Update : Hello. Again my name is Gary... - Leukodystrophy Su...

Leukodystrophy Support

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Update

Pine_Knot profile image
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Hello. Again my name is Gary. The only movement in my legs are spasms. The strength in my arms has decreased greatly. I can still move them but I have no coordination. But...I'm still living the good life. If you have any questions feel free to ask.

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Pine_Knot
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COwithAMN profile image
COwithAMNVolunteer

Hi Gary, well done for your terrific attitude to our disease. I see your earlier posts last year were to AMN Easier, maybe you want to redo this one on AMN Easier since I suspect most AMN-ers don't look here?

Chris

wilburlois15 profile image
wilburlois15

Thanks for sharing Gary ... keep up the positive attitude! Good luck!

Angus

Leelee85 profile image
Leelee85

The wonderful man that posted this 2 years ago was my brother! This horrible disease took his life at the young age of 35!! As you can see he was strong though! I am a 33 year old female carrier not to many symptom just some numbness in my toes. I have a 4 year old son that also has ALD. Thankfully he’s not showing any signs of the disease progressing! I just so happen to run across his post and had to reply. Miss him much!! 😥

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