MPN: I have Essential thrombocytosis - Penny Brohn UK

Penny Brohn UK
1,478 members278 posts


I have Essential thrombocytosis

2 Replies

Hi LuLu811 I have this too. Discovered after Liver surgery as I have Budd Chiarri and the ET mutation caused issue. Diagnosed in June and on drugs to lower platelet levels . How did you learn you had ET?


Just a yearly physical that showed an elevated platelet count in Jan 2016. Eight months later i was tested negative for JAK2 mutation and started daily hydroxyurea 500.