What do you find most valuable about the community... - MY SKIN

MY SKIN

8,736 members1,926 posts

What do you find most valuable about the community? Select all that apply.

amcm profile imageamcm24 Voters
18
Interaction, discussion, and support from other patients
15
Learning new knowledge about my condition and other patients’ experiences
14
Asking questions to the community
9
Receiving advice on physician care and/or treatment options
0
Other (please share in the comments)
7 Replies
billy-george profile image
billy-george

Unfortunately my skin condition is so rare I can find no help or advice

loristan profile image
loristan in reply tobilly-george

no despair, there is always hope. maybe you like to share more details and there could be light at the end of the tunnel

billy-george profile image
billy-george in reply toloristan

Disseminated Superficial Actinic Porokeratosis. I started a thread also put a photo of my skin. Actually there is NO hope because this is untreatable.

loristan profile image
loristan in reply tobilly-george

I could send you 2 to 3 types of my own herbal essential oil. I hope at least it soothes your skin condition. If you need photographs of some users who have benefited from using this skin essential oil, I would be pleased to email to you. However, please bear in mind that there is no guarantee that the skin essential oils will be able to treat your condition and you have to use it at your own risk.

billy-george profile image
billy-george in reply toloristan

That is very kind of you but I have used essential oils in the past and there was no change in the conditions. Some see improvement others do not. But thank you

loristan profile image
loristan in reply tobilly-george

There will be a solution sooner or later. Consolation is that your condition is rarely life threatening and wish you all the best.

AndrewT profile image
AndrewT

Dear amcm,

a Very Good Poll, can I add that the 'Sharing Of Information' is also important. I know that this IS 'Covered', by other Options, but I think a Specific Mention wouldn't Go Amiss.

I Passed On information, about Neem Oil recently- something that I am now using, to Good Effect. Others have Referenced other 'Things' they have discovered/ found/ read about/ tried over the years.

I 'think' of these Pages (I am a Member of other 'Forums' too) as being rather akin to A Good Reliable Friend- Someone you can Turn To, for Good Honest Advice.

Some Members I have 'known' for many years, others I have only just 'found'- The New Pal I Met At The Club, as it were. Rather like the Headway Group, that I attend, we ALL 'understand' each other- a type of Mutual Support, that is difficult to quantify, or explain.....Something almost 'Insinctive', if you will.

As i said a Very Good Poll, I would be Interested in 'Seeing' the results as, I'm sure, we All would.

Many thanks

AndrewT

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