diagnosed couple weeks ago.: hi i'm new... - My Fibro Community

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diagnosed couple weeks ago.

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hi i'm new, and diagnosed couple weeks ago.finally got answers but was massive shock.i also have PTSD. woke again after couple hours sleep cold sweats and chronic burning pain.on Gabapentin FIBRO 300 mg 3 x daily,this has just started, so far no benefits from it. and paroxetine 40mg PTSD. helping. Codine 30mg 2 x every 4 hours and paracetamol 2. 4 x daily , can not get over how painful it is and how quickly i tire,finding this hard as once very active and never stopped really. now. im luck to get out of bed. fallen several times this week.already had ot out.several aids arriving today not happy about use of walker.not been out my front door for ever.except visits to hospital therapy which is now at home,and GP.my support at home is from my partner,without her i'm not sure id still be here.as for walking few steps and i have to stop.i hold onto partner to help me.chronic headaches .i guess you guys already know all this lol. each day i now take as it comes.has anyone tried acupuncture yet if so does it work or help .?

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Wavelength profile image
Wavelength

Hi, I'm fairy new to fibro, recently diagnosed after months & months of tests and waiting & waiting for results. So stressful and my anxiety was out of control which I've now learned that it makes the symptoms worse. It was during an acupuncture session for treatment of the anxiety that it actually aggravated the fibro when I experienced really painful arms & hands & the practitioner pinpointed that this may be due to a neurological problem. So off I went for a consultation with a neuro consultant who diagnosed a functional symptoms disorder after MRI scans & Electro Nerve testing showed normal. My hands are still so painful after this six months on. Then I'm referred to a local pain clinic only to find out that they could not treat me as no trained staff to deal with this. My GP was not helpful at all as he could not explain what this disorder actually is, eventually months later I went to a rheumatologist and was diagnosed the dreaded FMS. I am still in shock & learning how to deal with this outcome. I live in North Devon and so far can not find any support whatsoever. Have tried various nerve pain blockers but the side effects are worse than the original symptoms, for a while I felt so full of despair & pain my head & emotions were all over the place. Now I'm not on any meds except for drops etc. for my eyes went really dry & sore after taking Gabepentin. Never again.

I'm going back for acupuncture, I'm also trying supplements of turmeric ~ it's worth researching. I also make a massage potion of lavender, frankincense & helichrysum & rub into my sore bits...... I can't recommend this enough! It's not going to cure it but the effects are wonderful to get some pain relief without poisoning my body with chemicals that cause more harm than good. My old Nutribullet has come out of its hiding place & I'm giving myself a healthy fix every day, also doing some stretching excercise and beginning to have hope that I can beat this thing!

It's worth a try

Wavelength

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