What was your greatest source of supp... - Myeloma America S...

Myeloma America Support

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What was your greatest source of support when you were diagnosed with your myeloma?

tclementi profile imagetclementi6 Voters
4
My family and/or friends
1
I found support through other groups in other communities (in-person groups)
1
I wasn't confident enough to ask for support
0
Patient Power, Health Unlocked or other online support and educational groups
0
I didn't get any support
4 Replies
bigpants profile image
bigpants

My daughter came up from England nearly missed Xmas with her children my hubby took time off work other than that I was left to get on with it ,the worst part off my treatment was my stem cell transplant my daughter could only be here for me 2 weeks after it as she had work she was here before it as well to look after her sister who has Down Syndrome it was hard when she left due to my husband working shifts I had to get up in the mornings I don't know how I done it to be honest ,I went into depression that lasted about 4 months would rather be in pain .

tclementi profile image
tclementi in reply tobigpants

Thank you for sharing your experience, bigpants! It sounds like your daughter and husband are good supporters and doing what they can/ How are you doing now?

bigpants profile image
bigpants in reply totclementi

Sorry for taking so long to reply just saw this it was 2 years ago today I went in for my transplant I don't know were the time has gone so far bloods all well I get checked every month and also get a drip to strengthen my bones my platelets go up and down but they are at acceptable level ,my main problem now is the fibromyalgia I am really struggling with the pain and exhaustion my hips are now giving me problems but I just get on with it I am on slow release morphine and Gabapentin at least I am still alive if only just lol hope you are well .

tclementi profile image
tclementi in reply tobigpants

Wow 2 years! Time flies! Hope you feel better soon or are able to manage the pain and exhaustion.

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