done.
