Which type of meningitis have you suffered ... - Meningitis Now
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I'm trying to find others who have the aftereffect of VERY painful feet, especially the toes area.
ignoreit
Sorry your toes are so painful. Mine aren't unless I do front crawl fast but they feel really weird most of the time and have affected my balance. But hey we still have our feet.
J
I lost the tips of my fingers and toes from being sick. My toes don't hurt but I did go down half a shoe size and if I walk long distances they hurt. Also, four of my fingers have only the feeling of pins and needles. At first that was painful.
HOW did you lose the tips of your fingers & toes, Rachel? Did your dr debride them? My legs (& especially my toes) were so painful in the hospital that the drs put a cagelike contraption over my legs to hold my bedding because the pain of a sheet was unbearable. The "contraption" also had a light on it, "to help healing".
It's now been 37 years and the pain is MUCH better but it's still there 100% of the time. I've never been able to find any meds that reduce the pain.
Well I guess it was because when I was on life support my body wasn't able to pump enough blood to the ends of my limbs so they turned black and died. Only one finger was really bad where I had to get the bone cut by a plastic surgeon. They have me burn cream to put on my fingertips and toes so all the black dead stuff would eventually sluff off and promote re growth. I must have been really lucky because originally they thought I would have to have three or four snipped shorter. I owe not losing my fingers or toes to my dad. He came in every day when I was sick and rubbed my limbs to promote blood flow. Thank goodness for dad!
Hi racheldemers
I hope your doing well! I really think this should be something that is a standard operating procedure as i really think like you said here having someone promote bloodflow works!!! I was barely conscious most of my hospital time but i now know my cousin came in every day near enough and rubbed my legs!!!! Complete angels! I do hope this gets heard! 🤗
Sorry to hear about all the pain you've had to endure. I don't know what I would recommend to u for pain, I was given nothing at all. But then again I had substance abuse issues so I'm glad they gave me nothing! Sorry I can't be of any more help to you. Thank u for writing to me.
Oh I forgot. I guess I was on fentanyl in the hospital but nothing after I was discharged
I had melligcocal septecemia bacterial meningitis at three I am 55 now . unusually the rash did not go on my feet but my legs are terribly affected I had extensive muscle and skin loss and spent a year in hospital having skin grafts .I thank the doctors that saved my leg all those years ago from my heart but the pain and after affects are numerous and so very hard to deal with .I have holes dents and scars covering my legs .down to the bone in some places .along with many other problems .x
After effects 8 months removed.
Headaches every time I sneeze. Always when bending over to pick something up. AND I can no longer swing a golf club without it hurting.
Fortunately, those are the only symptoms lasting effects I am having. All limbs intact, hearing and sight intact and I feel most fortunate to be alive.
i had pneumoccal 9 months ago and like you have my limbs, hearing and sight , my headaches have got less over the past couple of months but i am still suffering from shakey and painful legs, but this i can cope with because i too feel so fortunate to be alive.
Hi silver charm i have that bending down feeling too i suppose its the pressure on our heads now :/
Hope ur well!
I had Listeria Meningeo- encephalitis, very rare apparently. Have been left with scarring on the cerebellum & have problems with mobility balance & concentration, but as has been said before I am very fortunate to be alive
I had viral encephalitis meingitis as an adverse reaction to yellow fever vaccine. There are not many survivors of adverse reactions sadly, so I am very lucky to have survived. I do have some problems 4 years on, but they are manageable. My concentration is poor if bombarded with information ie. looking at two computer screens or lots of people talking to me intensely. I still have some fatigue but it is getting better. Odd that head down business someone mentioned earlier, I still have that tying my shoelaces... have to get easier shoes!!
So true about being thankful for still having our feet. I couldn't get on an escalator (poor balance) or wear a closed shoe for 15 years post Meningococcal Septicaemia. Have daily headaches that are relieved with Excredrin Extra Strength.
But after 35 years, I STILL haven't found the method to relieve my foot pain! Doctors have no clue because they haven't come across anyone else with our experience ...and I'm hoping someone on this site has discovered a method for relief from the CONSTANT pain.
I am 11 months post viral meningitis, and am finally 99% back to where I was a year ago. Very grateful for the recovery and so sympathetic for those who still suffer.
I had Viral 9 years ago now.
My daughter Iona had Pneumococcal meningitis 10 years ago (she is now 11 years old). She has been left profoundly deaf, with a damaged hypothalamus, joint and bone pains , short term memory loss, emotional difficulties, communication difficulties, lack of horizontal balance function, temper problems,, sleep problems, frequent nightmares.
All of the above have a massive impact on our family life.
I had viral meningitis in February 2012 and suffered a number of after effects, in particular severe fatigue, head and neck seizures, degradation in my eyesight, dizziness, concentration and short term memory issues. Unfortunately I have been unable to return to the high pressure/stressful job I had as I still continue to suffer from short term memory loss and concentration issues. Occasionally when I read something I have to read it over and over again before it sinks in. Often I give up and go back to it later. I can be told something one minute and have forgotten in the next. Swear blind I was never told it in the first place. This leads to frustration however I have learnt to deal with this frustration much better than I used to. Initially these after effects led to real depression. The Meningitis Trust have been incredibly supportive of me and continue to do so. I cannot thank them enough. Should anyone wish to know more about my experience I have posted this on the health unlocked site. Just search for my name. Hopefully this may help other sufferers out there and in particular viral meningitis sufferers. Not only this, we have posted my partners experience of me contracting VM, The partners, families and friends are often forgotten in the trauma this disease can bring. Search Pamela Hollamby for her side of the story. Hopefully this will help those that have not been effected directly. If anyone would like to ask any questions or for any advice, I will help wherever I can. I know how devastating this disease is.
Dave
Hi I had BM in March in a coma for 4 days still feel dizzy when i bend over or lie flat and move my head and i have been getting pain in my feet it lasts from a couple of hours to a few days not always in the same place. not mentioned the feet to the Dr as have bigger things to worry about as due to have half my left lung removed as they now say i have cancer. Am also very tired.
Sorry not to be able to help I hope you find a cure to the pain in your feet.
Mollaret's Meningitis
Mollarets Meningitis
Staphylococcal aureus meningitis with sepsis and hydrocephalus
Meningies/encephalitis
Bacterial—enterococcus faecelis
