Can you see a future in which you hav... - National Migraine...

National Migraine Centre

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Can you see a future in which you have better control of your migraine?

Charlotte_NMC profile imageCharlotte_NMCPartnerNational Migraine Centre54 Voters

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12 Replies
bamboo89 profile image
bamboo89

But not because of drug treatments - its gone, since I switched to a vegan diet...

Gambit62 profile image
Gambit62 in reply tobamboo89

also not to do with treatments but a family history of migraines (grandmother, mother) which disappeared in their 50s

If you have gone vegan, please ensure that you get enough B12 either through fortified foods or by taking moderate supplements (5mcg a day should be sufficient). Sure you are aware that B12 is only found in animal products but just in case.

bamboo89 profile image
bamboo89 in reply toGambit62

yea, I know about B12 - but actually, I'm slightly flexitarian - meat, fish maybe once a month or less, eggs occasionally - lost too much weight. But dairy, never... so I suspect its losing the dairy that's dealt with the migraine.

Nillyjane profile image
Nillyjane

Unsure, as it depends on what future treatments will be available.

Catmag profile image
Catmag

More and more research is being done. There is more information available to sufferers and those around them affected by the disease.

I'm hopeful that with treatments, drug interventions, research and information, it will be easier to manage my migraines.

Onthemove1971 profile image
Onthemove1971

No, becuase I am not even given current treatments or medicine. I have really tried everything and can't get them to stop.

headachequeen profile image
headachequeen

Aimovig has reduced migraine significantly, from 18 per month to 3.

Langley-Loper profile image
Langley-Loper

Yes because I have learnt to be persistent, do my own research, not take no for an answer and make lifestyle changes rather than rely just on drugs.

monster05 profile image
monster05

Yes - I am on a trial for one of the new crgp inhibiting drugs. I had 15-18 days of migraine a month and had been chronic for many years. I haven’t, however, had a migraine since I started the trial last May. Life-changing.

Moon_Struck profile image
Moon_Struck in reply tomonster05

Monster, is that Aimovig (Erenuma) - are you in the UK? I am beyond desperate as migraines have got so much worse lately.

monster05 profile image
monster05

Hi Moon_Struck. I know exactly what you’re going through and wouldn’t wish it on anyone. I’m on a trial for a drug company called Teva. The trade name of the drug will be Ajovy. It works in a slightly different way from Aimovig but is still a cgrp inhibitor. It’s thought that these will be available next May/June in the U.K. (Yes, I am in the U.K.) I’m not looking forward to the end of the trial, I can assure you, because this has transformed my life.

Kathybishop profile image
Kathybishop

I’ve looked at my diet again! Starting from the point of ‘pain safe foods ‘ only and working through the dirty dozen migraine food triggers one by one! My hunch is that my future is - no alcohol , no caffeine and very limited sugar (?maple syrup an exception) ; a super healthy practically vegan diet and a sedate ( one job a day) no stress , restful sleep filled daily life! Bring it on if it reduces my pain levels ! I’m still going to get regular migraines but hopefully I can control the pain with just paracetamol! Fingers crossed 🤞

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