Hi all,
I'm a PSP Caregiver. I have taken care of two PSP patient 67 lady and 63 gentleman years of age respectively. The 67 year old lady passed away last year in October she had lived with PSP since 2015 when she was diagnosed.
In January 2016 the symptoms started progressing real first its then the Family took a drastic decision to have me as a 24 hour Live In Caregiver. In the two years we both learnt a lot about the disease. We became close and inseparable. I cared for my Friend like she was my own mother. In my 2 year of living with my friend, I learnt a lot about PSP disease and Care. I took her to doctors appointments, traveled , attending support groups together, going to the gym everyday, shopping, played and prayed together everyday. I basically did everything for her. Currently am on holiday in my country Kenya after she passed on. I have a lot of experience and information that helped us go through the journey together. With the grace of God we over came different challenges.
Feel free to ask any question related to PSP care, will be gland to be of help.
