September is Leukodystrophy Awareness month. Our aims during this month are to spread awareness of the different types of Leukodystrophy and reach new affected individuals and their families.
Join us this month and help raise awareness of Leukodystrophies by:
- sharing our posts on Facebook and Twitter
- posting your stories on social media using the hashtags #LeukodystrophyAwareness and #turnseptemberblue
- talking to your friends, families and colleagues about Leukodystrophy
If you want to find out more about leukodystrophies, including recent research, condition management and the work of Alex TLC then come to our Digital Community Weekend on Saturday 20th & Sunday 21st November, to find out more information and get tickets for the event visit: alextlc.org/tickets
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?
Difference between AMN and ALD
drugs for 8 years old boy suffering ALD
Is there any aspect of your condition where you would support?