The Leukodystrophy Support group will be closing on Saturday 31st December 2022.
We have created our own Facebook Group called ‘Alex TLC Community’. We hope that having our own dedicated group on Facebook will ensure more of our community are able to be involved in conversations and discussions.
To join the group, visit: facebook.com/groups/alextlc...
The group is private, and you will be asked membership questions when you request to join the group. One of the requirements is to be registered with the charity. You can do this by completing our registration form: forms.gle/dFFkJBz2pGJiVxSL7
Any questions, please contact suzanne@alextlc.org
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?
drugs for 8 years old boy suffering ALD
Difference between AMN and ALD