What topics are you most interested i... - SHARE Ovarian Can...

SHARE Ovarian Cancer Support

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What topics are you most interested in learning about?

joann86 profile imagejoann8642 Voters

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6 Replies
malka210 profile image
malka210

More about side effects teeth and brain

Aire profile image
Aire

I would like to hear more about new treatments, where they are available and what the side effects are.

SarahsJourney profile image
SarahsJourney

Would love to start hearing more about holistic integrative care, involving complementary treatments, alongside conventional and more about what we, as patients can do to help ourselves, rather than the message from a lot of Oncologists with the view 'there's nothing you can do to help yourself'

mlbronk profile image
mlbronk

Love to hear something as much as we can get something positive been going through ovarian since 2011 in feb on my fourth time now one more chemo but two more readings on my ci25 came down numbers very fast until numbers blood count run lower now went up 2 numbers but were taking it two weeks in a row usually don't do that once a month blod count was low so waited a week extra the numbers went up blood count but 2 ci25 up 5th week now waiting game intill the 5th of October trying to be positive because I believe that has a lot to do with everything but when u hear all bad it is hard appreciate there is someone to talk to hear Thank You they had to lower chemo aliitle maybe that is why but had to

Jaimee profile image
Jaimee

The personal stories scare me so much and are the reason I seldom come here. If you could find posters who have had good outcome with no recurrence that would help.

Mousse profile image
Mousse

I'm very interested in nutrition and what others are doing along those lines. I'm 5 weeks into Rubraca. No serious side effects so far. My latest CA - 125 dropped from 30.5 two weeks ago to 17.2 on Monday. My lowest just after after my first round of chemo was over in September 2016 was 16.9. During my Avastin only treatment I hovered in the mid 20's.

Mousse

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