Bittebitt8 years ago

I would like to learn avout Cmml

Madmin18 years ago

Diagnosed with CML after a blood test and ALL soon after a bonemarrow test back in sept 2012 had a bonemarrow transplant in Dec 2012 then lymphosite infusion in sept 2013 and again in Dec 2013 in remission now though I'm checked every 2 months next check up 26 Jan 17 fingers crossed

bronx77• in reply toMadmin18 years ago

Hope you stay well for many more years to come You have done really well for ALL

Try to stay infection FREE

Good luck Kevin

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Madmin1• in reply tobronx778 years ago

Yes got the all clear again really pleased

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bronx778 years ago

How about an in depth discussion about stay ing INFECTION free

Dragongranny648 years ago

May I ask what is mindfulness and how it works? Also how do you avoid neutropenia? How does a bonemarrow biopsy work as a diagnosis? Thank you 😀

Str19608 years ago

I would like to know more about long term use of drugs for controlling CML (I take Imatinib). Is this for rest of life? Will there be changes to its manufacture and might this have consequences?

Madmin1• in reply toStr19608 years ago

When I was first diagnosed with CML I was told I'd be on imatinib for life as a bonemarrow transplant was to risky you may become immune to them and be switched to nilotinib, or another similar drug

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ZaraBW6 years ago

I'm not sure if this is the appropriate forum but I would like a group that focuses on life post treatment. A survivorship area. Long term effects, mental health and on going support. Dealing with relationships, a new normal, exercise and physical health, ongoing problems due to treatment. How do people pick up the pieces?