How has your condition responded to t... - Non Hodgkin's Lym...
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I would add, Treated, leukemia progressed or transformed
I am told that there is no active disease but there remains some remnants of the tumour which continues to cause problems that require regular treatment under general anaesthetic.
I was offered radiotherapy and declined it in 2014. My condition has not progressed so far.
I have been participating in a clinical trial that includes Ibrutinib oral chemo daily and 6 cycles of Rituxin. I have had about a 50% reduction in the nodes in the plevic region and a good response in the thorasic and supra clavicular and axillary nodes as well. I was diagnosed in June 2015 with Stage 4 (original staging system)/Rai Stage 1-2. The treatment is well tolerated. I highly recommend seeking information on clinical trials that may be available in your area.
Until recently I was doing well on Zydelig regimen, but over the past month my body has decided to reject it.
I had Rchop chemo and radiation treatments, I an in remission, although it has only been in remission for about 4 months. I am hoping it stays that way.
Moderation team
