What was your greatest source of supp... - Non Hodgkin's Lym...
What was your greatest source of support when you were diagnosed with your NHL?
Please select one:
I have to also add family cause they were here to hold our hands and our hearts when we found out. Healthunlocked was an amazing eye opener especially that we were misdiagnosed at first.
I reached out to family & friends but somehow felt they needed support dealing too or just didn't understand. I found a wonderful free support group which I still attend as a survivor
Must also compliment Denise Rapiuslis from the Leukemia and Lymphoma Society
I did not participate in the poll because there didn't appear to be a category that fit in my case.
For the most part, I was my own main support. I have no family and the few friends that I have weren't always willing and/or able to support me when I needed them. All too often, my support needs were not met and I found myself pulling up my big girl panties and forging ahead as best I could. I learned pretty quickly that I needed to advocate for myself. I honestly believe that having to do that brought out my tenacity, grit and determination enabling me to successfully handle my 3 cancer experiences in 8 years and come out the other end as a better person.
Having said that, my cancer care team were wonderful in making sure all my medical needs were met. The volunteer driver service at the Canadian Cancer Society has been wonderful in making sure I get to my chemo and other cancer related medical appointments. I tried to utilize whatever resources were available to me when I needed them.
Because I know what it feels like to have very little non-medical support, I try to support others when the need arises. There is nothing more lonely and scary than walking the long road of a cancer experience when you walk it alone.
Www. Lymphomasurvival.com was and continues to be a great support to me diagnosed over 5 years ago with fnHl and not required treatment.
Dr Google was wonderful, I was diagnosed after a biopsy on a chin lump that had been included in surgery for something else, I found out the key facts myself before leaving the hospital and have learnt to read and understand medical papers. Watch and wait suits me fine, in time perhaps I will need active treatment, if others can be on W&W for many years then I hope to do so too. Life is almost normal, long may it continue.
No one
It's a hard trek when the walk is a solitary one. Hugs to you. 💕
Wouldn't have made it this far if not for people around me being positive and helping me with daily ups and downs that this illness brings. I thank God for support!!
Family and friends and their love and caring meant the world to me, and definitely gave me a positive outlook about my NHlymphoma. I also have a great oncologist, very caring.
Moderation team
