Neurological disorders

Neurological disorders are disorders of the nervous system, such as Parkinson’s disease, Multiple Sclerosis, and more. Medline Plus lists over 600 neurologic diseases, some extremely rare, making it hard to find reliable information for you or your loved one. It can often be very informative and supportive connecting with other people who are affected by the same condition. Below you’ll find user experiences grouped by disease as well as communities run by expert nonprofits with a focus on particular kinds of neurologic disease.

Types of Neurological disorders

Related communities

  • Tourettes Action

    Community

    This group connects people, volunteers and professionals involved with Tourettes for support and help online.

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  • ALD LIFE

    Community

    ALD Life is a patient support group for patients and families affected by Adrenoleukodystrophy (ALD) – a rare genetic disorder that impacts mainly young boys between the ages of 4 to 10. We provide emotional and financial support to patients and families including a grants programme that helps families cover vital support costs. We provide practical information and advice to patients and families to help them make informed decisions about their health and social care needs. We also help fund medical research projects looking into finding better treatment or a cure for the disorder.

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  • PSP Association

    Community

    PSPA is a national charity offering information, practical and emotional support to people affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), while supporting research into treatments for the future. Our aim is that people affected by PSP and CBD do not feel they have to face the future alone. We offer support through our helpline and information service via telephone or email, our network of local groups and volunteers. We also offer a wide range of resources and publications. As well as events for people affected by both conditions. If you require information or support contact our confidential helpline and email service Monday to Friday 9am-5pm and 7pm-9pm. Tele: 0300 0110 122 Email: helpline@pspassociation.org.uk

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  • Cavernoma Alliance UK

    Community

    We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma. What is a cavernoma? A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body. Frequency 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.

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  • Restless Legs Syndrome

    Community

    Welcome to the European Alliance for Restless Legs Syndrome (EARLS) and RLS-UK forum. Learn more about us at www.earls.eu and www.rls-uk.org

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  • Epilepsy Action

    Community

    Epilepsy Action is a peer support community run by the Epilepsy Action charity. We are a community of committed and supportive individuals excited to connect and share experiences. Join to ask questions, support one another, and discuss with others affected by epilepsy!

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  • Epilepsy Society

    Community

    We are a community dedicated to supporting people affected by epilepsy and seizures.

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  • Living Positively with Cerebral Palsy

    Community

    I have Cerebral Palsy. I have had it since birth. I'm adult now. What I have found is that there is a lot of information out there for parents who have children with Cerebral Palsy. However, there is not a lot of support and information for adults with the condition. This is bad because Cerebral Palsy is treated like a childhood condition. This is surprising as it is not a progressive condition. People with Cerebral Palsy do not fall off the face of the earth when they hit eighteen years old. 1 in every 400 children are affected by cerebral palsy. These children will have this chronic condition for life. So if you want to share your experiences of Cerebral Palsy in adulthood. This is the place to do it. Connect with others who understand your situation!

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  • Brain Aneurysm Awareness UK

    Community

    Brain Aneurysm Awareness UK is a community dedicated to providing support and a safe environment for people affected by brain aneurysms to discuss the daily challenges they face.

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  • Brain health

    Community

    This Brain Health community is a safe space for those affected by brain conditions to connect, share their experiences and offer support to others.

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