Busman318 years ago

I have been out of work for 14 weeks with shingles a few years ago.... And now I am out dealing with a fistula that I believe is related to the HIV..... This could be 6-8 months out of work

Hidden8 years ago

I had 40+ days off but eventually managed to go back but find it incredibly hard

Positive808 years ago

I've voted that it did not impact me.

I believe its the hardest thing EVER that we have to deal with, or I have to deal with. Life has to continue. we must be strong and face it. I also believe it will depend on the person and the severity of their cases + where they live.

A friend of mind who lives in the Middle East, he is having a touch life - very unfortunate.. as law / community / everything is wrong over there.

Myself who live in Europe, defo way better as I still have a job (no requirement to do HIV test to get to work + no legal obligation to disclose your status to anyone/ employer ) and the treatment is free. Things have happened and no one can undo it (we wish we can).

It will take time to cope with the new life. I can tell you, I attempted to end my life twice but it did not happen . now, after a year and 4 months from my diagnosis, I see that life is nice and we should live it happily. we have the right to live our life with happiness.

Its important to have friends around who will support you. I still miss this as I do have friends but no one knows about my condition. I have always wanted to talk to someone who could understand my situation, someone I could relay on and talk openly to, apart from my HIV consultant.

If you feel that you wish to talk, please be in touch. we all on the same page and we all should support each other.

Utopia1230 in reply to Positive808 years ago

Hi there you are so right about sticking together myself Having been through the same situation and feeling very isolated about not mixing and talking to others with the condition exempt a very loving and caring partner I feel very lucky and supported my him

Keep you head up and enjoy live everyday

Best regards

Rob

Reply (1)Report

phil1234567898 years ago

My side effects like bad diarrhoea with cramps and fever

phil1234567898 years ago

Pain and diarrhoea with fever let stopp me

Ydontujustdie8 years ago

I had to stop work when I began taking part in the early drug trials which consisted of a 24/7 timetable of pill taking, vomitting, pooping and trying to eat. By the time the trials were over so were my legs as the. Nerves had been fried and I had and still have chronic fatigue so can't return to my 72k job and. DWP thinks I would rather scrounge a few quid from them than earn a high salary. I would rather eat worms than deal with those slimy little toads at the DWP who take every opportunity to set traps for people to fall into so that theY can have fun reducing people's incomes

Hidden8 years ago

I lost my job because of lupus and HIV complications

247sweet8 years ago

I lost a lot of weight when I first got ill. I went from 13 to seven stone in a few months. This caused problems to my spine and I still find it difficult to do any activity for long fifteen years later. I have been offered operations but in my experience these can cause other problems. So my life now revolves around this back condition which is manageable with rest and antiinflamitories. But I wouldnt be able to return to my career which was very physical.