Megsellie5 years ago

I was given no advice whatsoever. Nothing. And my GP wasn’t bothered at all about my health.

Quiltergirl5 years ago

I was told to give myself 6 months to 2 years to recover from bacterial meningitis , and "the head aches and tremors would continue to rebound for quite some time" . I had to go home with a PICC line and IV oxacillin , so I did get information and some education on that.

ndm7775 years ago

I was given hardly any info, about my condition. I think they did'nt know what was actually wrong with me. The doctor said it was TB Mengingitis! That was in March 2000, and i spent 6 wks in hospital and combined with a stroke at 26 years old ( now 45 ) I still have headaches , get tired easy ,and find social situations an ordeal. Combined with low self esteem it has been trial by fire.

Luckily i am soon to start Cognitive Behavoural Therapy, in which i can manage my conditions easily. It has made me a more introverted person , i don't mind that, it's just i wish people would change their perceptions of me, instead of writing me off as a defective person.

I feel for anybody going through this terrible disease. Plus i think there should be more research into post meningitis syndrome , finding it hard to hold down jobs and make friends, but I have faith in the CBT. I would'nt wish this on my worst enemy. I go for long walks in the fresh air to help me sleep better and it works. I look forward to the future with hope.

Best regards Nigel Meighan

Le_Mis5 years ago

I came out of hospital last Thursday with very little understanding of what I had been through and no idea what happens next. The treatment was exemplary but I feel lost now. The headaches are the worst i’ve ever experienced, i’m taking back to back paracetamol and sleeping most of the day, i’m not sure what else to do.

enidgk15 years ago

I was given very little information about what to expect post-acute episode and that has been very stressful, since I, like many on the site, experience ongoing pain and energy issues as well as sensitivity to chaotic situations which used to bother me less (I'm a new yorker so I'm quite used to chaos!). I hope that we can provide more in depth information to other sufferers so they feel less alone and invalidated when they're told "you should be good as new in two weeks" post VM (I have the recurrent kind).

Vmzoster5 years ago

I am glad that someone is starting a poll but I feel that this is a severely limited poll that leaves out a lot of important information. As we all have seen on here, those of us who did receive information, even a doctor who got meningitis on here, say that the information received is incorrect. So, it's tremendously important that somehow we get groups together to start working with medical providers on the TRUTH about recovery and its length. Simply having MORE info about this illness but leaving it in its present state of being BAD AND INCORRECT information is no better.