Who monitors you?: - Early CKD Support
Who monitors you?
Are you satisfied with this? Has this had any consequences for you? Let us know your experience.
hi i have not help from any body as my gp has know idea n my hospital specialist just dont talk to me properly i need some one to help me
I would like to receive information on my condition
I live 1 hour 20 mins away from the hospital so it is a little inconvenient having to go through every month for my checks, especially when I have to take a 2 year old with me. Even though, I am much happier being seen by someone who specialises in my condition and wouldn't want full control to be handed over to my GP.
Unfortunately our local hospital does not currently have a dialysis unit and I therefore have a 35/40 minute drive to the clinic but also for routine blood tests becuase if I have them done locally the results don't appear on the clinic's systems. So much for "National Health Service"!
I don't know my %function when my GP referred me only my hospital specialist says I am at 40% function. I sure about a year ago I was 65%. My main concern is the fact I do night shift on a regular basis and not sure whether these will make my condition worse. (I have IGAN). I must say that my hospital specialist has been very good with me and have no complaints about my GP. Should I ask on my next Hospital visit?
My consultant i see every three months for a revue at the hospital is fantastic i can ask anything and he always explains eveything to me.
My GP on the other hand if i see them with a problem the first thing they ask is when are you seeing your consultant again.
This is very similar to the response from my doctors! My GP is terrible and now I just don't bother going there, if they do do anything I always end up on tablets which are bad for dialysis patients or diagnosed with the wrong thing. My consultant is amazing though, has never treated me like a child or told me things in a way I wouldn't understand (I'm 17) and always answers any questions 
My GP is fantastic. Unfortunately for him my consultant is not very good at keeping him up to speed so I often worry whether I should contact my GP when I have an issue or contact my renal consultant. I just wish they had a more joined up approach.
I don't have a regular gp and any I have seen have known less about kidney failure and everything that goes with it than I do! However, I regularly see my consultant, when I am on dialysis he will come to discuss specific problems, keep me up to date with what is happening in the hunt for a kidney or even just make sure I'm okay. He always explains everything so that I can understand and seems genuinely interested in how he can improve things for me. He's made me laugh when I felt like crying and I feel as though he really cares instead of like he is just doing a job. I can't imagine anyway he could be better and hope you all manage to find someone so useful and clever to help you with this
I have an excellent GP. Last January I was admitted to hospital with severe stabbing pains. The hospital discharged me with diclofenac and could only say it might have been kidney stones I was passing. My GP was not happy with this and did more blood test which showed my gfr was 29. She made an emergency appointment to see a nephrologist and this came in less than 2 weeks. I now have excellent hospital treatment and GP who really cares. I am one of the lucky ones.