CCALD Study....Questions?: We are still... - Leukodystrophy Su...

Leukodystrophy Support

195 posts

CCALD Study....Questions?

0 Replies

We are still looking for parents to be part of our CCALD study. Without your help we won't be able to produce meaningful results which will help to make a difference to the outcome of future families affected by ALD.

To find out more: alextlc.org/childhood-cereb...

Questions? Please ask in the comments section and I'd be happy to answer them 🙂

The ability to reply to this post has been turned off.

Not what you're looking for?

You may also like...

Do you want to get in touch with someone with a similar experience of ALD or AMN?

If you do, we have a contacts list full of people willing to provide support about all aspects of...

I have 3 sons who have just been diagnosed with ALD

The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were....
littlelegs2 profile image

What's your view on Lorenzo's Oil?

Do you have an opinion on Lorenzo's Oil? Do you think it works? Or, do you think it is a complete...

drugs for 8 years old boy suffering ALD

Hello! My son a year ago was diagnosed with ALD. The disease progressed rapidly, now he already is...
zane_a profile image

Is there any aspect of your condition where you would support?

Whether you are interested in dieting, exercises, or a particular clinical trial, please share them...
MineshGokal profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.