How were you diagnosed with myeloma? ... - Myeloma America S...

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How were you diagnosed with myeloma? Let us know in the new poll (to the right) for Forum Friday!

tclementi profile image
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Once you've entered the poll, watch these videos to hear how others were diagnosed and if your stories are similar! 

patientpower.info/video/wha...

patientpower.info/video/eun...

patientpower.info/video/lyn...

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tclementi profile image
tclementi
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JohnHallyburton profile image
JohnHallyburton

I had severe back pain and had lost weight and height, was diagnosed with anemia.  The best my PCP could do was to send me to an orthopedist whose assistant, on reviewing my X-rays, prescribed a week's worth of muscle relaxants.  My diagnosis was obvious to the rheumatologist whom I sought out.  Even my chiropractor had a better handle on "something going on" than did my PCP. 

Once I was referred to an oncologist, he looked at those same X-rays and said, these X-rays of a 63-year-old man look like those of an 80-year-old woman. 

It has taken 5 years of treatment, but I am in remission at last.  I hope it's a good long time before I relapse. 

The damage done to my spine is irreversible, and I take 200 mg of Oxy each day to tolerate the pain. 

My recommendation is that the symptoms of Myeloma be taught to chiropractric students, as they are the final refuge of suffering, undiagnosed Myeloma patients.

tclementi profile image
tclementi in reply to JohnHallyburton

Wow! Thanks for your response! It is pretty crazy that it took all those people to figure out what was wrong but I am so glad you are in remission and are doing ok! Great recommendation- my cousin is studying to be a chiropractor so I will pass that info along to her- every bit counts, right?!