Hi. Just diagnosed with epilepsy. Apparently common with cp. Bit shocked. Does anyone have these two and how do you get on? Thanks

[ncmw12]

[rcwallace21 Administrator]

Hi there,

I know it is epilepsy is common with cerebral palsy. I don't have experience of this. However the site is still developing and we may get more members that have both of these conditions.

You might want to try these sites:epilepsy.org.uk or

nhs.uk/Conditions/Epilepsy/...

epilepsyscotland.org.uk/inf...

epilepsyresearch.org.uk

epilepsysociety.org.uk/Abou...

Thanks,

Rachael

[ncmw12 in reply to rcwallace21]

Cheers. Nuala

[mum-to-lucy9]

Hi my daughter is 9 years old and as both cerebral palsy & epilepsy ,

she was diagnosed wile still a baby , she lives her life to the best of her ability with no recent episodes of the epilepsy as it is now controlled through medication hope this helps , x

[jackie6]

Hi I'm a newbie to this site and I came across your post which I found interesting , so I guess it's better late than never to reply. I've got both and it wasn't until I was about 20 that I was diagnosed. I did suffer symptoms from 'something' for a good couple of years up to then. I'm now 45 and I've had my ups and downs, as no doubt you have been through the mill too, but on the whole it hasn't got me. Mine will never be fully controlled due to the reason as to why I've got CP, but for a while now it's actually been pretty good - touch wood🚪. One thing though, for myself anyway and I believe that applies to all Epilepsy sufferers, is needing plenty of rest and sleep. I think the meds don't make it any easier if not a lot harder, with being tired all the time because of the CP and now Epilepsy! Also if you have a wee drink, only take a few (3-4) the max at a time, never binge drink. I was one for not drinking for months on end and then when went out would maybe have about 5-6, possibly a couple more and a couple of shots for good measure and paid the price later with my seizures😪. By doing this it reduces the affect of your meds, which in turn could create unnecessary seizures😱 Good luck!🍀